1. < Polymyalgia Rheumatica (PMR)

Ongoing pain with normal CRP and ESR - PMR?

Posted by sue16833 @sue16833, May 23, 2021

I am down to 3mg of prednisone. Is it normal to still have pain in lower legs, shoulders (nagging no medication necessary) when the C reactive protein and Eryth. sed rates are within normal ranges?

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golfbarmie | @golfbarmie | May 26, 2021
In reply to @johnbishop "Yes, being on prednisone and trying to taper off can be pretty awful. You just have..." + (show)
@johnbishop

Yes, being on prednisone and trying to taper off can be pretty awful. You just have to take it slow and easy and listen to your body while tapering off. I chose to live with a little aches and pain but if it got too bad (above a 2 level for me) then I didn't taper to the next lower dose until I felt better.

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Hi John, I am on 8mg prednisone for PMR, having jumped from 3mg because the Moderna first vaccine caused me to have a jump in the pains from 3 out of 10 to 8 out out of 10. I obviously want to get back down to 3mg or less but normally that would take weeks. So my big question is should I accept the Moderna second shot which we are due to get in the first week of July, 5 or 6 weeks from now.
I will probably be still on 6mg by then.
Is it dangerous to go with a Moderna second shot? I am planning to get it.
I accept another painful reaction and I can deal with the extra pain if required but I suspect the protection from the vaccine will be depreciated as I hear the immune suppressed amongst us have this issue.
If this is true then thousands of people will be walking around thinking they are protected when they are actually not.
I can't imagine our government will be offering tests to determine our level of protection. If you have comment i should be happy to hear your opinion.
Ken

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John, Volunteer Mentor | @johnbishop | May 27, 2021
In reply to @golfbarmie "Hi John, I am on 8mg prednisone for PMR, having jumped from 3mg because the Moderna..." + (show)
@golfbarmie

Hi John, I am on 8mg prednisone for PMR, having jumped from 3mg because the Moderna first vaccine caused me to have a jump in the pains from 3 out of 10 to 8 out out of 10. I obviously want to get back down to 3mg or less but normally that would take weeks. So my big question is should I accept the Moderna second shot which we are due to get in the first week of July, 5 or 6 weeks from now.
I will probably be still on 6mg by then.
Is it dangerous to go with a Moderna second shot? I am planning to get it.
I accept another painful reaction and I can deal with the extra pain if required but I suspect the protection from the vaccine will be depreciated as I hear the immune suppressed amongst us have this issue.
If this is true then thousands of people will be walking around thinking they are protected when they are actually not.
I can't imagine our government will be offering tests to determine our level of protection. If you have comment i should be happy to hear your opinion.
Ken

Jump to this post

Hi Ken @golfbarmie, I had the Pfizer vaccine but was not on prednisone. My side effects were the normal sore arm for both and extreme fatigue the next day after the 2nd Pfizer vaccine. I can understand your concern given the side effects from the first Moderna shot but I think I would weigh the risks of which is worse, getting COVID or more side effects. I think if I were you I would call my doctor and discuss it with them. There is another discussion that you can read the posts and learn what others with PMR have discussed on the vaccines.

PMR and Corona Virus (COVID-19) vaccine: https://connect.mayoclinic.org/discussion/pmr-and-corona-virus-vaccine/

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