Pancreatic Cancer Group: Introduce yourself and connect with others

I had acute pancreatic and I had to give up or I would get cancer. I have the gene my dad dies from pancreatic cancer and so did my uncles. I was so scared that I am trying to learn and do all I can even knowing people that have it. Not knowledge about it trying to educate myself.

@pvctom2021
Thanks to all… I will need some help….i was diagnosed with Pancreatic Camcer and it appears that it metastasized leaving some very almost too small to see or get a tissue sample using Ultrasound guidance… I’ve had shaving from the pancreatic mass that came back positive… so I have had a procedure done by a wonderful interventional gastrointestinal specialist (URCP) to open up the bile duck and the stent was successfully done… now all that remains is to see my oncologist Tuesday and she saw me in the hospital and we will go over the plan of care , which chemotherapy agents to use on me… this has been a nightmare for me and my wife…please pray 🙏 for me…god bless you all
PVCTOM ❤️🙏

@akhealth15
Diagnosed in December 2024. Had 12 chemo gem/abax treatments, finished in July 2025. No shrinkage of tumor which was abutting SMA and encircling SMV. I chose to have 5 Treatments of SBRT radiation in the hopes of being eligible for Nano-knife procedure if tumor shrank by at least 25%. I had follow up CT scan 2 months later and tumor had shrunk by almost 50% and I was back on track for the Whipple surgery. There was a rush to get it done because of possible scarring from radiation. I had the Whipple surgery December 4th. The surgeon was thrilled with the results, said it was very clean. I am healing well and will not require any post surgery chemo or radiation. Will follow up with CT scans and surgeon appointments every 3 months. I had my chemo in my area, all other treatments at CPMC in San Francisco. My cancer was acinar cell carcinoma, approximately 4 x 4 cm at diagnosis. I'm 78 yrs. young. Every one is different
I recommend getting as much info as possible and asking questions.

I was diagnosed with pancreatic cancer sept. 2025. i have mets to mu lungs and liver. I have had 8 treatments of gemzar and Abraxane. My first scan was after 7 treatments was 1/5/26 and it showed reduction in all areas. That was exciting but it's still a long journey. I'm continuing current treatment and have no idea what's next for me.

@akhealth15
I had surgery last January after initial diagnosis in July ‘24 and chemo until December. One surgeon wanted me to have radiation treatment to maximally shrink the tumor before considering doing surgery. The surgeon I went with strongly discouraged radiation because the tumor was wrapped around some vascular and radiation would make the vascular reconstruction more difficult/more likely to fail. So no radiation in my case.

@monterrey1997
Christopher Wolfgang @ NYU, formerly of Johns Hopkins
https://nyulangone.org/doctors/1770519761/christopher-wolfgang

@colleenyoung thanks for your inquiry. I’m scheduled for a Ct scan and a pet scan, and I’ve scheduled more blood tests. I will ask my oncologist what he thinks about it. Our next scheduled visit is in six weeks. I’m concerned because the CA 19-9 went from 8 to 173. Yes it could be caused by something else. My next ctDNA test will be more definitive. Any suggestions are appreciated.

@monterrey1997 I went to Mayo Clinic in Rochester, MN. I’ll be returning in March.

@piedmontsteve
Which Mayo clinic , did you go to?

@jjmacc
Would you mind sharing the name of your surgeon?

I’m happy you had an amazing outcome.