Pain management with Nevro

Posted by annabellas4th @annabellas4th, Feb 14 12:40pm

I had a Nevro Senza Spinal Cord Stimulation System implanted two years ago. The original placement was too high up and I had a hard time recharging it due to placement. My doc moved it lower to make it easier to reach. When in the OR, the Nevro rep advised the doc 'Not' to place the device too deep as I would find it difficult to make a connection when recharging, but he buried it anyway saying 'I' would like it better. Well the doc buried it. If I able to make a connection to recharge, it takes upward to 25+ .minutes to connect. The device flips around and after almost 30 minutes, I give it up. So, it is not working for me. If he had listening perhaps the device could help me, but having tremors it is difficult to charge. In order to get some relief, it will need to be moved, which means yet another surgery. When I spoke to the doc, he suggested I see a different doctor. With a history of many surgeries, I don't want yet another surgery to add to my already more than 24 surgeries. So, I will remain in severe back pain, just because thee doctor refused to listen to the Nevro rep.

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@annabellas4th Hello. I wanted to welcome you to Connect. I am a cervical spine surgery patient.

Are you sure you want to draw the line and refuse to have another surgery for better placement of the device? It sounds like your surgeon isn't interested. If they do something that may be considered a "mistake", they can abandon the patient instead of owning the responsibility to try to make it better. I'm sure that is frustrating, and if you can take those feelings out of the problem, you may be able to look at it differently. I don't know what the solution is, but the surgeon isn't going to keep thinking about this and will move on to other patients.

I had a similar response after having carpal tunnel surgery that didn't resolve all the pain because the surgeon missed that I also had thoracic outlet syndrome and he didn't even understand it or know how to diagnose it, but it produces overlapping pain signals from the same nerves in the arm. I found another doctor who helped me with physical therapy. If I hadn't also moved on, I'd be a mess.

These are just my thoughts.
Jennifer

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