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Otologist/Neurotologist Recommendations

Posted by TMM @tmragain, Mar 31 6:26am

Can anyone recommend an Otologist/Neurotoligist in the US. I need another opinion please. I’ve had 3 surgeries and still having fluctuating hearing loss, fluctuating ear fullness, fluctuating hyperacusis, sometimes spinning vertigo, brain fatigue, pulsating tinnitus and imbalance issues. I just came off of another 10 day course of steroids. Currently taking a diuretic and Betahistine. I requested an appointment at Mayo in Rochester and they denied me. Do I need to request again or do they not have a specialist that can deal with Perilymph Fistulas.

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TMM | @tmragain | Apr 3 8:35am
In reply to @sepdvm "That is pretty acceptable driving distance to Rochester. Did your ENT doctor try a referral to..." + (show)
@sepdvm

That is pretty acceptable driving distance to Rochester. Did your ENT doctor try a referral to ENT at Mayo there? Sometimes that may create a better response than patient request. I have another suggestion that helped me with nerve healing. Research Lion’s Mane mushrooms, as there are studies that support their use in aiding nerve function and healing. I use a powdered product in my coffee every morning by Four Sigmatic. There are capsules at Real Mushrooms.com and I have even found the fresh shrooms at the grocery lately. They are tender and mild when lightly sautéed in butter.

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It would be a little over 5 hours for me. My current doctor is 2 1/2 hours away. At this point, I’m willing to travel wherever in the United States for the right doctor, as long as my insurance covers its. It also helps that my husband does all of the long distance driving. No, but he is willing to send a referral. I have a follow up apt on the 14th and plan to ask him to do so.

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Mentor
Julie, Volunteer Mentor | @julieo4 | 6 days ago
In reply to @brigid4 "Accepting that the specialists are not able to "fix" anything to do with tinnitus, and learning..." + (show)
@brigid4

Accepting that the specialists are not able to "fix" anything to do with tinnitus, and learning to live with it, is the best option until the puzzle is resolved. It is a disability, usually unrecognized by anyone because we sufferers are the only ones who " hear" it. ENT docs are unable to help, and I believe it is nerve damage but as a neurologist told me, you can't really see that on any test or fix it with any drug. So you cope with living with the dizziness, noise, and trying to hear over it. I find that having a project or two going on all the time and a houseful of pets to distract me from myself help more than anything. Sort of: where there is will, there is a way.

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Recently a treatment was approved by the FDA for veterans who suffer tinnitus. Tinnitus is the most frequently reported disability among those who have served in combat zones due to noise exposure. I have no idea how this works or how well it works, but it's good to know that research is taking place.

Has anyone tried this?

FDA-Approved Lenire Tinnitus Device Now a Treatment Option for 2.9 Million US Veterans Through Veterans Affairs
https://www.audiologyonline.com/releases/fda-approved-lenire-tinnitus-device-29023

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