Oligodendroglioma with IDH mutation

Posted by dan0316477 @dan0316477, May 31 1:17pm

my father has Brain tumor since 5 years ago and he still unfortunately not cured and suffered from it
He tried radiation treatment,chemotherapy IV and temodal
And surgery but the tumor came back to him
Also he lose the ability of writing and talking
Have any one have the same type of this tumor or someone close to him to give details of the treatment ؟
Is there hope to recover fully and can hear his voice again¿

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Colleen Young, Connect Director | @colleenyoung | Jun 13 7:56pm

Welcome, @dan0316477, I'm sorry to hear that your father's brain tumor has returned. I'm tagging fellow members like @IndianaScott @barb789123 @user_chea8a92a @zaclind1272 @andlin @stephaniefossum @elikimayo @dbprof, who can share their treatment experiences with you.

It must be hard for both of you that he has lost his ability to talk and write. Is he able to communicate with you through his eyes and movements? Does he have a palliative care team?

dan0316477 | @dan0316477 | Sep 19 9:52am

No he has us his family taking care of him
The communication is getting harder and new symptoms appeared but his doctor said the MRI looks stable but there’s internal bleeding around tumor and there’s nothing to do that’s the worst feeling ever accepting that there’s no hope I don’t know we all lost it
He is sleeping more than 12 hours and doesn’t eat at all

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