Pancreatic Cancer Group: Introduce yourself and connect with others

@colleenyoung the experience at Mayo exceeded expectations! I’ll be participating in a clinical trial focused on peritoneal metastasis. I hope to return in February. Make it warmer!!!

@samsonunchained, have you have any update on your biopsy? What did you find out?

@piedmontsteve, how did your appointment go? What did you and your Mayo team determine to be the next steps?

@carlos322, I'm glad you're feeling pretty good after completing treatment for pancreatic cancer. Despite finishing treatments, thoughts about cancer, anxiety and discovering life after/with cancer takes time. Thoughts about recurrence are never far away. And then those 3 month follow-ups...did you know that there's actually a name for the anxiety you feel? Some call it scanxiety.

- Scanxiety tips and tricks https://connect.mayoclinic.org/discussion/scanxiety-tips-and-tricks/

You might be interested in some of the discussions in the Cancer: Managing Symptoms support group like this one:
- Emotional health after cancer: How are you doing really?https://connect.mayoclinic.org/discussion/emotional-health-after-cancer/

Thanx. I got on touch with the surgeon who did the biopsy. She is a really
good person and answered my questions fir as long as i wanted to talk. She
said she was sorry about not getting to me sooner. She said she has been
busy in the or doing one procedure after another.

I am waiting for information from several drs regarding a needle biopsy of a “cyst “ on the tail of my pancreas. It seems the cyst has grown since last year. My results have been passed to everyone with no one willing to talk to me. The results were passed to someone at Mass General and i was told that the nurse relaying the interpretation of the results could only speak to a nurse who was licensed in both NH and Mass. WTF? The CEA is 5202. Everything I see online is either not clear or bad. Still trying to talk to my “care givers”.

@tomrennie We will begin next week. Unsure of day yet but ready to go. The anxiety of diagnosis and tell friends has been only bearable and have concerns about loss of appetite and eating. All very new for us. Looking forward to encouragement, helpful tips and shared experiences from this group. Our team at our hospital here in Ottawa Canada sounds wonderful and supportive. Thank you for support for me, his caregiver and wife of 43 years.

@sorbiodunum Hi and welcome to Mayo Connect. Sorry to hear about your husband's diagnosis. Fortunately, it seems to have been diagnosed early, and he is otherwise the picture of health. When does he start Folfirinox? Do you two have any concerns at this point?

@piedmontsteve Hi Steve and welcome to Mayo Connect. I am sorry to hear about the reoccurrence to your peritoneal cavity. What kind of pancreatic cancer did you have? Please share the results of your recent tests and laparoscopy, if you are comfortable, and next steps. We all learn from each other's journeys. Thank you.

My 73 year old husband has just been diagnosed with adenocarcinoma in the tail (distal) of the pancreas. It was 44mm with no visible spread and clear lymph nodes. He has no symptoms (weight loss, jaundice etc.) Discovered incidentally during a CT Scan for a minor fall off his bicycle. Accepted for surgery (not whipple) dependent upon success of Chemotherapy (Folfirinox..4 rounds). Otherwise the picture of health for an active man of his age.