Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Connect

@suelannon I am so sorry you are going through this. thank you for responding. i probably won't be coming in here for a while , due to so busy .
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1 Reaction@56pan Thank you for yur response. No they did not give him any pain medication. Just for nausea during chemo which starts wednesday.
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1 Reaction@ginamaria I will be done with chemo by the end of May and looking for suggestions for a reliable detox center that can help me clean my system of all the chemo and boost my immune system, please share recommendations.
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1 ReactionHello, My name is Ginamaria and I was diagnosed with 4th stage of pancreatic cancer in 2024. I am just about to complete second chemo treatment and my petscan on Friday showed NED
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7 Reactions@shema It will be a very tough Journey for both you and your Husband. My husband had surgery to remove the Body and the Tail of the Pancreas , the Spleen and 20 Lymph Nodes.
The Cancer was in 14 of the Lymph Nodes. It was also discovered in his lungs. He had a rough recovery from the Surgery but finally started to feel better after 6 months. We had a good year where we could go out to dinner with Friends and enjoy our Sons and their families.
He never really gained his strength back and the Oncologist felt that he was too weak to undergo Chemo and I agreed. I honestly felt that was why we were able to enjoy that year together.
Unfortunately, about 2 months ago, he started to lose his appetite and lost 17 lbs in 3 weeks.
Things have slowly gone down hill since then. He has absolutely no appetite, barely eating or drinking and sleeps a good part of the day. We have been married for 51 years and this is the hardest thing we have ever been through. You always have ups and downs in a marriage but they were always fixable. This we cannot fix . I have always been a very strong person but I have to admit that I am not feeling very strong now.
We are with Hospice now and they are all the most wonderful people and certainly helping to make things easier and they are there to talk to when I need them .
I hope that your Journey goes well for you and your Husband. Please just be there for him when he needs you. Enjoy being with Friends and Family . Take Trips if you can and go places you always wanted to see. Love will get you through this !
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10 Reactions@shema Did the medical facility that diagnosed his cancer not give him some opiates or some kind of pain meds. to take home with him?
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1 ReactionHi. My husband was diagnosed with stage4 pancreatic cancer 1 month ago. He will start chemo next week. He had (scale of 1-10). 10 of pain this morning in stomach. I Just want to know the journey I am expecting. thank you.
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4 Reactions@brewster066I had Whipple surgery done at the OSU James in October 2023 to remove a tumor in my duodenum that was discovered during a routine endoscopy. My surgeon was Dr. Mary Dillhoff. She has a ton of experience in performing Whipple surgery and I can’t say enough good things about her and her staff. The tumor was benign, so I was able to avoid chemo and radiation, but I still go every six months for bloodwork and once a year for an MRI. You are in very competent and caring hands at the OSU James.
Good decision on your part.
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4 Reactions@jayace2430 I totally agree. When times are difficult, I try to make good seconds. Good seconds become good minutes. Good minutes become good hours. Good hours become good days. Sometimes for me, living day to day is too hard to do. It is too long of a time period. Gratitude is not only good for the spirit, it is good for the soul. It also let's her care team know that you appreciate them. You are welcome.
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5 Reactions@tomrennie
She is beginning to slowly except reality. Her spirit is improving. Presently, she is waiting to go upstairs out of the recovery room. Of course, my ongoing supportive role is to instill the importance of being in real time present moment experience of gratitude etc.
You would agree it has an amazing power within the spirit. Thank you for your support.-:)
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4 Reactions