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Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
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@rotan50
I am also in atlanta area. Diagnosed stage IV in 2021 and still kicking!
Good care with very experienced physicians is critical. I will DM you.
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3 ReactionsDr. Eddie Abdallah at https://atlantaliverandpancreas.com/ is very well respected in your area.
Hopefully @gamaryanne can chime in or contact you directly with more info.
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2 ReactionsThx
I’m sorry for your diagnosis. I’m in Minnesota. Just wanted to welcome you to the group. Lots of knowledgeable people here if you have questions. Best luck.
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4 ReactionsJust starting my journey. I live in Atlanta, GA. Currently being seen at Emory Winship Cancer Institute. Anyone have experience with Winship or have recommendations for the Atlanta area for treatment.
I have a 15mm lesion on the pancreas head with 6mm duct dilation. Having some abdominal pain and new onset of type 2 diabetes. Scheduled for EUS with fine needle aspiration next week. Lesion identified on 11/28 by CT Scan. 12/5 CA 19-9 : 236. Feeling Positive
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4 ReactionsHello, the famous Kruger Park. I hope to see it some day.
What treatment plan are you in?
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1 ReactionGood day
I am Pierre Lombard and we stay in South Africa. We are based next to Kruger Park in a town known as Phalaborwa.
In May 2024 I was diagnosed with pancreas cancer in the tail that closed ducts of the pancrese and gal bladder.
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3 ReactionsHello everyone. My name is Jerold. I was diagnosed with Acinar cell carcinoma stage 4 incurable pancreatic cancer in 2022. I was on chemo every other week along with a pump that stayed connected for 2 days. I responded well to the chemo and after 2 years my surgeon suggested we go forward with the whipple procedure. That was performed late July and took nearly 11 hours. I am finally feeling like I’m breaking free from the fatigue. My appetite is still low because of cramping is dumping. I am currently on the highest dose of Zenpep. It has made a difference but it’s not perfect. It’s a long road but it beats the alternative. I was not recommended any more chemo and my ct scan looked good. Next even in 3 months. Fingers crossed. Also I have a wonderful team.
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9 Reactions@dantina777
My surgery has been done by Dr Eddie Abdalla. He is very skilled with the DaVinci system and also conservative when approaching surgery for the best outcomes. I highly recommend him.
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1 Reaction@gamaryanne May I ask what chemo regime you are on? I assume you are still on a regime.
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