Pain after robotic assisted lobectomy: How long does it last?

Posted by pat3017a @pat3017a, Nov 27, 2021

I had a robotic assisted lobectomy about 5 weeks ago and still experiencing pain. Seems like there has been very little improvement in past couple of weeks although incisions look great. The pain is mostly when I am moving and at night when trying to get comfortable in bed. Just wondering how long others had pain after this type of surgery? I feel bad even asking this as so many people have went through so much more in their cancer journey than I have. I know I should feel fortunate.

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Thank you for sharing your experience. I had RAT surgery, removed lower right lobe. Cancer was contained in the lobe. I wonder why the fluid buildup occurred? I hope getting fluid removal doesn't become a regular need! Fluid was found at my 4 week post -op xray. The xray 4 days after surgery showed no fluid - that's when the chest drain was removed. So much to learn, everyone's experiences are quite helpful!

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Profile picture for kkckkjm @kkckkjm

Another question related to symptoms after a lobectomy. Its been 4 weeks and I need to get a build up of fluid removed from my treated lung via thoracentesis. Has anyone else had that experience?

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I'm curious as to what systems you had or how did they know you had fluid build up and believe that call it pleural effusion?
I had some fluid on the 6 months lobectomy follow up CT.........but it went away on its own and one year follow up did not see any.
I had VATS wedge resection surgery last November and my 6 week surgery follow up xray did not show any fluid. My 6 month CT did show pleural effusion). Some fluid is possible but mine was a a bit more than expected and had thoracentesis in April. Testing showed mine may be related to the lymphoma that I also have. I had a late June follow up and had some recent deep breath pain and found the fluid returned and had another thoracentesis on Friday and am waiting on test results. Am expecting it is lymphoma caused and not surgery related.
Thoractesis is a pretty quick and easy procedure. Not much pain. You can see a procedure on youtube. Am guessing they will test the fluid.
Let us know how it goes.

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Another question related to symptoms after a lobectomy. Its been 4 weeks and I need to get a build up of fluid removed from my treated lung via thoracentesis. Has anyone else had that experience?

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Profile picture for Merry, Alumni Mentor @merpreb

Hello and welcome. I'm sorry that you are still uncomfortable but I think that you will be uncomfortable for the next few to several weeks at least. I had my right lower lobe removed by open chest surgery- "the old fashion way" because robotic surgery wasn't in use then for this kind of surgery. All surgeries that take place inside the chest wall interrupt the lung's topography. Most chest surgeries hurt afterward. It's been 10 days so give yourself a break, rest, move slowly, take slow deep breaths, and baby yourself.


Use youtube to find out how to do different tasks. You should have had some form of PT while you were in the hospital and they should have given you directions on all of this. And every day you need to get up and walk. This will help keep you from getting pneumonia and get you back to your life sooner.

Are you having any problems like coughing up blood or seepage that is very worrying?

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Hello and thank-you for your interest. I have turned a corner on my pain management and feel much better. I do walk each day and do my arm exercises. As a swimmer, I am anxious to get back in the pool. I feel very fortunate to have had wonderful support.

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Profile picture for kkckkjm @kkckkjm

It's been 7 days since my robotic lung surgery, removing my right lower lobe. I'm doing well but curious as to how long I'll feel as though I am getting a hot knife in my gut whenever I try to use my abs or move even slightly the wrong way? I can't lay flat because I can't sit back up, even being in a recliner is difficult. I wish I could sleep standing up!

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Hello and welcome. I'm sorry that you are still uncomfortable but I think that you will be uncomfortable for the next few to several weeks at least. I had my right lower lobe removed by open chest surgery- "the old fashion way" because robotic surgery wasn't in use then for this kind of surgery. All surgeries that take place inside the chest wall interrupt the lung's topography. Most chest surgeries hurt afterward. It's been 10 days so give yourself a break, rest, move slowly, take slow deep breaths, and baby yourself.


Use youtube to find out how to do different tasks. You should have had some form of PT while you were in the hospital and they should have given you directions on all of this. And every day you need to get up and walk. This will help keep you from getting pneumonia and get you back to your life sooner.

Are you having any problems like coughing up blood or seepage that is very worrying?

REPLY
Profile picture for vic83 @vic83

I am being monitored while on the treadmill, so it is interesting to have so many data points for my oxygen levels besides the usual blood pressure heart rate. Sitting around at night I have high 90s, sitting immediately after exercise I have 94, but at a certain exercise intensity, my oxygen drops below 88. They have a good oximeter that tells them when they are getting a good reading. I have tried usual good breathing technique but that does not bring it up. So they lower intensity. It has happened twice now, so next time I will slow speed and increase grade to see what happens. But I didn't feel any differently at the time. And I don't plan on doing any heavy work ever!

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hahaha

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Profile picture for Merry, Alumni Mentor @merpreb

Of course, And you are very welcome. I'm sure that exercise has helped, Vic. Were any suggestions given to you on how to keep your numbers above 88?

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I am being monitored while on the treadmill, so it is interesting to have so many data points for my oxygen levels besides the usual blood pressure heart rate. Sitting around at night I have high 90s, sitting immediately after exercise I have 94, but at a certain exercise intensity, my oxygen drops below 88. They have a good oximeter that tells them when they are getting a good reading. I have tried usual good breathing technique but that does not bring it up. So they lower intensity. It has happened twice now, so next time I will slow speed and increase grade to see what happens. But I didn't feel any differently at the time. And I don't plan on doing any heavy work ever!

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Profile picture for vic83 @vic83

Thanks for the tip Merry!
I change to a lighter mask for Cardio Rehab. Everyone has to wear a mask there. Interesting enough, I have now reached a wall (speed +grade) in my cardio rehab exercise where my oxygen level falls below 88 (the minimum Mayo Pulmonologist said to keep). And breathing techniques do not help then. I do think exercise has given me a little more capacity.

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Of course, And you are very welcome. I'm sure that exercise has helped, Vic. Were any suggestions given to you on how to keep your numbers above 88?

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Profile picture for Merry, Alumni Mentor @merpreb

Vic- It helps to slow your breathing down when wearing a mask even if it is against what you reflexively want to do (breathing faster). Try it.

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Thanks for the tip Merry!
I change to a lighter mask for Cardio Rehab. Everyone has to wear a mask there. Interesting enough, I have now reached a wall (speed +grade) in my cardio rehab exercise where my oxygen level falls below 88 (the minimum Mayo Pulmonologist said to keep). And breathing techniques do not help then. I do think exercise has given me a little more capacity.

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Profile picture for vic83 @vic83

You sound like me. I had VAT surgery right upper wedge end Dec 2021 -
I too had a slight cough which has gone away. I still have soreness if I take a deep breath. Glad to know it is not unusual. Minnesota winter also kept me from exercising, and I was afraid to go to the Mall for fear of Covid. I had already tested positive one month after surgery despite isolation. I wear a mask at Mall, and it is hard breathing with a mask. My oxygen level drops with exercise, and I need to keep it above 88 and N95 mask makes it harder. But SOB is better with exercise WE MUST EXERCISE!!!!!

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Vic- It helps to slow your breathing down when wearing a mask even if it is against what you reflexively want to do (breathing faster). Try it.

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