Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Gas can result from insufficient pancreatic enzymes. There is a medication called Creon that is prescribed to help with this.
I find that with each day removed from the treatment, my digestive system improves, but I take it slow, eating small portions throughout the day, and also 2 bottles of Boost between meals for protein and weight gain. Folferinox is very strong stuff, and it takes a while to build back strength to tolerate the next cycle. My oncologist gave me an extra week to recover in this cycle to make sure I am ok for the next round. I hope your dad feels better.
Thank you for sharing that. My dad got his chemo 1 week ago. Hopefully he will begin to feel better soon. I will also ask his doctor if he can try beano. How are you feeling now?
I have had five Folferinox treatments to date for my stage 1 pancreatic cancer. Usually, for several days after treatment, I have digestive issues like heartburn, GERD, and bloating. It is a common side effect from what I understand from my oncologist. I take Omeprazole and Pepcid, plus OTC antacids like Tums and Gaviscon, and also Beano. Around halfway in the two-week cycle, my system recovers somewhat, but I eat small portions of food several times a day. I have found, in my case, the fatigue can linger as not having the endurance for moderate activity. I hope this is somewhat helpful.
Thank you for responding. I asked the RN if the bloating could be ascites and she said that he has gas, not ascites, and that this is a common side effect of his chemo. She said for him to move around and eat more frequently. Have you heard or read anything supporting this? He sees the oncologist this week, I plan to ask her then.
jessieleigh,
There could be a build up of fluids in the abdominal area due to ascites ... has this been assessed?
My father was recently diagnosed with stage IV pancreatic cancer with metastasis to liver and peritoneum. I am heartbroken. He just finished his first dose of folfirinox and is very weak and eating very little. He sleeps alot and says he feels "uncomfortable" but doesn't describe it as pain, he says he feels "bloated" in abdomen.
The radiologist that did his biopsy mentioned radioembolization for the liver tumors. I made a post about this already but no one has commented yet. Have you heard of this being used for liver metastasis? I'm wondering if it will make him more comfortable. Thanks for reading,
JessieLeigh
God bless you ! Enjoy the day today with your family 😊
thank you
Bobbie,
That is amazing that you are a triathlete. Use that strength and mental fitness you have from your training. Stay strong.