Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Connect

Hi my name is Mary. Most important, God Bless you all and thanks for any feedback, thoughts, encouragement to come 🙂
My partner Lynne was diagnosed with PC July 2025. The tumor was local (@ 3.0 cm), no metastasis then or now (latest PET in 3/26 showed no spread). Could not have surgery immediately due to arterial involvement/proximity. She had 7 Fulfurinox treatments July - Nov 2025. Then targeted MRI radiation (5 days). Consultation with surgeon at Miami Cancer Center (Dr. Asbun). Tumor shrunk somewhat, but Unfortunately determined not enough for surgery to move forward now. So currently in 2nd round of fulfurinox (5 treatments). Early June will have scan and reassess.
Live in Southeast Florida/Boca Raton
Wondering if we're doing the right thing, seems to be right at this point, but hearing a lot about new trials and treatments (MRNA, KRAS, Optune Pak, etc); gets ones head spinning. Often struggle with whether to move to Mayo, Sloan, or Dana Farber at some point (we have Boston/MA roots.)
Thoughts/feedback welcome, thanks again!
Mary
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3 Reactions@gvk911 How are things going for you?
@casey1959 How are you folks doing today?
@casey1959 Nope, not wrong at all to be angry.
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3 Reactions@tomrennie I have accepted it mostly. Yet is it wrong of me to also be angry? I was then realized Pancreatic Cancer is very hard at times to diagnose.
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3 Reactions@casey1959 I suggest don't look back at things like the diagnosis took too long. You can't undo what is done. For me, it was unhealthy. I have learned to live today and just move forward. You can change things moving forward. Moving forward has hope.
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5 Reactions@jerryc131 My husband was diagnosed in July 2024. He never did Chemo or received any Treatment. Unfortunately , he had a lot of setbacks with the Surgery but he had been a Diabetic since he was 40 and never took it seriously enough. He had Kidney Cancer 4 years before this Diagnosis and lost a Kidney. He was finally recovering from all of that when he had to have a
double Heart bypass. It took him a long while to get over that Surgery when he all of a sudden started to lose weight which then took us on the path of all of the testing before finally getting
this Diagnosis. I have to say he had a hard 6 months after the surgery but after that we had a good year of being able to go out to dinner with Friends and just really enjoy our Family. He was able to eat anything he wanted and had a good quality of Life.
Just in the last 6 weeks, things changed and he has been on a steady decline since. He has
almost stopped eating completely and lost 17 lbs in the last 3 weeks. Sleeping so much more
and has just lost interest in going out or seeing friends. He definitely perks up whenever our
sons are around.
We went to see the Oncologist yesterday and they have referred him to Hospice Care. They will be here on Monday so I am anxious to be able to get a little more support for both of us.
We have been together since we were 17 years old and Seniors in High School. We will be married 51 years this July.
We have had a good life with a lot of Ups and Downs but thankfully we can laugh about the downs which mostly happened in the first several years of Marriage. I can say that this part of the Journey together is the hardest.
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5 Reactions@suelannon
Damn, woman! That’s awful!! How are you two managing? Is he doing chemo? My husband is having his surgery at UVA. It’s supposed to be pretty good.
I’ll be praying for you two.
🤗
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5 Reactions@suelannon I felt my husband's diagnosis took so long. 9 months. Failed biopsy after biopsy. It's so difficult to watch this illness do what it does to our loved ones. At times I'm just speechless. I feel for you both.
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3 Reactions@tomrennie we never forget these little things. Makes the tough big things a bit easier to get through. We've had many nurses these last 5days here in the Critical care Step Down unit. Something about that certain nurse one gets care from that just makes things breathable. Can't explain it. Good night everyone. Rest easy.
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3 Reactions