Pain spikes and overall body pain

Hi @karenandkiell
What you described over here has happened to me once after the only experience of a tonic-clonic seizure or a convulsion I had. I stayed in that body pain for one month, all was hurting. Every time I had a complex seizure after this tonic-clonic, it would intensify this body pain.
Was this 3rd seizure of your son a focal/partial seizure or a tonic-clonic one? Did he have a convulsion in one of his seizures?
I am a fan of acupuncture (the Japanese one), it has helped me much in relieving different body pains. Perhaps this could be an option for your son?
Wishing him better days!
Chris (Santosha)

Hi Chris, he’s had 3 tonic-clonic seizures and a few focal aware seizures.

He had his first ever seizure, then another one in the hospital four hours later in July of last year. His 3rd seizure was in November.

After the first 2 he had some pain then after the third one he’s had continuous pain which has gotten worse.

Thanks for mentioning Accupuncture. We will definitely try it. He’s needs help and his doctor and neurologist don’t have any solutions. We’ve been at a loss as to the extreme pain my son has.

I appreciate your response!

Take care!!

Karen

@karenandkiell
My pleasure Karen!!! Thank you for the additional information sent on your son. I hope acupuncture brings relief to those body pains of your son. 🙏 The Japanese massage my acupuncturist did after the acupuncture was also helpful.
Another thing I share with you is the use of rescue spray. When my complex seizures were strong, bringing many body contractions, I used one rescue spray, which interrupted well my seizures, reducing the contractions and the body pain caused by them. Unfortunately, at the time I had my tonic-clonic seizure, I was not aware of such medication.
You mentioned that your son is being treated by a neurologist. Based on my own experience, I would recommend an epileptologist instead. For me, it has made a big difference. The neurologists I went to treated me just according to the standard procedures of temporal lobe epilepsy, not considering my particularities. Just to mention something quite simple, I am a "mignon" type of person, not tolerating well standard dosages of any medication, but the neurologists I went to did not consider that.
I have been more and more keen on integrative medicine doctors that see us as whole, and not just one part of our bodies. This week I have been to a functional nutritionist and like it very much. For example, she has pointed out that some complexes of my Vitamin B are not high enough for someone with a neurological disorder. They should be in a gold standard as it is known that Vitamin B complexes are a neural protector (today they are in acceptable range level). Soon, I intend to switch from my traditional GP to an integrative medicine GP. If you enjoy reading, I highly recommend the book "Brave New Medicine" by Dr. Cynthia Li, a previous traditional doctor who became an integrative medicine doctor through her own health issues in life.
Take care!
Chris (Santosha)