Pancreatic Cancer Group: Introduce yourself and connect with others

@56pan My husband tolerated Gem-Abraxane (15 months!) alot better, unlike you. Folfirinox was/is worse for him. But hair fell out and eyebrows went with G-A - he looked alot like Voldemort. Once he stopped G-A because tumour developed a resistance to it, hair grew back. He's back on a modified Folfirinox.

@joiedevivre That's the exact mixture I had for 12 sessions over 6 months and was effective on my cancer. 5 cm. tumor on tail of pancreas, several lesions on my omentum and 3 lesions on my liver and all confirmed as Acinar cell PC after laparoscopic biopsy. Only thing visible after 6 mos. and PET scan was one lesion on my liver. Didn't lose my hair and the side effects weren't that bad. Had to start Gemcitibine/Abraxane about 4 mos. later due to no progress on Olaparib in a clinical trial at the NIH. Hair fell out and the side effects were considerably worse than the Folfirinox. Good luck.

Same here! Wish him all the best. Im hoping that I can learn how to get through the worst days. Thx

@blackie17 If it is any consolation, my husband who is on a 'modified' Folfox (3rd session) is having a really hard time - nausea, tummy upsets, no appetite, weight loss, fatigue.

@blackie17
Sounds like Folfirinox - Oxaliplatin, Irinotecan and 5FU? The 5FU is the one you take home for 40 hours. You will feel pretty awful at the start and it does get better but very very slowly. Hang in there.

Hi, I currently have symptoms of pancreatic cancer.
I will be having a MRI soon and that will tell
me yes or No.

If affirmative I will be back to learn from others
how to deal with it. And God forbid it is not stage 4.
If yes, easy to deal with, just get my "Will" and testament up to date. : -(
Thank You

@blackie17 sorry to hear about that. I grew up in Philly, so I know your area pretty well. I have a different type of pancreatic cancer. But, others on here have experienced your diagnosis and treatment. I just want to ask a few more questions, so those folks can share their journeys. Ok? What are the three drugs in your three drug combo? What pancreatic enzyme were you prescribed?

@blackie17
Tom, I am not feeling well. They just RX’d me a pancreatic enzyme replacement. I’m hoping this is a covered expense and is helpful.

I am taking the three drug combo through a port and I go home with a pump following the infusions

@tomrennie
Hi Tom,
Adenocarcinoma, spots on liver as well. Had biopsy by endo which confirmed the spread. I had visited Sloan Kettering in NYC and also Stonybrook out on LI. Opinions were the same which was inoperable at this point. I live in southern DE.

@blackie17 Hi Mike and welcome to Mayo Connect. Can you please share what type of pancreatic cancer you have? How was it diagnosed? What type of chemo are you taking? How are you feeling overall? Thanks.