One knee replacement and will never have another one!

Posted by mabfp3 @mabfp3, Mar 11, 2025

Hello to all of my fellow knee sufferers! I had a TKR in 2020. I had a very rough time after the surgery…..allergies to pain meds etc and had to only take Tylenol! PT for six months following surgery. My knee (right) is still painful and stiff, even after the replacement. I had this done at a top Boston hospital with a surgeon that came highly recommended. However, his answer to me with all of this pain and stiffness is “It will never be the knee that God gave you.” Oh, great!!! My left knee is bad but I could never go through this surgery again. I have had cortisone shots to the left knee which are no longer working and recently received three gel shots, which did not help. Both of my knees are so painful! Should I seek out a dr who deals with pain? I don’t know what else to do. Other than these knee issues, I am in good health and am 75 years old (although, other than these knees, I don’t feel like I am 75!!!!). Any suggestions or help would be deeply appreciated! I have tried knee braces, creams, ointments, Voltaran, Advil, Tylenol etc. Nothng has helped!!! Thank you, in advance, for any input! MaryAnn from Boston

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Profile picture for mayo99824 @mayo99824

Different people have different experiences. If you are still in pain, or if the TKR was not successful, shouldn’t the original surgeon be responsible to remediate it? Although one may have lost confidence in them. Have you looked into revision?
I didn’t know until I had to choose between several options (my insurance uses a service to optimize options for quality and reasonable cost) that you can ask for references from surgeons. You can look to online ratings. I thought you just were lucky to find someone, anyone. Now, I know better but you do take your chances.
I have had 2 TKRs and 2 THRs and each had a different recovery - even the 2 that were done by the same surgeon. All ended up good and successful for relieving pain. Don’t give up.

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@mayo99824 I completely agree with you that different people have different experiences. My experience was not good yet I have two friends who had very good luck. I have sought out second and third opinions. My first surgeon was dismissive and the office told me to “contact my primary care” for continued support.My second opinion dr had me do a special imaging test to look at the knee replacement and it is fine, with the exception of some scar tissue. My left knee is very painful so my “third opinion orthopedic dr. He told me about a recently developed procedure called “genicular ablation” so I will look into it.

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Profile picture for insicknessandinhealt @insicknessandinhealt

look into gAE genicular artery embolization.

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@insicknessandinhealt Thank you so much for that advice. I had a new orthopedic dr suggest this to me. I am going to research it and look into having it done in a month or two. I just have to make sure that my insurance will cover it.

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Profile picture for mabfp3 @mabfp3

@mayo99824 I completely agree with you that different people have different experiences. My experience was not good yet I have two friends who had very good luck. I have sought out second and third opinions. My first surgeon was dismissive and the office told me to “contact my primary care” for continued support.My second opinion dr had me do a special imaging test to look at the knee replacement and it is fine, with the exception of some scar tissue. My left knee is very painful so my “third opinion orthopedic dr. He told me about a recently developed procedure called “genicular ablation” so I will look into it.

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@mabfp3
Stay strong! Good luck with number 3. If it doesn’t work tho, look for number 4. You deserve to not be in pain.

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Profile picture for mayo99824 @mayo99824

@mabfp3
Stay strong! Good luck with number 3. If it doesn’t work tho, look for number 4. You deserve to not be in pain.

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@mayo99824 Thank you so much!

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Profile picture for genie15 @genie15

@nobend
My experience mirrored yours. I specifically asked repeatedly in the pre surgery visit about the recovery process and possible complications. My surgeon refused to answer my questions, saying that "we don't like to dwell on things that might go wrong." I did not know at the time that she was required by law to answer my questions. Patients have a legal right to the information before any procedure. So for anyone else out there who is deciding about surgery, please make a list and challenge the surgeon for factual answers. If they won't answer, find another surgeon. "If I had only known" is not good news once it's too late.

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@genie15 Thank you so much for this reply! I totally agree with you!

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i had a tkr in 2015 and still in pain. The surgeon said it was phantom pain. Yea, right. U since have opted to PRP which has worked for 10 years. The Drs take 19 vials of my blood, mix it , etc, and half hour later inject it into the knee. It takes care of the arthritis in the knee and has enabled me to play golf and garden, biking etc without a lot of pain. If you do this make sure the Dr uses device that allows them to pinpoint the injection. The know PRP is alos used to grow hair on woman by the dermatology people. It can be pricy, but it is worth it to only have one day recovery and i am back at it. I am 85 and now a person taking care of a wife with dementia and so my life is very busy. As you age the Drs can give seniors the full dose. Its called regenitive med. I have ben bone on bone for 10 years. Good luck

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I agree that not all TKR are totally successful. I am 87 and have had negative bone changes around the appliance, and a revision has been suggested, but 2 other orthopedic surgeons suggested that this not be done.
Does anyone know if there is a cannabis cream that is effective to control the discomfort?

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In California, there is Wampun that an Indian woman makes.
It doesn’t take the pain away completely, but relieves pain in joints.

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Profile picture for cathymw @cathymw

I cannot imagine going through the surgery and recovery with only Tylenol. Do note Voltaran is an NSAID as well.

My surgeon and his staff provided me with excellent pain control pre-operatively, after surgery, and the subsequent physical therapy recovery time. I was very nervous about addiction after all in the news, when oxycontin was prescribed. However, after my joint was not cooperating, and I subsequently went through months of PT, including the MUA at 11 weeks post-op I realized that I need something to help with PT. All of this I could not have done without a prescription renewal. I only took 5 mg an hour before PT, but I most certainly needed that. In the beginning I took it around the clock as ordered.

What really helped with pain was when a friend gave me her ice machine from her surgery. Every Dr. should be prescribing these for total knees. It helped immensely.

Now, almost a year out, my other knee is acting up terribly. I know I will have to do something about it eventually. I am not sure I can go back to original Dr. as I have aged out of that insurance plan, and it was a benefit to go to this center of excellence in another city. I have too many questions about the follow-up care as well (or lack there-of, being out-of-town he did not communicate with my PT at all- it was based on what I was saying. How was I to know what progress should have been?). BUT- what Dr. team will order pain medicine like what I had? That is a big concern, as I too have heard Drs in my area "allow" up to 2 weeks post-op only. I will need to know ahead from any team that my pain will be managed, along with all the aspects of a huge surgery like this. I have since attended a local seminar on joint replacements. This surgeon was the one stating 2 weeks, and then onto Tylenol! If my body makes scar tissue and the 2nd replacement has these complications... I will need pain management again. I was religious to exercises and PT before and after my first surgery.

How do I interview potential teams in the future without sounding like a drug-seeker? I never took narcotics before my surgery, and most certainly do not now.

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@cathymw I had a similar experience where the surgeon was against writing for strong pain pills after tkr. Ridiculous to expect a patient to be in that awful pain that lasted six weeks. You wonder if they care at all.

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Have you tried an Ossur unloading knee brace? I was scheduled for knee replacement and I got this to help me until I got into surgery. The man who fitted Me said he's had people avoid knee replacements with this brace, and I laughed at him. That was two years ago! I can wear it for a few days and then I can go without it for a while with very little pain. I'm 76 and I really don't want another knee replacement.

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