Pancreatic Cancer Group: Introduce yourself and connect with others

Thank you! Having the Mayo Pancreatic Cancer support group has been tremendously helpful as a cancer diagnosis feels very isolating and scary. Sincerely and with all my heart, I hope and pray that every one going through this finds the clarity and peace they are looking for.

Such good news! We all love hearing of your good health!!

I have an IPMN in the main duct of the pancreas. It was discovered in 2013 incidental to a kidney stone . I wasnt told about this IPMN until 2022 when I had an abscess of the diverticula. Two doctors I spoke with at the hospital thought it was a benign condition since I'd had it so long. 9 years. I chose to see a GI doc who does feel the Whipple is in my future. I have zero symptoms, very active but I am now having MRI's with contrast every 6 months since 2022.
Have not received a diagnosis of PC.
Otherwise very healthy and active 72 year old.
Is it practical to have this Whipple surgery with no official diagnosis

Hi
71 year old male in Michigan. Diagnosed in Dec 2023 with pancreatic neuroendocrine tumor which had spread to the liver. Had hepatic embolization, lanreotide injections, 6 rounds folfox and 4 sessions PRRT. Most recently had tail of pancreas, spleen and gall bladder removed along with liver ablation. PET scan today shows more liver progression so i'm not feeling too optimistic.

@gamaryanne , Another player targeting KRAS is Elicio Therapeutics.

They have some trials going on for their ELI-xxxx series of drugs:
https://clinicaltrials.gov/search?term=Elicio%20

Hello! and than you for asking!
So far so good, These past months my CT scans have come back uneventful, as well as negative Signatera blood biopsies. I have my next round of CT scans and blood biopsy next week.
I pray and hope that all continues to be normal. In the meantime, I focus on staying active, eating healthy, doing volunteer work at my local hospital, and living with gratitude. I do continue to check daily on this Mayo Pancreatic Cancer group to help with my input and experiences wherever I can help.

What ever happened to you?

@gamaryanne
The mutated gene is the BRAF. (BRAF V600E). My wife has a rare form of pancreatic cancer, aligned mostly with Colon cancer.
She has the "Acinar." Most have the "Aden." She does not have the BRACA gene.
The "Targeted Therapy" is NOT a clinical trial and she has never been given radiation treatment for her cancer. Just Chemo in the beginning, which did nothing for her.
Thus, they placed her into the targeted treatment to attack her tumors.
These treatments are found under the NCCN guidelines for viable treatments.
Hope that answers your question.

@jolo24
Was the targeted therapy after a mutation?
Can you share which ones?

@jolo24 What mutation(s) does this targeted therapy go after?
Is this a clinical trial?

Hoping there is something else out there besides the Rev Med drugs.