Side effects with omeprazole/Prilosec use

Posted by blueorca @blueorca, May 5, 2018

i am an 18-year user of daily OTC Prilosec. It does a perfect job of controlling my GERD but I am constantly battling side effects of nutritional deficiencies in iron, B-12, magnesium, etc. For example, my hair is extremely thin and loss of energy is a constant problem. I am looking for specific help in knowing which supplements to take for this and in what doses and formats and on what schedule. All the nutritionists I've found locally are not well-versed in Prilosec use. Is there a medical provider out there who specializes in this? And would they be willing to work with me long distance?

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for Bonnie @nightngale1998

Hi there: Has anyone had success in weaning off of Omeprazole? I take it for GERD. Thank you in advance!

Jump to this post

I bought Dr. Aviv's book "The acid watcher diet" off Amazon. Good info!

REPLY
Profile picture for brittis @brittis

I have similar problems. Have a hiatal hernia and was also diagnosed with a "nutcracker esophagus" when I was tested for swallowing abilities. I've been on 80mg of pantoprazole for awhile now, but recently went to 40mg in the morning and 20mg famotidine before bed. I'm close to half sitting in bed and now used to it. The swallowing issue is worrisome, but I've never had food really stuck, just maybe hard to get down but eventually did. Since I'm from Sweden, I started reading about a device that was developed there called Iqoro. It's a piece of plastic that you put in front of your teeth and pull to create a vacuum. This trains the muscles in your esophagus. Takes months to feel a difference. I had my sister send it to me since it's not approved in the US (but it is in Britain). They have a website that is also in English. My test is to see if I can drink a glass of water without stopping. I'm getting close!

Jump to this post

I've read about the iqoro. How do you like it?

REPLY
Profile picture for jkovil77 @jkovil77

I've read about the iqoro. How do you like it?

Jump to this post

I think the Iqoro has made a difference for me. It's been over a year now and I'm using it 3 times a day for 30 seconds each time. I found a pamphlet from Iqoro where I had done their swallowing test at the beginning. Time yourself drinking 1 dl (deciliter, about half a cup) water. I wrote 15 sec. Tested now and I can drink the same amount in 10 sec. My swallowing is better!

REPLY
Profile picture for brittis @brittis

I think the Iqoro has made a difference for me. It's been over a year now and I'm using it 3 times a day for 30 seconds each time. I found a pamphlet from Iqoro where I had done their swallowing test at the beginning. Time yourself drinking 1 dl (deciliter, about half a cup) water. I wrote 15 sec. Tested now and I can drink the same amount in 10 sec. My swallowing is better!

Jump to this post

Oh wow, that's fantastic! I'm very glad to hear it actually seems to work for you. I'm thinking of getting one to hopefully strengthen my lower esophageal sphincter. But like you I live in the US and luckily have a relative in Spain to help me purchase it.

REPLY
Profile picture for Father of sticky rice @fatherofstickyrice

10 years ago or so, I had severe symptoms of having food stuck in my esophagus and not being able to swallow or bring food back up. This put me in the hospital a few times until an endoscopy diagnosed me with a schatzki ring. My gastroenterologist nipped it in one or two places and prescribed omeprazole 20 mg once per day. This worked fine for years. My current primary care physician wants me to come off of this proton pump inhibitor (PPI) and use an H2 blocker instead. I agree. I tried about a 10-day transition alternating between the two medications and then went to the H2 blocker (Famotidine) for 3 months with no omeprazole. I had swallowing difficulty symptoms almost every meal. They were mild to severe ( inability to swallow or bring food back up for 20 minutes with a production of fluid [saliva?] which required spitting and some small amounts of food coming up). So, I went back on Omeprazole about a month ago. Now I have obtained a prescription both. I would like to try to wean myself off of the PPI and onto an H2 blocker again. Here is my plan:● Alternate omeprazole 20 mg /day early am with famotidine 20 mg before breakfast and dinner for 14 days. Then alternate with PPI every 3rd day for 14 days. Then alternate with PPI every 4th day for 14 days.Does anyone have any experience with this transition? Any suggestions.

Jump to this post

I have only been on PPI for 6 weeks and curious what long term means. Do I have to wean off if only used for this period of time. Doctor has me on for 90 days right now but uneasy about medication. Any feedback appreciated

REPLY
Profile picture for Father of sticky rice @fatherofstickyrice

10 years ago or so, I had severe symptoms of having food stuck in my esophagus and not being able to swallow or bring food back up. This put me in the hospital a few times until an endoscopy diagnosed me with a schatzki ring. My gastroenterologist nipped it in one or two places and prescribed omeprazole 20 mg once per day. This worked fine for years. My current primary care physician wants me to come off of this proton pump inhibitor (PPI) and use an H2 blocker instead. I agree. I tried about a 10-day transition alternating between the two medications and then went to the H2 blocker (Famotidine) for 3 months with no omeprazole. I had swallowing difficulty symptoms almost every meal. They were mild to severe ( inability to swallow or bring food back up for 20 minutes with a production of fluid [saliva?] which required spitting and some small amounts of food coming up). So, I went back on Omeprazole about a month ago. Now I have obtained a prescription both. I would like to try to wean myself off of the PPI and onto an H2 blocker again. Here is my plan:● Alternate omeprazole 20 mg /day early am with famotidine 20 mg before breakfast and dinner for 14 days. Then alternate with PPI every 3rd day for 14 days. Then alternate with PPI every 4th day for 14 days.Does anyone have any experience with this transition? Any suggestions.

