NTM Abscesses: Improving slightly on these meds

Posted by tomed @tomed, Mar 19 1:07pm

My spouse (65) is doing better now that Penn has him on a stable regiment of:
Imipenem-Cilastatin IV
Amikacin IV
Clofazimine
Nuzyra (Omadacycline)
Arikayce

Less coughing, CT a tiny bit better, waiting to see if anything grows in the sputum culture.

Monitored by ID, Pulmonology, Eye, Hearing and Primary Care doctors and a home care nurse.

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lilianna | @lilianna | Mar 20 7:57am

So many meds. Is your husband at home? Hard on him but I’m glad it works. Wish you both patience and strenth

marmee26 | @marmee26 | Mar 20 7:59am

Penn patient as well. It has been a journey. I’ll be praying for your husband. I go to my ID doctor at Penn on 3/24. Hoping for signs of improvement and grateful for each day. All the best to you both.

tomed | @tomed | Mar 20 9:27am

In reply to @lilianna "So many meds. Is your husband at home? Hard on him but I’m glad it works...." + (show)

Yes, we’re both retired and at home. Took a while to get into the IV routine; now that we’ve got the schedule working its ok… we do what we have to do to make it work… Thanks for your good wishes.

tomed | @tomed | Mar 20 9:31am

In reply to @marmee26 "Penn patient as well. It has been a journey. I’ll be praying for your husband. I..." + (show)

The Penn doctors are amazing. His ID is Dr. Palacio and the pulmonologist is Dr. Rey. Only hard part is driving to and parking at the Perelman Center - it’s nearly a full day. Both docs see him on the same day so that helps.