Pancreatic Cancer Group: Introduce yourself and connect with others

I was diagnosed with pancreatic cancer in Feb 2021 and had a robotic pancreatectomy. I then had 12 sessions of folfirinox. I was NED after surgery and have remained so since. I go for a quarterly scan next month. I usually get nervously on line about this time. I am very grateful for my condition so far. My cancer was 2B. I discovered it by questioning a hospitalist about my high Lipase level. I was in the hospital for treatment of a UTI. He said he had examined a scan from 2months prior when I had sepsis and it was clear. He was insulted by my questions. Went to my PCP and she redid the Lipase test. It was still high. Went through an MRI, a scan and endoscopy where a stage 1 cancer was found. Between then and the surgery, one lymph node opened. 21 were removed. The tumor was also on a nerve. So far - so good………..

Hi
I was dx for stage 3 borderline resectable pancreatic in April ‘22
Did chemo , shark a bit but still too close to smv told no longer operable did mri guided proton therapy the last week of sept. Now possible surgery again. Im not sure now whether to have it .. any advice

Hi, I'm Carol and I do not have pancreatic cancer. I have had 4 FDR that has died of the disease. I'm being proactive as much as I can to not get diagnosed with this horrible cancer. I'm currently going to an amazing cancer team that has me do a EUS once a year to check my digestive tract. I currently have 8 cysts in my pancreas. My doctors are not concerned with the cysts now, but are keeping a close eye on me.

I'm looking forward to sharing with all of you in this group!
Thank You!

@lvtexas One idea: If you used the "add to calendar" function from the Pancreatic Support Group page, make sure the appointment was added to your calendar at the correct time based on your time zone. There are some funky time zone conversions during this time of year and sometimes calendars don't sync correctly. So you may be dialing in early. When I added it to my calendar just now, the meeting was added an hour earlier than it starts.

@ken240 Based on my Crohn’s disease, try to avoid chocolate and sugar in all forms : no cakes, no soda. I use stevia or nothing at all. Also, watch your caffeine- it stimulates your digestive system. All this happens without adding chemo effects. In health, be blessed. Journal to find your triggers.

@ken240 Along with this cancer, I have Crohn’s disease and GERD. So I am very nervous about D always, and reflux issues are treated with Pepcid (high dose) at night and another med before morning meal - so far that has stayed in check. I’m very nauseated so food isn’t high on my list. I am officially day 2 so I will be on the lookout for D. Thanks for sharing. Be blessed and heal.

Hi, my digestive issues cropped up two days after initial treatment. I had diarrhea and I treated it with Imodium, but then I was constipated for two days. I also took a Zofran for nausea, and not sure if that drug affected my system. Also had two bouts of heartburn in the ten days since the treatment. Doctor put me on Omeprazole. Trying to eat small portions more often, and that helps.

I couldn’t connect either. It just circled around on Zoom.

@ken240

I had my first Folferinox yesterday. When did you get your digestive symptoms? Right away? How are you treating them?
Thanks.

Hi, I had a distal pancreatectomy and splenectomy for an IPMN. There was an adenocarcinoma that was removed. I am stage 1b and had my first Folferinox chemo on September 14. Digestive system is out of whack. Trying to get back regular.