Connect
Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
Like
Helpful
HugInterested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Connect
Is there any additional testing being done prior to your next surgery?
Good luck on the neuropathy. Many people looking for answers. Some on drug combos with gabapetin (sp) with varied results. Certainly vitamins could help but will not be curative. The diarrhea is certainly involving your GI system and probably fat digestion. Are you taking creon or zenpep?
-
Like -
Helpful -
Hug
1 ReactionI’m not @ joshua as my address says… but I can’t figure out how to get rid of that name in my address
Hello all, I was diagnosed with pancreatic cancer in the fall of 2021. I lived through 6 months of chemo, 3 weeks of radiation and then surgery in June of 2022. As of my last visit at Rochester Mayo, I’m cancer free and grateful every day for successful treatment and good care at Mayo and Essentia care in Fargo. I would like to get suggestions with some troubles Ive been dealing with since surgery….Chronic diarrhea and neuropathy (both feet and up left leg). Any new ideas for the neuropathy? Which vitamin help? Etc etc.
Thanks, Jane
-
Like -
Helpful -
Hug
1 ReactionAdenocarcinoma which resulted HER2 negative (1+)
-
Like -
Helpful -
Hug
1 ReactionDo you know what type of cancer was found in your pancreas? It usually ends in noma.
-
Like -
Helpful -
Hug
1 ReactionI went in to remove what was thought to be a stone in my bile duct by ERCP. Once there no stone found but a mass on head of my pancreas. He removed it and thought it looked good and not cancer however it came back cancer.
-
Like -
Helpful -
Hug
3 ReactionsHow was it found by accident? While having another operation? Mine was too looking for something else on a scan tho. So when they went in, they removed everything but just one time .
-
Like -
Helpful -
Hug
2 ReactionsI’ve had my pancreatic cancerous tumour removed. (Neuroendocrine) and no chemo. I wish people would say what type of tumour. Or maybe I don’t get it. There are different kinds and each has their own treatment. Every situation is different. We are not doctors.
-
Like -
Helpful -
Hug
3 ReactionsIf it is pancreatic cancer, you should expect systemic treatment after surgery when you are strong enough for it.
I must say, your situation seems quite unusual in that they performed surgery and now are going back to get “what was left”(?). Or maybe you were having surgery for something else and it was discovered? If so, the current data seems to show better results with chemo first, then surgery. You might ask about that. If it is definitely Pcan, pls do get a 2nd opinion.
There can be many twists and turns with this disease. You need people, like Mayo, that see high volumes of these cases.
-
Like -
Helpful -
Hug
2 Reactions