What does that mean that I have osteopenia and degenerative changes.
L 1, L3 and L5 compression fractures are chronic??? Does it mean I cant take care of them?
Furthermore docs didnt tell if it is osteopenia or osteoporosis but I think it's the 2nd. I had taken Fosamax in my fifties but had terrible side effect with it so was disgusted with drugs. Now it started to take a revenge!
Please keep in mind that we only have words on the screen to communicate our experiences, thoughts and support. Without the benefit of tone of voice or body language sometimes the messages may be interpreted incorrectly. And sometimes we bring the bias of our own experiences when reading the post of another member.
I encourage you to review the guidelines and pay particular attention to guideline 2. Here's an excerpt.
2. Remain respectful at all times.
- Exercise tolerance and respect toward other participants whose views may differ from your own.
- Disagreements are fine, but mutual respect is a must.
Since we only have words and words matter, please choose your words kindly and be aware of unintentional bias that you may be bringing into the conversation. We are all here to share our experiences and what we have learned from our own medical journeys. What works for one may not work for another but our shared experiences can help us not feel alone and help think of new conversations or questions to discuss with our providers.
@tilou, you may also find the discussion titled Tymlos pros/cons discussion worth reading through: https://connect.mayoclinic.org/discussion/tymlos-procons/. You mentioned you struggled with Fosamax which understandably has caused some hesitation with starting another strong medication. Have you discussed these concerns with your provider that prescribed Tymlos?
@tilou if you have spinal fractures Tymlos is an excellent choice! Again you can try a full dose and if too much at first, you can start at a lower dose and move up. I think it is wonderful you came on here to research and ask about Tymlos and want to give you the encouragement you were looking for. It is a great medication and helped me so much. Good luck!
@tilou if you have spinal fractures Tymlos is an excellent choice! Again you can try a full dose and if too much at first, you can start at a lower dose and move up. I think it is wonderful you came on here to research and ask about Tymlos and want to give you the encouragement you were looking for. It is a great medication and helped me so much. Good luck!
TY Windyshores I have heard many good things about Tymlos and I think I am going to consider it and talk to my doc about it.
Sorry for the trouble I caused you for that man or woman under a wig!
So, I’ve been attempting to begin a new prescription of Tymlos. I’ve been reading and hearing so many folks explaining how they began their own use by the method of titration. Literally clicking the Tymlos pen only 2 clicks to introduce their bodies to the drug. I have a wonderful rheumatologist who said she spoke with the manufacturer and they had no information regarding beginning by doing “less clicks” on the pen. In fact, she couldn’t confirm that by doing that any of the drug would be released. So, after reading so many posts about women using the process of beginning with say 20 mg of the drug as opposed to 80, which is what is prescribed. I’m left still with the question about whether or not you are getting a dose if less clicks are used! I welcome any responses of anyone with experiences that sound like this. Thank you all so much!
I am being prescribed estradril. I think it's pretty easy to get from drs. I've been cutting out meds they are not taking away pain but regular aspirins and Motrin are. I'd like the patch for hormone replacement some here shared many in this thread
So, I’ve been attempting to begin a new prescription of Tymlos. I’ve been reading and hearing so many folks explaining how they began their own use by the method of titration. Literally clicking the Tymlos pen only 2 clicks to introduce their bodies to the drug. I have a wonderful rheumatologist who said she spoke with the manufacturer and they had no information regarding beginning by doing “less clicks” on the pen. In fact, she couldn’t confirm that by doing that any of the drug would be released. So, after reading so many posts about women using the process of beginning with say 20 mg of the drug as opposed to 80, which is what is prescribed. I’m left still with the question about whether or not you are getting a dose if less clicks are used! I welcome any responses of anyone with experiences that sound like this. Thank you all so much!
@pgn two clicks will deliver (you can test this if you like by shooting in the air) but the dose is most likely not therapeutic. I think people should start at full (8 clicks) or half dose (4 clicks) unless they have a reason to start lower. I could not tolerate a full dose at all and did two clicks for a week or so and moved up to 4, then 5, then 6....The company and most doctors are bound by studies and only a full dose was studied.
