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On my way To Rochester MN

Posted by kasey78 @kasey78, 1 day ago

I would be lying if I said I’m not nervous. I have my first appointment tomorrow morning , hematology evaluation. No itinerary, it’s the not knowing whats going to happen, how long I’ll be here, and will I finally have answers. I say I’m ready for answers, but now that it’s here….. not sure I’m ready 😓

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Janell, Volunteer Mentor | @jlharsh | 1 day ago

I can feel your excitement, @kasey78!

You mention no itinerary. Did they tell you you’d have one appointment then see what happens from there? Do you have portal access set up to veiw your appointment schedule?

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kasey78 | @kasey78 | 1 day ago
In reply to @jlharsh "I can feel your excitement, @kasey78! You mention no itinerary. Did they tell you you’d have..." + (show)
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I can feel your excitement, @kasey78!

You mention no itinerary. Did they tell you you’d have one appointment then see what happens from there? Do you have portal access set up to veiw your appointment schedule?

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@jlharsh
Yes I have the patient portal. They said during consultation/evaluation they would decide testing etc and appointments would be added then.

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bajjerfan | @bajjerfan | 1 day ago
In reply to @kasey78 "@jlharsh Yes I have the patient portal. They said during consultation/evaluation they would decide testing etc..." + (show)
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@jlharsh
Yes I have the patient portal. They said during consultation/evaluation they would decide testing etc and appointments would be added then.

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@kasey78

Apparently then they don't have an action plan based on any medical info submitted on your behalf.

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kasey78 | @kasey78 | 1 day ago
In reply to @bajjerfan "@kasey78 Apparently then they don't have an action plan based on any medical info submitted on..." + (show)
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@kasey78

Apparently then they don't have an action plan based on any medical info submitted on your behalf.

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@bajjerfan
No, just my luck lol

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Janell, Volunteer Mentor | @jlharsh | 22 hours ago

@kasey78, @bajjerfan
My experience has been Mayo looks at everything submitted then they form a plan to do testing they feel is needed to move in the right direction. Don’t be surprised if you have tests done that you have already had at home. I have had tests I thought were simply repeats but once I saw the information coming from them I realized just how much more information Mayo’s testing can provider. Sometimes, it may just be the timing of things they’ll want to see.

Regardless, you’ve done your part by being there. You need to simply show up and let them go through the steps they feel are important. You’ve got it!

I am interested to hear how things are going. Will you come back at update, @kasey78?

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kasey78 | @kasey78 | 21 hours ago

Thank you so much appreciate this and yes, I will be back with an update.

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bajjerfan | @bajjerfan | 21 hours ago
In reply to @jlharsh "@kasey78, @bajjerfan My experience has been Mayo looks at everything submitted then they form a plan..." + (show)
Profile picture for Janell, Volunteer Mentor @jlharsh

@kasey78, @bajjerfan
My experience has been Mayo looks at everything submitted then they form a plan to do testing they feel is needed to move in the right direction. Don’t be surprised if you have tests done that you have already had at home. I have had tests I thought were simply repeats but once I saw the information coming from them I realized just how much more information Mayo’s testing can provider. Sometimes, it may just be the timing of things they’ll want to see.

Regardless, you’ve done your part by being there. You need to simply show up and let them go through the steps they feel are important. You’ve got it!

I am interested to hear how things are going. Will you come back at update, @kasey78?

Jump to this post

@jlharsh

My course of action was already determined before I got there. Surgey was/is the standard treatment for my condition.

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kasey78 | @kasey78 | 5 hours ago
In reply to @jlharsh "@kasey78, @bajjerfan My experience has been Mayo looks at everything submitted then they form a plan..." + (show)
Profile picture for Janell, Volunteer Mentor @jlharsh

@kasey78, @bajjerfan
My experience has been Mayo looks at everything submitted then they form a plan to do testing they feel is needed to move in the right direction. Don’t be surprised if you have tests done that you have already had at home. I have had tests I thought were simply repeats but once I saw the information coming from them I realized just how much more information Mayo’s testing can provider. Sometimes, it may just be the timing of things they’ll want to see.

Regardless, you’ve done your part by being there. You need to simply show up and let them go through the steps they feel are important. You’ve got it!

I am interested to hear how things are going. Will you come back at update, @kasey78?

Jump to this post

@jlharsh
Update, after evaluation I had multiple blood test done.
CBC, CMP, peripheral smear, PB flow cytometry, ESR,CRP,CMV,EBV,HIV/hepatitis, and JAK2 w reflex to CALR and MPL
Also overnight oximetry
Thursday-ultrasound
So I will be in town a little longer.

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Janell, Volunteer Mentor | @jlharsh | 3 hours ago
In reply to @kasey78 "@jlharsh Update, after evaluation I had multiple blood test done. CBC, CMP, peripheral smear, PB flow..." + (show)
Profile picture for kasey78 @kasey78

@jlharsh
Update, after evaluation I had multiple blood test done.
CBC, CMP, peripheral smear, PB flow cytometry, ESR,CRP,CMV,EBV,HIV/hepatitis, and JAK2 w reflex to CALR and MPL
Also overnight oximetry
Thursday-ultrasound
So I will be in town a little longer.

Jump to this post

One step down, @kasey78!

I hope you are able to rest some and enjoy Rochester!

How are you feeling about your Mayo Clinic visit so far?

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