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Liz1
@elizabethbryant

Posts: 94
Joined: Oct 04, 2016

Oral cancer and Severe oral dysplasia

Posted by @elizabethbryant, Fri, Jan 20 9:17am

What is the treatment for severe dysplasia developed, after partial removal of tongue from cancer.

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Liz1
@elizabethbryant

Posts: 94
Joined: Oct 04, 2016
Posted by @elizabethbryant, Dec 30, 2016

I live in VA. I am looking for a private practice doctor surgeon for oral tongue cancer and severe dysplasia.


Jamie Olson, Connect Moderator
@jamienolson

Posts: 240
Joined: Apr 21, 2016
Posted by @jamienolson, Sun, Jan 1 12:17pm

Hello @elizabethbryant, here is a news article I came across that may be of interest to you http://mayocl.in/2hZzg0o.

Also, here is a link to the American Medical Association https://apps.ama-assn.org/doctorfinder/home.jsp. It looks like you can enter your zip code and find a physician or specialist in your area.


Liz1
@elizabethbryant

Posts: 94
Joined: Oct 04, 2016
Posted by @elizabethbryant, Sun, Jan 1 7:35pm

Thank you for the information. I had partical tongue glasectiomy under right side of the front of my tongue for stage 1 superficial cancer. The dysplasia
was not removed from the rest of the under right side of tongue, now I have SEVERE dysplasia from the front of tongue to back and this
is very painful and causes nausia and is serious. I now feel sick all the time. Thank you for any information that you can give in specialist. After
about 13 trips to John Hopkins and this was not taken care of with the first major surgery, then my surgeon moved to Boston.
Thank you again for caring to send me info.


Liz1
@elizabethbryant

Posts: 94
Joined: Oct 04, 2016
Posted by @elizabethbryant, Sun, Jan 1 9:28pm

DON”T KNOW HOW TO POST A PHOTO  all it have.


Jamie Olson, Connect Moderator
@jamienolson

Posts: 240
Joined: Apr 21, 2016
Posted by @jamienolson, Mon, Jan 2 2:51pm

@elizabethbryant, follow instructions for adding your photo-
1. click just to the left of “request appointment” at the top right of your screen.
2. click account settings
3. under “site profile” on the right there is an “upload photo” tab. Click that and load photo
4. click save profile on the bottom right


Liz1
@elizabethbryant

Posts: 94
Joined: Oct 04, 2016
Posted by @elizabethbryant, Wed, Mar 1 5:40pm

@hopeful33250 Hi Teresa, I am praying for a doctor that will get the other doctors
organized and doing their job, My family doctor told me to tell the other doctors, I am
not a number. Seems our country’s health system is an Industry. My surgeon had
to see 33 patients a day the nurse said because of Obama Care. I hope all that
changes and quickly. My case with many doctors involved, in all directions, was undiagnosed until it went into cancer from 2013 with very clear symptoms. Just
no one took even the time to check it out. The average person could google the
symptoms and diagnose. I looked to the doctors and they failed. The one
i see Friday is suppose to be very good, but I don’t know if she can whip the
others into shape……..Thanks for your kindness Teresa.


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2248
Joined: Mar 28, 2016
Posted by @hopeful33250, Fri, Jan 20 9:46am

Hi @elizabethbryant, could you explain exactly what you mean by severe dysplasia? Thanks


alpaca
@alpaca

Posts: 30
Joined: Nov 17, 2016
Posted by @alpaca, Fri, Jan 20 11:59pm

Elizabeth, I have been thinking about this. I often refer to the Oral Cancer Foundation website where they have some information on this topic. They mention “chemoprevention” which seems to involve taking antioxidants. “If the size of the lesion, its location, or the medical status of the patient would make surgical removal difficult, use of antioxidant supplements should be considered as “chemoprevention” to try to prevent
progression to carcinoma. Beta-carotene and the retinoids are the most commonly used antioxidant supplements for chemoprevention of oral cancer. (25) However, although antioxidant supplements have shown promise, they have an uncertain success rate and no long-term results.” This was a page about dysplasia and leukoplakia. Has you doctor recommended this sort of treatment? Wishing you well.