Go ahead and try a full dose. If you have severe problems, go down on the dose. There are side effects no matter what for some of us but tolerating them is well worth it if you can.
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do you really have a choice?
keep researching be proactive.
Dont you think that is what I am doing being here?
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3 ReactionsFurthermore docs didnt tell if it is osteopenia or osteoporosis but I think it's the 2nd. I had taken Fosamax in my fifties but had terrible side effect with it so was disgusted with drugs. Now it started to take a revenge!
I'd like to insert a gentle reminder of the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/) that help keep the tone safe, supportive, inclusive, and, above all, respectful.
Please keep in mind that we only have words on the screen to communicate our experiences, thoughts and support. Without the benefit of tone of voice or body language sometimes the messages may be interpreted incorrectly. And sometimes we bring the bias of our own experiences when reading the post of another member.
I encourage you to review the guidelines and pay particular attention to guideline 2. Here's an excerpt.
2. Remain respectful at all times.
- Exercise tolerance and respect toward other participants whose views may differ from your own.
- Disagreements are fine, but mutual respect is a must.
Since we only have words and words matter, please choose your words kindly and be aware of unintentional bias that you may be bringing into the conversation. We are all here to share our experiences and what we have learned from our own medical journeys. What works for one may not work for another but our shared experiences can help us not feel alone and help think of new conversations or questions to discuss with our providers.
@tilou, you may also find the discussion titled Tymlos pros/cons discussion worth reading through: https://connect.mayoclinic.org/discussion/tymlos-procons/. You mentioned you struggled with Fosamax which understandably has caused some hesitation with starting another strong medication. Have you discussed these concerns with your provider that prescribed Tymlos?
@tilou if you have spinal fractures Tymlos is an excellent choice! Again you can try a full dose and if too much at first, you can start at a lower dose and move up. I think it is wonderful you came on here to research and ask about Tymlos and want to give you the encouragement you were looking for. It is a great medication and helped me so much. Good luck!
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Like -
Helpful -
Hug
2 ReactionsTY Windyshores I have heard many good things about Tymlos and I think I am going to consider it and talk to my doc about it.
Sorry for the trouble I caused you for that man or woman under a wig!
So, I’ve been attempting to begin a new prescription of Tymlos. I’ve been reading and hearing so many folks explaining how they began their own use by the method of titration. Literally clicking the Tymlos pen only 2 clicks to introduce their bodies to the drug. I have a wonderful rheumatologist who said she spoke with the manufacturer and they had no information regarding beginning by doing “less clicks” on the pen. In fact, she couldn’t confirm that by doing that any of the drug would be released. So, after reading so many posts about women using the process of beginning with say 20 mg of the drug as opposed to 80, which is what is prescribed. I’m left still with the question about whether or not you are getting a dose if less clicks are used! I welcome any responses of anyone with experiences that sound like this. Thank you all so much!
-
Like -
Helpful -
Hug
1 ReactionI am being prescribed estradril. I think it's pretty easy to get from drs. I've been cutting out meds they are not taking away pain but regular aspirins and Motrin are. I'd like the patch for hormone replacement some here shared many in this thread
@pgn two clicks will deliver (you can test this if you like by shooting in the air) but the dose is most likely not therapeutic. I think people should start at full (8 clicks) or half dose (4 clicks) unless they have a reason to start lower. I could not tolerate a full dose at all and did two clicks for a week or so and moved up to 4, then 5, then 6....The company and most doctors are bound by studies and only a full dose was studied.
Go ahead and try a full dose. If you have severe problems, go down on the dose. There are side effects no matter what for some of us but tolerating them is well worth it if you can.
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Like -
Helpful -
Hug
1 ReactionIf starting at 2 clicks has a psychological benefit for a person, maybe we should respect that
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2 Reactions