Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

suelannon | @suelannon | Dec 28, 2024

In reply to @kickcancer49 "So sorry for your husbands’ situation! Wishing you both good results & happy holidays!" + (show)

Thank you !

marienewland | @mnewland99 | Dec 28, 2024

In reply to @lkat01 "Hello everyone, I am a Vietnam Veteran and am no stranger to cancer. I receive a..." + (show)

Hello,
If you had CT, wondering why waiting for MRI? I would think next step would be an ultrasound endoscopy so that a biopsy could be done. You don’t want to waste any time with this disease as it can be aggressive depending on your mutations. Thank you for your service!!!

lkat01 | @lkat01 | Dec 28, 2024

In reply to @hopeful33250 "Hello, @lkat01, and welcome to the Pancreatic Cancer support group on Mayo Connect. I'm glad that..." + (show)

I feel fine up to this point. I didn’t realize there was a problem until I got the results of the CT scan. I no that will change, but for now I feel fine.

Teresa, Volunteer Mentor | @hopeful33250 | Dec 28, 2024

In reply to @lkat01 "Hello everyone, I am a Vietnam Veteran and am no stranger to cancer. I receive a..." + (show)

Hello, @lkat01, and welcome to the Pancreatic Cancer support group on Mayo Connect. I'm glad that you found this forum. We have many members who have many years of experience with this cancer and who have found good treatments.

I am inviting some of them to discuss their experiences with you including @mnewland99, @markymarkfl, and @gamaryanne.

How are you feeling,@lkat01? Were you having any new symptoms before this was discovered on the CT?

rotan50 | @rotan50 | Dec 28, 2024

In reply to @mnewland99 "@gisele1976 Sometimes or usually the surgeon starts with laparoscopy before surgery. This is where they make..." + (show)

Located in Atlanta GA. I have had a consultation with Dr Abdallah and Dr Andrew Page.

rotan50 | @rotan50 | Dec 28, 2024

In reply to @mnewland99 "Hello @pierre59 Are you receiving chemotherapy and/or scheduled for a distal surgery? I had my distal..." + (show)

Had first chemo session 12/27. No surgery scheduled yet.

lkat01 | @lkat01 | Dec 28, 2024

Hello everyone,
I am a Vietnam Veteran and am no stranger to cancer. I receive a CT scan every 6 months because of other forms of cancer. The CT scans have come back as "no change" for the last 2 years. Except for the last, (December 6, 2024). The results came back with a 5.0 x 1.9 x 1.5 cm lesion on the tail of the pancreas. I am scheduled for an MRI on January 20, 2024. I guess I'll go from there.

rotan50 | @rotan50 | Dec 28, 2024

In reply to @markymarkfl "Dr. Eddie Abdallah at https://atlantaliverandpancreas.com/ is very well respected in your area. Hopefully @gamaryanne can chime..." + (show)

Had an appointment last week was impressed. Think I will be going with him for my surgery. Thx for the information.

rotan50 | @rotan50 | Dec 28, 2024

In reply to @marciak9 "I’m sorry for your diagnosis. I’m in Minnesota. Just wanted to welcome you to the group...." + (show)

Thx

gamaryanne | @gamaryanne | Dec 28, 2024

In reply to @thecomfycouchcafe "Hi. I have a loved one dealing with stage IV liver tumor. Atlanta is also her..." + (show)

My journey since 2021 has multiple treatments, surgeries, etc. but I do feel great and still work full time and volunteer where my heart leads me! It keeps me strong emotionally and distracts me from health concerns.
I have consulted with several Drs outside of Atlanta, but I consider my care team leader to be Dr Eddie Abdalla, Atlanta Liver and Pancreas Surgical Associates With Northside Hospital. Also in Atlanta, Dr. Harpaul Gill, Oncology