Osteoprosis Treatment and GI Issues

Posted by cardinal26 @cardinal26, Aug 26, 2020

Hello all! I need to decide on next step for osteo treatment and have been so overwhelmed and frozen with fear on what to do. Hoping you can guide me with your stories and advice. I am in my late 50’s and have been treated over the years using Fosamax (18 months), Forteo (2+ years) and now I’ll need to go on something else. My spine is -4.1 and hip is -1.4. I have suffered from life-long gut issues and after multiple doctors and tests, IBS has been the continued diagnosis. I had heard that because of my IBS I have secondary OP as I have also been diagnosed with malabsorption, inflammation and dysbiosis. I am being treated for these conditions the last few weeks, so far with much success. I have also heard that I need to get my gut healed before I can expect the OP to get better. I recently saw a rheumatologist who is recommending further blood work as well. Because of my gut issues, annual Reclast infusion has been the med recommended for me because it does not enter the GI tract. But I am terrified of the risks and side effects. Thoughts on what I should consider? Who else I should see? What would you do? Thanks so much.

@fiesty76 I'm glad to hear you have been on Reclast infusion as I'm just starting Sept 1I was told I probably won't have any side effects maybe flu like symptoms was this your experience?

REPLY

@lioness, Of course every patient is different but I experienced no side effects whatsoever. Hoping the same goes for you as well!

REPLY

Have any of you dealing with osteoporosis read Dr. Lara Pizzorno's book "Your Bones". It describes how our bones grow continually, how various meds affect the process, etc. The meds usually being prescribed are apparently not helpful in the long term, even if a bone scan appears to show improvement in the short term. The risks, such as bone necrosis, make this approach quite risky. I'm going with a calcium based formulation and strontium.

REPLY
@criss

Have any of you dealing with osteoporosis read Dr. Lara Pizzorno's book "Your Bones". It describes how our bones grow continually, how various meds affect the process, etc. The meds usually being prescribed are apparently not helpful in the long term, even if a bone scan appears to show improvement in the short term. The risks, such as bone necrosis, make this approach quite risky. I'm going with a calcium based formulation and strontium.

Jump to this post

Hello Criss, I take New Chapter Bone Strength. It's a plant-based algae calcium, supposed to be easier to digest. It has the vitamin Ds and Ks and Strontium. I've heard that Boron is good too, but they may do the same thing. It may be too much of something if it had both. There are websites saying Strontium can be bad for you but I haven't read them yet. I split my dose between b'fast and dinner. BTW, my nutritionist told me Vit Ds need fat to do their thing w/ calcium absorption. I have to add a teaspoon of oil w/ meals that don't have any fat in them. I have a myriad of diseases and severe osteoporosis. Have already broken 3 pelvic, one rib and one foot bone. I'm steroid dependent having been on them for about 30 years. I'm 67. My recent DEXA scan reported I'm 13% worse in my spine and 14% worse in my hip. I've had "severe" osteoporosis for years and my Endocrinologists have been trying to get me on the Bisphosphonates for years but I'm too concerned about all the side-effects. My Endo wanted me to try Alendronate b/c it's only 3 months however, my dentist told me yesterday that it has a VERY long half-life and stays in your body for DECADES!!!!. I've already had my vital organs and more, harmed by my medications. Also, Bisphosphonates are immunosuppressants so if I were to take them, I would then be on 3 immunosuppressants a day. I was for years but had to quit Plaquenil (Hydroxychloroquine which I would take in a heart beat were I to get Covid), bc it caused tissue death in my retina. The New Chapter is however, supposed to be one of the best. Many blessings, Sunnyflower

REPLY
@sunnyflower

Hello Criss, I take New Chapter Bone Strength. It's a plant-based algae calcium, supposed to be easier to digest. It has the vitamin Ds and Ks and Strontium. I've heard that Boron is good too, but they may do the same thing. It may be too much of something if it had both. There are websites saying Strontium can be bad for you but I haven't read them yet. I split my dose between b'fast and dinner. BTW, my nutritionist told me Vit Ds need fat to do their thing w/ calcium absorption. I have to add a teaspoon of oil w/ meals that don't have any fat in them. I have a myriad of diseases and severe osteoporosis. Have already broken 3 pelvic, one rib and one foot bone. I'm steroid dependent having been on them for about 30 years. I'm 67. My recent DEXA scan reported I'm 13% worse in my spine and 14% worse in my hip. I've had "severe" osteoporosis for years and my Endocrinologists have been trying to get me on the Bisphosphonates for years but I'm too concerned about all the side-effects. My Endo wanted me to try Alendronate b/c it's only 3 months however, my dentist told me yesterday that it has a VERY long half-life and stays in your body for DECADES!!!!. I've already had my vital organs and more, harmed by my medications. Also, Bisphosphonates are immunosuppressants so if I were to take them, I would then be on 3 immunosuppressants a day. I was for years but had to quit Plaquenil (Hydroxychloroquine which I would take in a heart beat were I to get Covid), bc it caused tissue death in my retina. The New Chapter is however, supposed to be one of the best. Many blessings, Sunnyflower

Jump to this post

Oops, I have been doing some reading, and strontium that is in my phone supplement mentioned in my last post, apparently is a heavier atom than bone and actually replaces places bone inside your bones can alter the results of the bone study scan. Boron however is much better I am going to change my supplement and make sure Boron is in it and not strontium. Of course supplement should have the right kind of calcium the two vitamins D's the two vitamin Ks as well. Supposedly the calcium in the plant-based algae supplement is easier to digest. Take good care, Sunny flower. @criss

REPLY
@sunnyflower

Oops, I have been doing some reading, and strontium that is in my phone supplement mentioned in my last post, apparently is a heavier atom than bone and actually replaces places bone inside your bones can alter the results of the bone study scan. Boron however is much better I am going to change my supplement and make sure Boron is in it and not strontium. Of course supplement should have the right kind of calcium the two vitamins D's the two vitamin Ks as well. Supposedly the calcium in the plant-based algae supplement is easier to digest. Take good care, Sunny flower. @criss

Jump to this post

@sunnyflower That is the protocol I'm on I have been on Boron also calcium Citrate is what the Dr ordered and said it was the best form

REPLY
@criss

Have any of you dealing with osteoporosis read Dr. Lara Pizzorno's book "Your Bones". It describes how our bones grow continually, how various meds affect the process, etc. The meds usually being prescribed are apparently not helpful in the long term, even if a bone scan appears to show improvement in the short term. The risks, such as bone necrosis, make this approach quite risky. I'm going with a calcium based formulation and strontium.

Jump to this post

Hi @criss, welcome to Connect.
The full title of the book by Lara Pizzorno is "Your Bones: How You Can Prevent Osteoporosis & Have Strong Bones for Life Naturally." Lara is a medical writer, but not an MD. Jonathan Wright, MD, is listed as a contributor.

Do they discuss the difference between prevention and treatment or approaches once one has a diagnosis of osteoporosis?

REPLY
Please sign in or register to post a reply.