Colleen Young, Connect Director
@colleenyoung

Posts: 3544
Joined: Jul 23, 2014
Posted by @colleenyoung, Sat, Jan 21 9:32pm

Here is the link to the Oral Cancer Foundation article to which @alpaca refers:
– Premalignant Lesions http://oralcancerfoundation.org/cdc/premalignant-lesions/
See the section subtitled “Chemoprevention”


brit
@brit

Posts: 87
Joined: Jan 28, 2017
Posted by @brit, Sun, Feb 12 6:45am

I have gotten myself so stressed out about my condition. For about 6-8 month I have had a rough white tongue and small (they feel like my tongue itself) tenticles when I scrap my tongue with my teeth. come off. I have been to an ent and he did a swab two in fact put that awful tube down both my nostrils and found nothing. Everyone including my family doctor thinks its coming from the stress in my stomach. You see our house burned to the ground a couple of years back and it was such a shock I can’t seem to get over it. It was at this time (about a month later) that I started with this tongue problem. I don’t know what to do.Even went to my dentist and he said just get a tongue scrubber and scrub your tongue as many times during the day but it hasn’t fixed the problem.
Is there any advise you can give me? Waiting on your reply and thanking you in advance
God Bless you

Patti


timerdude
@timerdude

Posts: 17
Joined: May 12, 2016
Posted by @timerdude, Sun, Feb 12 8:35pm

I had the same white tenticle on my tongue a few months ago. I am “always” stress out about many things in my life. I went to a oral surgeon and he revoked it it, and sent to the lab. It came back negative , no problem. I fear it was mostly due to my “high” stress levels. Since then, I tried hard to do other things to let go, of my undue stress, and try keep my fears, under control. Good luck, hope this helps you. Your mind-set, can really cause many health problems.


Liz1
@elizabethbryant

Posts: 94
Joined: Oct 04, 2016
Posted by @elizabethbryant, Sun, Feb 12 9:51pm

I pushed myself to the limit. I mean the limit to salvage my family and hoe, by the grace of
God the house was salvage, but what a price, wouldn’t do it again. Let it all fly


brit
@brit

Posts: 87
Joined: Jan 28, 2017
Posted by @brit, Mon, Feb 13 6:58am

Thank you so much for your advise. So many wonderful people have replied to my emails and you all have taught me a lot. This stress thing runs in my family mysister has it my cousins have it and my dear granny had it. It something you have to deal with on a daily basis. I have started walking in the mornings for about 30 mins. at a time and I speak to my Lord and ask for his guidance sometimes I keep seem to find it but yesterday was a truly awful day for me and some how He got me through it with the help of my husband.
So today is a new day and I feel good.
God Bless you and ask for his help he is there whenever you need it.
Patti
—- Mayo Clinic Connect wrote:


alpaca
@alpaca

Posts: 30
Joined: Nov 17, 2016
Posted by @alpaca, Mon, Feb 13 10:50am

Interesting to read your post Patti. I walk nearly everyday too and find it helps a lot. I’ve entered a local walk to raise money for the Cancer Society so have to keep up my walking to get fit for it. One of the best things I have done since my treatment nearly 3 years ago! I find inspiration from observing nature and trying to appreciate what is good in the world. I agree that taking life one day at a time can be a benefit too.


Liz1
@elizabethbryant

Posts: 94
Joined: Oct 04, 2016
Posted by @elizabethbryant, Mon, Feb 13 8:28pm

I have so many allergies I can’t walk outside or inside, I use to love to walk.
I guess if I lived near some salt air I could walk, so much mold and undergrowth
in Central Virginia unless it is frozen over.

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