Jump to this post

Not sure what long term means. I was prescribed and hesitate but my doctor at the time said “we don’t worry about use until the one year mark.” I was I going to do it beyond a year. At 6 months, not feeling a lot better, I went back to my doctor. She had retired and the new doctor listened to me and contacted GI. Within two days I was scheduled for an endoscopy. Afterwards, the GI came in and told me to never take a PPI again. My digestive cells had become hypertrophic (enlarged). That was the point where I had had it with prescription drugs treating only my symptoms for a number of years. I turned to Functional Medicine, where the goal is to find the cause or causes of symptoms. I found an exceptional doctor and finally feel I’m healing.

REPLY
Profile picture for Father of sticky rice @fatherofstickyrice

10 years ago or so, I had severe symptoms of having food stuck in my esophagus and not being able to swallow or bring food back up. This put me in the hospital a few times until an endoscopy diagnosed me with a schatzki ring. My gastroenterologist nipped it in one or two places and prescribed omeprazole 20 mg once per day. This worked fine for years. My current primary care physician wants me to come off of this proton pump inhibitor (PPI) and use an H2 blocker instead. I agree. I tried about a 10-day transition alternating between the two medications and then went to the H2 blocker (Famotidine) for 3 months with no omeprazole. I had swallowing difficulty symptoms almost every meal. They were mild to severe ( inability to swallow or bring food back up for 20 minutes with a production of fluid [saliva?] which required spitting and some small amounts of food coming up). So, I went back on Omeprazole about a month ago. Now I have obtained a prescription both. I would like to try to wean myself off of the PPI and onto an H2 blocker again. Here is my plan:● Alternate omeprazole 20 mg /day early am with famotidine 20 mg before breakfast and dinner for 14 days. Then alternate with PPI every 3rd day for 14 days. Then alternate with PPI every 4th day for 14 days.Does anyone have any experience with this transition? Any suggestions.

Jump to this post

Take a look at a book, Super Gut, by Dr. William Davis. He talks about SIBO and how to self treat. He includes a four week plan and includes recipes. It’s worth $30, on Amazon, if you’re on prescriptions and want to get off them. Prescriptions can help while you’re on them but return once off. So what’s the point if the drugs don’t heal your gut and symptoms don’t return?

REPLY
Profile picture for candidough47 @candidough47

I have only been on PPI for 6 weeks and curious what long term means. Do I have to wean off if only used for this period of time. Doctor has me on for 90 days right now but uneasy about medication. Any feedback appreciated

Jump to this post

You should discuss with the doctor. The question is why you were put on the PPI. If you're feeling better now after taking the PPI I think it pays to already ask if you can either reduce the dose (if you're taking 40 mg, to take only 20 mg) or try to wean off it.
On the other hand, if you need the medication to prevent esophageal irritation, then taking the medication is important, but you can see if an H2 blocker works for you, and then that's preferable.

REPLY
Profile picture for gigi4 @gigi4

Not sure what long term means. I was prescribed and hesitate but my doctor at the time said “we don’t worry about use until the one year mark.” I was I going to do it beyond a year. At 6 months, not feeling a lot better, I went back to my doctor. She had retired and the new doctor listened to me and contacted GI. Within two days I was scheduled for an endoscopy. Afterwards, the GI came in and told me to never take a PPI again. My digestive cells had become hypertrophic (enlarged). That was the point where I had had it with prescription drugs treating only my symptoms for a number of years. I turned to Functional Medicine, where the goal is to find the cause or causes of symptoms. I found an exceptional doctor and finally feel I’m healing.

Jump to this post

That’s awesome! Doctors seem to just throw out PPI instead of trying options. I asked before starting on PPI the side effects and he just said Bloating. Well I am now finding out how terrible it is. Wish I could find a doctor like yours. Continued healing!!

REPLY
Profile picture for candidough47 @candidough47

That’s awesome! Doctors seem to just throw out PPI instead of trying options. I asked before starting on PPI the side effects and he just said Bloating. Well I am now finding out how terrible it is. Wish I could find a doctor like yours. Continued healing!!

Jump to this post

If you want to find a functional medicine doctor, here is the website: ifm.org. It’s broken down by city and state. Each doc has a bio and lists areas of expertise. It’s more costly but so worth it. But also know, it took me three tries with functional medicine doctors to find the right one. We have all out doctors on a pedestal as if they know what to do. But not all doctors were the A+ students. Ask lots of questions.
Best of luck to you.

REPLY
Please sign in or register to post a reply.