Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Thanks for that information. I'm seeing my medical oncologist this week, will pursue with her.
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Diagnose 4 month ago riceved a stent 2 months ago and I feel ok for now no kimono or radiation so far
I was encouraged to do the radiation since the chemo didn't work. Originally it was going to be the 5 1/2 week radiation since the SBRT required metal markers which would rule out the Nano-knife but the surgeon connected me with a radiation oncologist who has done SBRT without markers. So...I have my 5th and final treatment on Monday. Then it's a wait and see for 2 months.
Much appreciated. I will look into this.
The size of my tumor is similar to yours. My doctor didn't mention any issue with size being a factor relative to nanoknife. My next scan is in early November, and we too are looking for shrinkage. But if none, my understanding is that nanoknife is an option in the near future. Radiation seems to be discouraged if nanoknife is being considered. I'll post an update when new information is available.
His name is Mark Bloomston. He says he does about 9 nanoknife procedures a year, but he is performing other procedures involving electrode placement, so he's very involved with the technique.
Hola, siento mucho lo de tu cáncer. Has podido comer después de tu cirugía ? Como va la chemotherapia? A mi esposo le hacen esa cirugía el martes y luego comienza chemo. Cualquier consejo que pudieras darme te lo agradecería
I was diagnosed in December 2024. Tumor acinar cell 4.2x4.8 cm. Involving SMV and SMA so no surgery for me either. Did 6 months of gemcitabine and abraxane with no tumor change. Am currently doing SBRT radiation with last treatment this Monday. If the tumor shrinks at least 25 percent I will be eligible to or nano-knife procedure. Tumor has to be under 3.5 cm. for nano-knife .I won't know for at least 2 months after CT scan. That gives the white blood cells time to clean up the dead tissue and get an accurate picture. Would love to know if you end up with the nano-knife and how it goes for you.
Who is the NanoKnife doctor at Lee Health?
I'm an 87 year old male, in good health otherwise, diagnosed with pancreatic cancer 7 months ago after about 2 months of stomach discomfort (turned out to be pancreas). Tumor in pancreas involves superior mesenteric artery and vein, hence no Whipple in the picture. Started Chemo with 40% Gemcitibane every 2 weeks, have advanced to 80% Gemcitibane and 80% Abraxane. Supporting the chemo ok, nothing unusual.
Have been working with a surgical oncologist with Lee Health in SW Florida who does nanoknife, is trained on and performing histotripsy on liver tumors, looking forward to using the latter on pancreatic tumors. Going forward, more chemo, looking to see whether higher levels of G and A will result in any shrinkage. Possibly going to nanoknife in the next months.