Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Connect

Exactly. Imagine an 83 year old woman with weak heart who hardly walks already
That’s tough to hear but makes sense. I had 6 months to recover from my first 12 rounds of chemo. I thought I was ready for more chemo but it’s just knocking me down. I’m so weak it’s tiring to think.
-
Like -
Helpful -
Hug
3 ReactionsGood information as always. I love reading your responses.
I have been collecting scarves over the last few years and they are fun to wear. I also have some knitted hats and baseball caps. I did get a wig on Amazon for 25 bucks. Looks weird.
-
Like -
Helpful -
Hug
1 ReactionHi Marie.
I’m on the same journey as you. Did you have the Whipple? I didn’t because of blood vessel involvement. 12 round folfirnox then 15 radiation treatments. 6 months vacation and now stage 4. In only getting two chemos this time. Gem and abrax.
Hi Marcia,
Join the bald eagles club!
All of my hair fell out about after the number of treatments with the GAC treatments as yours - it’s the abraxane. I’m still trying to find a good wig - I’ve been through 3 already and don’t really like them so I wear cute knitted caps as I’m on round 8 maybe? I haven’t been counting this go around in stage 4. In stage 2 ( last year) I was on 5FU and I counted every chemo session in anticipation of the final 12th round. As far as I know as long as abraxane is working you won’t have to visit your hairdresser! I try to look at it that I’m saving on those $175 hair styles and helping the environment by not having to buy those disposable plastic razors which just get thrown in trash)!
Mine began to return after a few months and today is fully returned
-
Like -
Helpful -
Hug
1 ReactionThe family and the oncologist all agreed that chemo is not an option. The doctor said it would make her very sick.
-
Like -
Helpful -
Hug
2 ReactionsIf I'm really careful. I tend to get in a zone and don't do things in moderation... But the tan is starting come in a little now that the days are longer. I got the worst sunburn of my life the first time I shaved my head before a surf trip to Australia. That hole in the ozone down there is no joke!!!
-
Like -
Helpful -
Hug
1 ReactionDid they discuss Gemzar for your mom? Folfurinox can be very tough but most find Gemzar to be easier to tolerate.
You might have a discussion about this drug for her.
-
Like -
Helpful -
Hug
2 ReactionsThank you for your response. Are you able to wear sun screen on your head and let it tan a little?