Orgovyx as lifelong treatment

I was on Lupron for seven years before Orgovyx was available and then switched to Orgovyx for 1.5 years. I became castrate resistant. (PSA rising) after about four years, The same will happen to you at some point if you keep on Orgovyx for a lifetime.

After about eight years, my oncologist agreed to let me stop taking it. It isn’t likely my testosterone will come back much at all after that many years. If it does, I will have to go back on it. I am on Darolutamide And it’s working great as a single drug.

Yes. Still castrate-sensitive after 3 years 4 months (PSA < 0.01). The TITAN study showed that Apalutamide used together with ADT can delay castrate resistance for mCSPC dramatically compared to pairing with earlier 1st-gen ARSIs (many TITAN participants were still castrate-sensitive at the end of the 4½ year study), and I'm fortunate that I was diagnosed just as Apalutamide became widely available in Canada, so I got the full benefit. The other -lutamides are also very effective (some perhaps even more so).

What's it like on ADT in the long term? Well, you do get used to it. And Orgovyx is *far* easier than the monthly Firmagon injections that I started with. I miss my hairy chest and don't love the gynecomastia that has replaced it, but I do love that I'm not counting down my last months yet.

Also, it probably won't be for life. Think of Orgovyx as buying you time for a few years until something better comes along. PCa treatments are changing fast.

Yes I agree it is better than(for me) the 3 month Lupron shots. I have been solely on Orgovyx for 5 years now. I’ve just adapted to my new “normal” with fatigue and all the accompanying side effects.

Hi, I’m fairly new to the site and just into my treatment and have been on Orgovyx for a little over a week. How do you manage the cost of Orgovyx over a long period of time? Thanks

If your prescribed Orgovyx for life how does one mange the cost?

There are programs for lower income people that give you discounts on Orgovyx. Ask your doctors about this. Myovant even allowed people I know to get it for free.

Now that Medicare has a $2000 maximum that’s all you’re going to pay if you have to pay without insurance coverage.

I get it free through my insurance.

What insurance company do you have? Mine covers it but it’s pricey. I got lucky and got a $2,000 grant which makes money free for the year. Along with all my others thanks to the $2,000 cap.

Hi, yeah, I got lucky and got a $2,000 grant which will also go towards the cap so I’m good the rest of the year. Thanks