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Online support meetings for liver transplant at Mayo Clinic

Posted by jmp1234 @jmp1234, Mar 22 12:25pm

I am on UNOS waiting list for liver transplant . What is the schedule for the online/live support meetings?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 22 12:44pm

@jmp1234, see the full list of online support meetings by clicking Events (https://connect.mayoclinic.org/events/). Search by keyword "liver transplant" https://connect.mayoclinic.org/events/?search=liver%20transplant

The Liver and Liver & Kidney Transplant Support Group Meeting is for Mayo Clinic patients and their caregivers pre- and post-transplant. The group meets on Zoom every Tuesday at 11:00am to 12:00pm ET. The next meeting is March 26. Learn more here:
https://connect.mayoclinic.org/event/liver-and-liver-kidney-transplant-support-group-18/

REPLY
jmp1234 | @jmp1234 | Mar 22 1:40pm

Ty very much. I pretty much just want to observe. Ty again for the information.

REPLY
jmp1234 | @jmp1234 | Jun 9 5:52pm

I am on high alert, as per my transplant coordinator, to expect "the call " within 1 _2 weeks. I would like to hear from folks who have had liver transplant at mayo jacksonville in past 2 years. I need some information refreshing on the exact moves that happen once I check in. Like registration, testing, going to "pre flight "area, prep for the surgery. Things like that. Ty for any and all feedback.

REPLY
2 replies
celia16 | @celia16 | Jun 9 6:11pm
In reply to @jmp1234 "I am on high alert, as per my transplant coordinator, to expect "the call " within..." + (show)
@jmp1234

I am on high alert, as per my transplant coordinator, to expect "the call " within 1 _2 weeks. I would like to hear from folks who have had liver transplant at mayo jacksonville in past 2 years. I need some information refreshing on the exact moves that happen once I check in. Like registration, testing, going to "pre flight "area, prep for the surgery. Things like that. Ty for any and all feedback.

Jump to this post

That’s great news! How exciting! I have no clue about transplants, but am sending you lots of well wishes for a good recovery.

REPLY
lovemygsd | @lovemygsd | Jun 22 6:08pm
In reply to @jmp1234 "I am on high alert, as per my transplant coordinator, to expect "the call " within..." + (show)
@jmp1234

I am on high alert, as per my transplant coordinator, to expect "the call " within 1 _2 weeks. I would like to hear from folks who have had liver transplant at mayo jacksonville in past 2 years. I need some information refreshing on the exact moves that happen once I check in. Like registration, testing, going to "pre flight "area, prep for the surgery. Things like that. Ty for any and all feedback.

Jump to this post

Hi,
I transplanted at Mayo Jax in 2015.
Registration was short.
I went in around 10 am.
They did 2 or 3 enemas.
They would not give me anything to calm my nerves. I found it to be very difficult to manage my anxiety without medication, but I understand why they won’t give you any. I went into surgery around 2am.
That’s about all I recall. I will say Mayo is one of the best run hospitals I’ve ever been in. And if you are lucky enough to have Amy as your post-op nurse coordinator, you will be thrilled. She is an awesome nurse and person.

REPLY
1 reply
jmp1234 | @jmp1234 | Jun 22 6:36pm
In reply to @lovemygsd "Hi, I transplanted at Mayo Jax in 2015. Registration was short. I went in around 10..." + (show)
@lovemygsd

Hi,
I transplanted at Mayo Jax in 2015.
Registration was short.
I went in around 10 am.
They did 2 or 3 enemas.
They would not give me anything to calm my nerves. I found it to be very difficult to manage my anxiety without medication, but I understand why they won’t give you any. I went into surgery around 2am.
That’s about all I recall. I will say Mayo is one of the best run hospitals I’ve ever been in. And if you are lucky enough to have Amy as your post-op nurse coordinator, you will be thrilled. She is an awesome nurse and person.

Jump to this post

I was turned down for transplant of liver due to contraindications regarding the health of myself and inability to get the better. Ty

REPLY
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