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Moderator

Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

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marienewland | @mnewland99 | Jan 1 5:45pm
In reply to @gmapri "Diagnosed as probable stage 4 with metases to the liver from CT & ultrasound. Jan 5..." + (show)
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Diagnosed as probable stage 4 with metases to the liver from CT & ultrasound. Jan 5 will have liver biopsy to determine type. I have very few symptoms so far. It was discovered from CT for possible pancreatitis Dec 11 2025

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@gmapri
Best wishes for you.

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Marsha | @gmapri | Jan 1 5:06pm

Diagnosed as probable stage 4 with metases to the liver from CT & ultrasound. Jan 5 will have liver biopsy to determine type. I have very few symptoms so far. It was discovered from CT for possible pancreatitis Dec 11 2025

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3 replies
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bobthebichon1 | @bobthebichon1 | Jan 1 5:01pm
In reply to @colleenyoung "Welcome @treadmillann. Have you seen this video by a Mayo Clinic physician? - Cancer-Fighting Foods https://connect.mayoclinic.org/webinar/cancer-fighting-foods/..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome @treadmillann. Have you seen this video by a Mayo Clinic physician?
- Cancer-Fighting Foods https://connect.mayoclinic.org/webinar/cancer-fighting-foods/

@marvinjsturing also started this discussion about enzyme replacement that you may wish to add to:
- Pancreatic enzyme replacement https://connect.mayoclinic.org/discussion/pancreatic-enzyme-replacement/

What foods are helping you? What are you doing about the bowel/stool issues?

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@colleenyoung my husband has used Vital an enzyme you can order on Amazon, they have helped him.

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1 reply
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sorbiodunum | @sorbiodunum | Dec 30, 2025
In reply to @quilter4mom "Greetings, I am a caregiver for my husband who has pancreatic cancer. Diagnosed in July, 2025...." + (show)
Profile picture for quilter4mom @quilter4mom

Greetings,
I am a caregiver for my husband who has pancreatic cancer. Diagnosed in July, 2025.
We are so pleased he is having a fecal transplant, tomorrow, using my daughter as his donor.

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@quilter4mom Hi I am also a caregiver for my husband diagnosed with Pancreatic Cancer in November 2025. Will the fecal transplant help with chemo symptoms? Diarrhea?

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quilter4mom | @quilter4mom | Dec 30, 2025

Greetings,
I am a caregiver for my husband who has pancreatic cancer. Diagnosed in July, 2025.
We are so pleased he is having a fecal transplant, tomorrow, using my daughter as his donor.

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1 reply
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billb720301 | @billb720301 | Dec 29, 2025

Diagnosed with adenocarcinoma of the head of the pancreas in July 2024. Had a Whipple in August and finished chemo on Jan 31st 2025. So far Natera ctdna has been negative, but CA 19-9 is way elevated.

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1 reply
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piedmontsteve | @piedmontsteve | Dec 23, 2025
In reply to @mnewland99 "@piedmontsteve Good luck! Mayo is great. Please describe the clinical trial. Did you do any chemo..." + (show)
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@piedmontsteve

Good luck! Mayo is great. Please describe the clinical trial. Did you do any chemo after surgery.

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@mnewland99 the clinical consists of 2 phases. First phase is laparoscopic HIPEC, followed by a major surgery that is HIPEC with debulking. That will take a couple of months to recover from.
Yes, I’ve done 80+ infusions and I’m currently on FOLFIRI.

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marienewland | @mnewland99 | Dec 23, 2025
In reply to @piedmontsteve "@colleenyoung the experience at Mayo exceeded expectations! I’ll be participating in a clinical trial focused on..." + (show)
Profile picture for piedmontsteve @piedmontsteve

@colleenyoung the experience at Mayo exceeded expectations! I’ll be participating in a clinical trial focused on peritoneal metastasis. I hope to return in February. Make it warmer!!!

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@piedmontsteve

Good luck! Mayo is great. Please describe the clinical trial. Did you do any chemo after surgery.

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1 reply
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piedmontsteve | @piedmontsteve | Dec 23, 2025
In reply to @colleenyoung "@piedmontsteve, how did your appointment go? What did you and your Mayo team determine to be..." + (show)
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@piedmontsteve, how did your appointment go? What did you and your Mayo team determine to be the next steps?

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@colleenyoung the experience at Mayo exceeded expectations! I’ll be participating in a clinical trial focused on peritoneal metastasis. I hope to return in February. Make it warmer!!!

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3 replies
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Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 21, 2025
In reply to @samsonunchained "Thanx. I got on touch with the surgeon who did the biopsy. She is a really..." + (show)
Profile picture for samsonunchained @samsonunchained

Thanx. I got on touch with the surgeon who did the biopsy. She is a really
good person and answered my questions fir as long as i wanted to talk. She
said she was sorry about not getting to me sooner. She said she has been
busy in the or doing one procedure after another.

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@samsonunchained, have you have any update on your biopsy? What did you find out?

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