Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | Nov 3, 2020

In reply to @mscarano "Dr Truty stated I am not a candidate for surgery and tumor is active and locally..." + (show)

@mscarano, that must've been difficult news to hear that you're not a candidate for surgery. Do you already have a local oncologist? I might also ask about a palliative care team as they specialize in pain management and comfort care. Do you know if they provide palliative care where you live?

Teresa, Volunteer Mentor | @hopeful33250 | Nov 3, 2020

In reply to @marvinjsturing "My PET scan last week showed that the tumors are not growing. I do not need..." + (show)

@marvinjsturing I'm so pleased to hear that there was no new growth, Marvin! It sounds as if you had a nice visit with your family as well.

ginathemom | @ginathemom | Nov 3, 2020

In reply to @mscarano "Dr Truty stated I am not a candidate for surgery and tumor is active and locally..." + (show)

What kind of discomfort are you having? Can you share more about the stents? After my husband eats, sometimes, not all the time, his stomache swells up and gets rock hard. The pain for him is excruciating.... Wondering what's going on..... Thanks for sharing what your experience has been...

mscarano | @mscarano | Nov 3, 2020

Dr Truty stated I am not a candidate for surgery and tumor is active and locally advanced. Recommends I find a local oncologist to work with that will meet my quality of life needs. They did fix my bile stent and put in a stomach stent to my small intestines to better deal with my discomfort.

Colleen Young, Connect Director | @colleenyoung | Oct 31, 2020

In reply to @mscarano "Have diagnostic tests scheduled in Rochester on Oct 27 and Dr. Truty appt on Oct 28..." + (show)

@mscarano, how are you doing? I'd love to get an update on your appointment with Dr. Truty and the treatment plan. How are you feeling about things?

susan2018 | @susan2018 | Oct 17, 2020

In reply to @marvinjsturing "My PET scan last week showed that the tumors are not growing. I do not need..." + (show)

@marvinjsturing Whew! Good to hear. Take care

marvinjsturing | @marvinjsturing | Oct 17, 2020

My PET scan last week showed that the tumors are not growing. I do not need chemo at this time. Treatment plan is to have quarterly scans to monitor the tumors. Had a great weekend with my sisters - lots of visiting, food, swimming, ride on a paddle boat and a visit to an apple orchard.

Teresa, Volunteer Mentor | @hopeful33250 | Oct 5, 2020

In reply to @marvinjsturing "@colleenyoung We are driving - 3 1/2 hours - first appointment at noon on Thursday. Nothing..." + (show)

@marvinjsturing Saying a prayer for you, Marvin, as you travel and for your upcoming scan.

kjrita | @kjrita | Oct 4, 2020

In reply to @marvinjsturing "@colleenyoung We are driving - 3 1/2 hours - first appointment at noon on Thursday. Nothing..." + (show)

The older I get the more I realize that life is all about relationships. It is so great that you are connecting with family. I pray that you are lifted up and at peace during this time of uncertainty.

marvinjsturing | @marvinjsturing | Oct 4, 2020

In reply to @colleenyoung "@marvinjsturing, I can imagine the scanxiety has returned. I will be thinking of you all the..." + (show)

@colleenyoung We are driving - 3 1/2 hours - first appointment at noon on Thursday. Nothing planned before the scan, but after the scan we are meeting with 2 of my sisters and their husbands in La Crosse, WI for the weekend.

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