Pain management and life expectancy stage 4 mestasized to bones

Posted by debbie02 @debbie02, 1 day ago

my husband is 64 years old and was diagnosed stage 4 metastsized to bones 4 years ago. He has done good until now. His PSA went up to 22 and pet scan shows cancer "all over his body" per oncologists ". He has had pain in right hip the entire time but now pain in back, leg and foot on right side as well as in pelvic area. Also, the oncologists found a place in in the roof of his mouth. He has scheduled radiation for pain and possible more chemo. Up to this time my husband has not taken any pain meds except for gabapentin.
Since he has done so well with his prior treatments, hormone, orgovyox, pluvetco, radiation, chemo.........I was floored when Dr. told us today" he had bought my husband 2 good years" I couldnt ask him any questions and of course my husband couldnt speak at all. the Dr. also kept emphasizing the pain that my husband was going to go thru.
Now here I sit with a million questions and an utter sense of helplessness. Please someone tell me what we are facing. I can't stand to think that he is going to suffer terribly.

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Profile picture for surftohealth88 @surftohealth88

@debbie02
My husband deals with his cancer the same way and since you asked how to support him I can only share what I do - I let him be in denial and do all research by myself and am trying with all my might not to show all of my sadness that is some days truly overwhelming. I cry when he is not around and smile when he is around.

I make sure that he takes all of his medications and supplements and that he makes timely appointments and ask from doctors for things that he needs. I am not only protecting him from dealing with cancer - I am protecting myself since seeing him "normal and happy" is the ONLY thing that is keeping me sane. So let him go to work, let him do whatever he wishes, he will stop when he feels that he can not do it any more - he will know.

It is very hard to plan this way for anything long run, inclooding financial matters but you know what - I do not care. We can not control what will happen and when will it happen in general, so the only thing that I can do is to make sure that he lives his life fully and the way that he likes it (which for PC patients can last from just years to even decades with no particular rime nor reason ).

I hope really that you have some family members or friends that can offer you some help and shoulder to cry. 💗 For me prayers also offer comfort and hope even though I am not tremendously religious person but I am very spiritual person and prayers help me with keeping my sanity intact.

Sending you hugssss and wishing you peace and strength to endure those most trying times ✨🌺.

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@surftohealth88 your approach is so wise and often contrary to popular opinion. It's okay to let them be in denial, it's okay to put on a happy face, it's okay to cry in solitude. If this works for your family then go with it. Best wishes!

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Profile picture for debbie02 @debbie02

@beaquilter so sorry about your husband. I wish I had some good news for you. I completely understand your sadness and frustration. The not knowing is what hurts me the most. My husband says I am a control person. I feel like if I knew what I was dealing with I could handle it better. One thing I can tell you is if your husband can keep a positive attitude it does make a difference. We have had 4 good years since he was diagnosed. Thoughts and prayers for you.

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@debbie02

Find and try this - Inonotus obliquus. Let him drink the decoction every day. Mushrooms should only be collected from living trees (birch).Let him replace all the liquid he consumes with a decoction of Inonotus obliquus

The doctors gave me no more than two years; my starting PSA was 530 and I was covered in metastases like a Christmas tree. I've been taking it (Inonotus obliquus) for a year and a half.

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