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CAR-T: Opportunity to Connect
Hello Car T Cell Therapy followers,
I just want to advise the followers of this group that I and others are out here ready to respond to any posts on this site.
I know it is a small group of followers on Car T Cell Therapy due to the narrow scope of this particular treatment.
If anyone out there wants to connect on this group for any reason, I encourage you to do so. There is usually someone not too far away that is more than happy do share a few kind words and some guidance.
Bob
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Are there long term effects that have been experienced when you have had car t? Are these different depending on what kind of cancer or drug used?
Does life pretty much return to normal? Can you travel and be in crowds? My infusion is March 26. Did everyone not drive for two months? Any long term cognitive effects?
Good morning, @4health4bonnie You’re big day is getting closer and I know you have a lot of questions on your mind before your CAR-T therapy adventure begins.
I’m not sure if you’ve seen this other discussion in the this support group but here is a link to a current conversation with other members who have gone through the procedure:
CAR-T Cell Therapy: Introduce yourself and connect with others
https://connect.mayoclinic.org/discussion/car-t-cell-therapy-introduce-yourself-and-connect-with-others/
This is one on many positive replies from other members:
@ntsimpson, whose husband had CAR-T and she had this to share:
https://connect.mayoclinic.org/comment/1237355/
Feel free to tag any of the members by adding their @name or by clicking the blue Reply button in their comment. That way a reply box will open where you can type your message. The member will be notified if they have their notifications for messages turned on.
How is your preparation coming along? How soon do you need to be admitted? Are you an inpatient or outpatient for the bulk of the procedure?
If everything goes well, I will be an outpatient most of the time.