Pancreatic Cancer Group: Introduce yourself and connect with others

No treatment, cancer has already spread to small intestines.

Diagnosed with pancreatic cancer Sept. 9, 2025

They don't do anything. You order them through Amazon and out them onbefore your treatment. They can't tell which "shoes" and gloves you can wear.

@gamaryanne
Can you give me any tips for my husband , he is starting chemo Friday .

@mnewland99 when I talked to Prohealth about booties and mutt they flat out told me “we don’t do that here”. Trying to get in for a clinical trial at Froedert. Have appointment with them. So is it hard to handle cold feet and hands?

@suzanneuhc1
Make sure they add abraxane to your chemo regimen. Gem by itself will not do the trick. Make sure you order the mittens and booties with iced packs and out them in about 10 minutes before they administer the abraxane. This will help decrease effects from neuropathy in the feet and hands. You can also get it in your mouth (burning mouth) which I got during this year's administration of gem and abraxane. It's not that bad - everything not cold just tastes like cardboard so I'll lose some of those extra pounds I packed on in anticipation of weight loss from pancreatic cancer.

@jim1234
I am thinking they want me to start Gemcitabine with another chemo agent. Trying to stay positive as I see many success stories of people being around 10 years after stage 4 diagnosis!

I was diagnosed with Adenocarcinoma stage 1a September 2024. I had distal Pancreatectomy and removal of spleen at that time. My chemo started in November and due to severe side effects of Folfox I only got through 6 of the 12 treatments ordered. I went back for scans on October 12th 25 and the cancer has spread to Omentum. I am having appointment with oncology about starting a new chemo regimen. I am very scared and sad for my family.

@jim1234 Palliative. I think all stage 4 pancreas is. Just want to make it as long as I can. Looking at treatment soon. Getting port installed Friday. If I stay with Prohealth it's Folfininox. Otherwise I'm seeing if I can get into this trial quick enough because I know I can't wait. The trial is Gemcitabine and Nab-paclitaxel for chemo. Along with Nab-paclitaxel and Motixafortide as immunotherapy drugs. Actually not sure what's best for me. They explain both but neither one is an answer you want to hear

I was diagnosed 2 years ago, did folfirinox, then radiation with the MR Linac then monitored with CTs for nearly a year with no mets noticed, though now have a met on my right ascending colon - not the usual for pancan so several CT readers missed it. Now on gemcidabine abraxane every other week - 3 so far, along with 4 high dose C infusions. These were to be 3/week but the supply has suddenly dried up. So far I've been reading up here on reactions to gem + abraxane to see what the future may bring.