Pancreatic Cancer Group: Introduce yourself and connect with others

My husbands pancreatic cancer has returned, he is currently undergoing chemo and radiation is being recommended, I would like to connect with anyone in the same boat.
Thank you.

Hi Joann @survivor2 ane Marlene @sunshine041594 welcome to Mayo Clinic Connect and the Pancreatic Cancer support group.

@survivor2 I bet @marvinjsturing would like to connect with you. He just recently found out that his pancreatic cancer has returned and is now getting radiation treatments. Joann, you must be tolerating Capecitabine well if you're able to continue to work and normal life (although nothing is normal right now). What is your work? Are you able to work from home?

@sunshine041594 is your cousin being treated at Johns Hopkins? How is he doing?

That's wonderful, I'm so happy for you. He doesn't want surgery, unsure why. I pray you and everyone beats this horrible monster.I'll keep you in my prayers. God Bless

Hi my name is Marlene
My dear cousin was diagnosed with stage 4.
Just wondering if everyone was aware John Hopkins University has a vacine and surgical procedures that sound promising

Greetings,
My name is Joanne, I was diagnosed with Stage 3 Pancreatic Cancer in May 2015. I had the whipple surgery, 20 lymph nodes removed and 28 rounds of radiatio. I was cancer free for 1 year then the cancer returned in another area. I've been on chemo in one form or another for 4 years. My journey has been challenging but between my God, my Surgeon and my Oncologist team I am still here.

Currently, I'm on a 3000 milligram of Capecitabine 7 days on and 7 off. I get quarterly scans and MRI's. I still work and have a normal life.

@colleenyoung Hi, Colleen. You are correct, no treatments on weekends.I have 2 treatments done and will continue on Monday. I will be meeting with the radiologist every Tuesday during treatment. Our son came over today and installed a streaming device on our TV. There are many free streaming services and we are thinking about getting Amazon Prime. We got our smoker out today. Our son brought leg of lamb, chicken breast, pork roast and we had pork loin. Going to be eating good for a few days. Church will be video streaming again this week. Only going out for groceries (I drive and stay in the car; my wife goes in to shop), doctor's appointments and to pick up meds.

Hi @marvinjsturing I’m thinking about you today. I believe you are not getting radiation on the weekend. How are you spending your time? Will treatments continue next week?

@marvinjsturing Hello, Marvin,
I so appreciate the update. I will pray with you for those issues you mentioned. Wishing you all the best during this time!

Hello @marty1996

On Mayo Clinic's website, I found some information on Alpha 1 deficiency, however, it does address problems of the pancreas, but of the liver. I see that you have already posted on the Connect discussion on Alpha 1 deficiency. I hope that someone else may be able to answer your question about the pancreas problem.
https://www.mayoclinic.org/medical-professionals/pulmonary-medicine/news/alpha-1-antitrypsin-deficiency-a-liver-lung-connection/mac-20429381

Can i ask a question, I have developed Cronic pacreatictis due to atrophy of my pancreas believed to be related my alpha 1 difficiency an autoamune difficiency. My pancreas appears to be no longer producing the insulin needed to support my diabetic needs ( 20+yrs ) diabetic. I'm sorry but my question is has anyone developed pancreatic cancer as result of pancreatic atrophy with resulted in Cronic pacreatictis. Thank you for you support Allie.