Ocular Migraine? Aura without headache?

Posted by esikora @esikora, May 24, 2023

Anyone else experience aura without headache? Please share. Thanks.

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Profile picture for Lisa Lucier, Moderator @lisalucier

@grannyzoo - I believe you were replying to @prein in a post here, but it didn't all come through. Would you mind reposting?

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@lisalucier no i was not.

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Absolutely! One day, I had these weird jagged edge quarter moons at the side of my vision. Scared me to death! Got a doctor appointment, he asked what was going on and as soon as I described it he told me ocular migraine. I was so surprised because there is no pain associated with this. It has become more and more common for me (especially if I'm tired), but there's never any pain. Who knew you could have a migraine without the headache?

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I have had both Grand Maul migraines with auroras that start from a black spot and soon grow to the full arch that flows over me and then the pain hits. I found these were caused by stress and trying to do too much. For a while I had some meds ("try this, if you take it as soon as the aurora starts it may help.") that sometimes they helped and sometimes they didn't. While working at my job, I became the Treasurer for three different groups with three different missions. As soon as I reduced my involvement they went away. But I became sensitive to stress.
Now I can get the aurora without pain. I take it as a warning that I am overdoing something. I do a self-check to figure out what is causing the stress and try to reduce the cause. The aurora is still not pleasant.

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I had first episode 6 moths ago.
Lost vision of my right eye for about 5 min while traveling overseas. Had some testing done but nothing could be found. On my return to US I had multiple tests done, saw Neurologist, cardiologist, Neuroophtalmologist, Neuro interventionalist. Nobody seems to know exactly what happened. Had a few milder episodes lately. Not full vision loss but extremely blurry. Always on the right eye.
I have lots of tension on my shoulders and neck and a slight headache ( tension headaches) and slight pain on right temple.
Not sure what is causing or triggering these. Are these occurrences dangerous?

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I have had extreme vision changes with and without headache and what helped the most was seeing a vestibular physical therapist who was able to help with the muscle spasms in my neck. I also saw a TMJ specialist who made me a mouth applicant that helped relieve jaw tension. I sleep on a cervical pillow to keep my cervical spine aligned and I try to keep good ergonomics while working at my desk. Oddly these things have helped the most. In fact, during my worst vision bout, my vision suddenly cleared while she was working on my neck. Good luck. It’s difficult with we see multiple neurologists who can’t ID what’s happening

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Profile picture for jdp3 @jdp3

I have had extreme vision changes with and without headache and what helped the most was seeing a vestibular physical therapist who was able to help with the muscle spasms in my neck. I also saw a TMJ specialist who made me a mouth applicant that helped relieve jaw tension. I sleep on a cervical pillow to keep my cervical spine aligned and I try to keep good ergonomics while working at my desk. Oddly these things have helped the most. In fact, during my worst vision bout, my vision suddenly cleared while she was working on my neck. Good luck. It’s difficult with we see multiple neurologists who can’t ID what’s happening

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@jdp3 Wow your comments are very interesting. I've had migraine headaches since I was eight years old caused by allergies. However, I have a new problem. I get a tingling sensation across my chest and down my arms with a nausea feeling lasting about 3 minutes. This happens anytime day or night. A nerve test points to my cervical. Do you ever have this symptom?

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No. I don’t, but interestingly my PT and physicians have asked about this. I think maybe it is seen with cervical problems?

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