Osteoporosis of the spine and boniva

Posted by missymew @missymew, Jul 20, 2019

Newly diagnosed with osteoporosis of the spine in the lumbar region. Doctor recommended medication. I am on 2nd month of generic Boniva with minimal short term side effects. Anyone with experience with this medication? Long term side effects? Success?

I could not tolerate this medication due to my chronic migraines. However, I took the IV version without incidence. Ultimately, though, it didn’t help my osteoporosis and moved onto other medications. Good luck! I hope this works out for you!

Liked by spendthrift

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@missymew, Good afternoon. Thanks for visiting us on Connect. As volunteers, we cannot recommend medical treatment or medications. What we can do is share our experiences with you so that you may add to your own body of knowledge and be your own advocate for medical issues.

I am afraid I do not have a success story with Boniva and evidently, it didn't get a very nice welcome from my body. I do like to give medications a good trial before giving in. So I tried the once a month Boniva for 4 months and the result was the same….severe pain in facial bones, eye sockets, jaws, even the sternum, and rib cage within 24 hours. The discomfort took up to 10 -15 days to recede.

My PCP said she had never heard of anything like what I experienced and discontinued the medication. So…if you cannot take Boniva…there isn't much that doesn't have the same ibandronate component for osteoporosis.

I ended up with an endocrinologist who helped me get the daily self-injectable Tymlos. It can be very expensive if you don't have the appropriate RX coverage and if your provider doesn't fill out all the exception papers and monitor the pre-authorization process. Saying that I had no other options was the game changer and for that, I thank my best friend GiGi….a nurse and teacher.

However, I have had no side effects and sure don't anticipate any. And with Tymlos you don't have to refrigerate that medication as you do with the other choice which is called Forteo.

For a while, I wondered if I needed to spend time and money on this issue when I am 77. However, I do want a chance to have a reasonably good quality of life with as little pain as possible.

Another good thing is that you only take Tymlos for 18 months and the results can be good. Are you still having no side effects? Do you have to take Boniva for a very long time? Please have happiness today and the causes of happiness. Chris

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@migizii

I could not tolerate this medication due to my chronic migraines. However, I took the IV version without incidence. Ultimately, though, it didn’t help my osteoporosis and moved onto other medications. Good luck! I hope this works out for you!

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Thank you migizii for your response. This is all new to me and I haven't heard much about Boniva at all, good or bad, so I appreciate your feedback. I am considering getting another opinion and a new doctor. I wish you health and happiness.

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@artscaping

@missymew, Good afternoon. Thanks for visiting us on Connect. As volunteers, we cannot recommend medical treatment or medications. What we can do is share our experiences with you so that you may add to your own body of knowledge and be your own advocate for medical issues.

I am afraid I do not have a success story with Boniva and evidently, it didn't get a very nice welcome from my body. I do like to give medications a good trial before giving in. So I tried the once a month Boniva for 4 months and the result was the same….severe pain in facial bones, eye sockets, jaws, even the sternum, and rib cage within 24 hours. The discomfort took up to 10 -15 days to recede.

My PCP said she had never heard of anything like what I experienced and discontinued the medication. So…if you cannot take Boniva…there isn't much that doesn't have the same ibandronate component for osteoporosis.

I ended up with an endocrinologist who helped me get the daily self-injectable Tymlos. It can be very expensive if you don't have the appropriate RX coverage and if your provider doesn't fill out all the exception papers and monitor the pre-authorization process. Saying that I had no other options was the game changer and for that, I thank my best friend GiGi….a nurse and teacher.

However, I have had no side effects and sure don't anticipate any. And with Tymlos you don't have to refrigerate that medication as you do with the other choice which is called Forteo.

For a while, I wondered if I needed to spend time and money on this issue when I am 77. However, I do want a chance to have a reasonably good quality of life with as little pain as possible.

Another good thing is that you only take Tymlos for 18 months and the results can be good. Are you still having no side effects? Do you have to take Boniva for a very long time? Please have happiness today and the causes of happiness. Chris

Jump to this post

Hello, Chris. Thank you so much for your response. This is all new to me as of May 13th so I am reaching out to find out all I can. I have not heard much about Boniva in any discussions so I am concerned about the success of its effects on my spine. I have had aches and pains that are new to me since I started on the medication. I, too, have the sternum pain issue but my side effects are minor compared to yours. I am wondering about the power of the medication in treating my condition. Also, I am lacking confidence in my present doctor's care so I am searching out other doctors. It is so helpful to know I have another source for opinions and discussions. I appreciate your response and your wishes. Happy thoughts for your health as well!

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@missymew, It is a lot of information to process so that you can make an informed decision. Medication sensitivity may be unknown. Everyone is so different. If you want to do some preparation, there are sites that can give you some before and after bone density scores with different treatments. Sometimes it depends on where the scan is….of your wrist or your ankle or even your hip. Let me see If I can put my finger on one. I'll be back. Sleep well. Chris

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@artscaping

@missymew, It is a lot of information to process so that you can make an informed decision. Medication sensitivity may be unknown. Everyone is so different. If you want to do some preparation, there are sites that can give you some before and after bone density scores with different treatments. Sometimes it depends on where the scan is….of your wrist or your ankle or even your hip. Let me see If I can put my finger on one. I'll be back. Sleep well. Chris

Jump to this post

@missymew, Here are results from some clinical trials with Boniva. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2898002/

If I read your post correctly you are trying to ameliorate the fact that after menopause we tend to use bone faster than we can replenish it. So..the medication that can achieve that objective while not causing side effects and being affordable and easy to administer….now that is what we are seeking.

Here is more information that may even be more helpful. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3192207/
And from Mayo Clinic…..www.mayoclinic.org/tests-procedures/bone-density.

Best wishes for learning everything thing you need to know and everything you need to ask your practitioner about so that you can become your own advocate. Remember that making a good decision, gathering information and weighing your issues, including your spine, doesn't necessarily mean that you will make the right or even a good decision. Your health care team can weigh in and help you. And please stay in touch as you proceed on this journey. Let us know how we can help. Have a peaceful sleep tonight. Chris

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