Pancreatic Cancer Group: Introduce yourself and connect with others

@rperry123, just checking in. How are you and your husband doing?

Hello @rperry123 and welcome to Mayo Connect. It sounds as if your husband is working through the first stage of treatment for pancreatic cancer. Could you share what symptoms led to this diagnosis.

Has he had many side effects from the chemotherapy?

That is good! Chemo before surgery is most advised now. You can help him by trying to keep him strong in prep. For surgery. Walk when you can, eat protein in all its various forms, hydrate, and most important; help him have a positive attitude! There are many survivors out here. Attitude is very important!! Thank you for walking this with him. It’s not easy for you either.

Hi @cmkalmes, I can imagine you're frightened to start chemo. Have you had your first treatment? Do you have someone to drive you to and from the appointment?

My husband is currently going through his second dose of chemo for state 1 pancreatic cancer. He will have possible 4 months of chemo before Whipple to try and see if the long term diagnosis is better than currently.

I am trying to get onto one of the RMC-6236 clinical trials either at Sloan Kettering or Dana Farber, both are enrolling and are not too too far from where I live in Ottawa Canada. I spoke with my surgeon today, asked if there were a choice between getting on gemcitabene/abraxane or RMC-6236, which would he choose? He said go for the newest treatment, RMC-6236, and I can always fall back onto gemcitabene/abraxane if necessary.
Is RMC-6236 in pill form? Do I have to be at the hospital to take it, or can I take it at home?
Thanks so much for any info or comments you have!

Hi
Is there a way I can follow you to keep up on your trial information? I don’t know which arm my husband will be randomized into when it opens up at MSK but it’s always helpful to know what’s going on in any of the arms.

Hello, I am doing the trial through Carolina Biooncology. It is a group that has focused on stage 1and2 trials for quite some time. It is also at Sarah Cannon hospital in nashville, Next Oncology in Texas and Virginia, MD Anderson and other places. Check NCI.org and put on trials for pancreatic cancer. Or go to Revolution Medicines.com. You will find information on their KRAS drugs in development and it will redirect you to NCI I believe. I am doing both drugs, the G12D specific and the Pan KRAS that targets several including G12V.
This is not a known cure. But it is another systemic tool in the box that is proving to shut down this cowboy for a good while with little side effects. it buys time while we wait for the next big thing.
For many it’s getting them to SBRT or surgery because of its ability to shrink tumors.
It has decimated a small tumor in my lung .

Where are you receiving your kras mutation clinical trial please! Thank you!

Good morning! When is the next virtual pancreatic cancer support group please?