Pancreatic Cancer Group: Introduce yourself and connect with others

I’m not @ joshua as my address says… but I can’t figure out how to get rid of that name in my address

Hello all, I was diagnosed with pancreatic cancer in the fall of 2021. I lived through 6 months of chemo, 3 weeks of radiation and then surgery in June of 2022. As of my last visit at Rochester Mayo, I’m cancer free and grateful every day for successful treatment and good care at Mayo and Essentia care in Fargo. I would like to get suggestions with some troubles Ive been dealing with since surgery….Chronic diarrhea and neuropathy (both feet and up left leg). Any new ideas for the neuropathy? Which vitamin help? Etc etc.
Thanks, Jane

Adenocarcinoma which resulted HER2 negative (1+)

Do you know what type of cancer was found in your pancreas? It usually ends in noma.

I went in to remove what was thought to be a stone in my bile duct by ERCP. Once there no stone found but a mass on head of my pancreas. He removed it and thought it looked good and not cancer however it came back cancer.

How was it found by accident? While having another operation? Mine was too looking for something else on a scan tho. So when they went in, they removed everything but just one time .

I’ve had my pancreatic cancerous tumour removed. (Neuroendocrine) and no chemo. I wish people would say what type of tumour. Or maybe I don’t get it. There are different kinds and each has their own treatment. Every situation is different. We are not doctors.

If it is pancreatic cancer, you should expect systemic treatment after surgery when you are strong enough for it.

I must say, your situation seems quite unusual in that they performed surgery and now are going back to get “what was left”(?). Or maybe you were having surgery for something else and it was discovered? If so, the current data seems to show better results with chemo first, then surgery. You might ask about that. If it is definitely Pcan, pls do get a 2nd opinion.
There can be many twists and turns with this disease. You need people, like Mayo, that see high volumes of these cases.

I was just diagnosed with early pancreatic cancer still waiting for the next step. Mine was found by accident. It was removed and since it was cancer they now say they have to open me and do further removal. What else should i expect? The doctors are talking and will call me back in a few days.

Thank you for the information. I will ask these questions on this Tuesday when they fit me for a form for the radiation!