Orgovyx done. What to expect?

Posted by miked77 @miked77, Apr 15 10:48am

I have been off Orgovyx for 7 days. Having increased number of hot flashes and still having leg pain at night. Libido still gone. Anyone have any experience similar and can give me some advice?
Thanks in advance.
Mike D

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@michaelcharles

Orgovyx SEs took 3 - 4 mos to wear off substantially for me. 8 mos off med, my Testosterone returned to 80% of pretreatment level.
I took 4/5 mos of Orgovyx during my salvage radiation tx last year.
I think that the journey is similar for all; and different for everyone.
Best wishes.

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Just curious were you diagnosed with Advanced Prostate Cancer because i am on ORGOVYX with APC and its prescribed forever. No off time

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I was 77 yo when diagnosed with Gleason 8 and 9 so the protocol was to get 35 radiation treatments and 18 months of ADT (Orgovyx). Being a pharmacist, I dislike long-acting injectables like Lupron. The drug levels go up and down so I wanted to take a pill daily so I would get a steady-state of drugs in my system. Probably not important but the reasoning worked with the insurance company and they approved it.

Good luck with your treatment. Let me know why you are on ADT forever--not heard of this.
Mike

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Has anyone completed orgovyx therapy? Satisfied? Side effects? Cost?

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@waynebarry

Has anyone completed orgovyx therapy? Satisfied? Side effects? Cost?

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@waynebarry, I think you'll appreciate the conversations here:
- Orgovyx done. What to expect?
https://connect.mayoclinic.org/discussion/orgovyx-done-what-to-expect/

- What's your experience with Orgovyx (relugolix)?
https://connect.mayoclinic.org/discussion/the-orgovyx-thread/

Also see these related discussions: https://connect.mayoclinic.org/group/prostate-cancer/?search=ORGOVYX#discussion-listview

Have you completed treatment with Orgovyx or about to start?

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@waynebarry

Has anyone completed orgovyx therapy? Satisfied? Side effects? Cost?

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I WILL finish my 6 months in 24 days. It has been an easy ride. No weight gain, no muscle loss....but I am at the gym 6 days a week and walking 18 holes 2 days a week. Only a couple minor hot flashes at night. No apparent mental fog or mood swings. With my Part D it costs about $3000 for the 6 months. I am totally satisfied at this point. Going for a testosterone test 1 month after I stop. It will be interesting to see the results. I was 571 before treatment and 14 during treatment.
Oh...the other thing of course is that I thought my radiation oncologist said I would be "unique"....once I saw the written notes it was "eunuch".((Actually I made that story up))

Stay Strong Brother

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@toolbelt

I WILL finish my 6 months in 24 days. It has been an easy ride. No weight gain, no muscle loss....but I am at the gym 6 days a week and walking 18 holes 2 days a week. Only a couple minor hot flashes at night. No apparent mental fog or mood swings. With my Part D it costs about $3000 for the 6 months. I am totally satisfied at this point. Going for a testosterone test 1 month after I stop. It will be interesting to see the results. I was 571 before treatment and 14 during treatment.
Oh...the other thing of course is that I thought my radiation oncologist said I would be "unique"....once I saw the written notes it was "eunuch".((Actually I made that story up))

Stay Strong Brother

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toolbelt, we all need a laugh, thank you for giving me one. good luck on your journey

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@stevecando54

toolbelt, we all need a laugh, thank you for giving me one. good luck on your journey

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We got this Brother

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