1. < Polymyalgia Rheumatica (PMR)

On a hamster wheel with PMR.

Posted by queensfaith8 @queensfaith8, May 14 12:34pm

Hello Everyone, I was diagnosed with PMR in 2020. I was on prednisone for 3 years. I started at 20mg and when I got down to the single digits the pain would come back. So my dosage was increased to 15mg. Finally got off prednisone last November.
Symptoms have returned and rheumatologist wants to start prednisone again for 4 months and Kevzara.
I gained a lot of weight on the prednisone. I now have orthopedic challenges with my right hip. I cannot afford to gain weight.
The pain and stiffness has it's moments I don't sleep well. I do water aerobics and working to knock off the weight.
I just don't want to go back on prednisone.
Has anyone tried any natural remedies?
Thanks for your suggestions and blessings!

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

queensfaith8 | @queensfaith8 | May 15 10:05am
In reply to @dadcue "I do a once a month infusion of Actemra too. I can take Prednisone if I..." + (show)
@dadcue

I do a once a month infusion of Actemra too. I can take Prednisone if I need to except I haven't needed to in more than 2 years. My life is so much better being off Prednisone.

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Thanks for sharing. taking prednisone wreaked havoc on me.

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trina24 | @trina24 | May 15 10:07am
In reply to @queensfaith8 "thanks so much for sharing. Will read more about Acterna." + (show)
@queensfaith8

thanks so much for sharing. Will read more about Acterna.

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Glad to help.

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DadCue | @dadcue | May 15 10:16am
In reply to @queensfaith8 "Thanks for sharing. taking prednisone wreaked havoc on me." + (show)
@queensfaith8

Thanks for sharing. taking prednisone wreaked havoc on me.

Jump to this post

Over time, prednisone seems to wreak havoc on everyone. It was great at the start of PMR but not as great as time wore on. Don't feel like you are the only one.

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Marilyn McFarland | @1942marilyne | May 15 2:26pm

I have had pmr 3 plus years on prednisone 10 mg. I have no suggestions on what to do. This has baffled me. I really like this support group. Misery does like company. Nice to know not alone. Also water aerobics and non force chiropractors

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