Endometrial Cancer: Noticing my blessings every day

Posted by Helen, Volunteer Mentor @naturegirl5, Aug 20, 2019

I was diagnosed with Endometrial Cancer, FIGO Grade 1 in late July. I live in the Upper Peninsula of Michigan and asked for a referral to Mayo. A few days after the referral, I met with my GYN-Oncology team, and a few days after that I had a radical hysterectomy at Methodist Hospital. The surgery was two weeks ago today. I am grateful that I had the means to go to Mayo Clinic, for my surgeon and her incredible team, and that I am now back home on this gorgeous day surrounded by support and love from my family and friends. (The cancer was staged Ia - caught very early and no other treatment is recommended). My life is a gift for which I am very grateful.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Profile picture for starko @starko

Glad to hear of the treadmill! Take it slow at first, then speed up with time. I have a smoothie every morning, almond milk, banana, blueberries, strawberries, raspberries, and most important to settle your stomach, Greek, no fat yogurt! Then a whole wheat English muffin. Not sure if you know this but I fasted for 24 hours prior to each chemo session. Apparently, it helps the chemo get directly to the cancer without being partially absorbed by food particles. We want to kill the cancer and this happens faster! Every chemo session will become easier than the last. Hang in... it will soon be all over when you become well again!

Jump to this post

No wheat if you have celiac disease: wheat allergy

REPLY
Profile picture for stparker54 @stparker54

Starko: will buy all the ingredients for the smoothie tomorrow, as well as whole-wheat English muffins. As for fasting before chemo, did your doctor say it would help to kill cancer cells more directly? Again, thanks for all of this practical advice.

Jump to this post

Whole wheat: only if you are not sensitive to wheat
(Celiac)

REPLY

This is an unrelated question. I heard you mention HE4,S before. Should I ask my doc to do this test? If so, why? What would it tell me? I'm already getting the CA-125 test.

REPLY

Starko: will buy all the ingredients for the smoothie tomorrow, as well as whole-wheat English muffins. As for fasting before chemo, did your doctor say it would help to kill cancer cells more directly? Again, thanks for all of this practical advice.

REPLY
Profile picture for stparker54 @stparker54

Starko: thank you very much. My brother just bought me a treadmill. I'll get on it now. What fruits did you eat? It's good to know that the first chemo is the worst. If I can survive this, I'll make it through others.

Jump to this post

Glad to hear of the treadmill! Take it slow at first, then speed up with time. I have a smoothie every morning, almond milk, banana, blueberries, strawberries, raspberries, and most important to settle your stomach, Greek, no fat yogurt! Then a whole wheat English muffin. Not sure if you know this but I fasted for 24 hours prior to each chemo session. Apparently, it helps the chemo get directly to the cancer without being partially absorbed by food particles. We want to kill the cancer and this happens faster! Every chemo session will become easier than the last. Hang in... it will soon be all over when you become well again!

REPLY
Profile picture for starko @starko

Hi. I survived multiple chemo treatments. What really helped was when I felt the worst I got on the treadmill for at least half an hour. It is amazing how that helped ease the discomfort. Also, I lost my appetite. Best to regain energy by eating protein, absolutely no sugar, avoid carbs and red meat, stick to healthy vegetables and fruits. One year later I am having a problem keeping my weight down and have a vigorous appetite. The first treatment is the worst! You will get used to it and you will survive! It will all become a memory in no time at all!

Jump to this post

Starko: thank you very much. My brother just bought me a treadmill. I'll get on it now. What fruits did you eat? It's good to know that the first chemo is the worst. If I can survive this, I'll make it through others.

REPLY
Profile picture for stparker54 @stparker54

I have a question for all the women who have undergone chemo. How did you survive it? I just finished my first treatment and I'm weak, experiencing nausea and lhave lost my appetite. It's like the Perfect Storm hit me all at once. I have five more treatments to go. Is the First treatment the worst, or can I expect this with every treatment?

Jump to this post

Hi. I survived multiple chemo treatments. What really helped was when I felt the worst I got on the treadmill for at least half an hour. It is amazing how that helped ease the discomfort. Also, I lost my appetite. Best to regain energy by eating protein, absolutely no sugar, avoid carbs and red meat, stick to healthy vegetables and fruits. One year later I am having a problem keeping my weight down and have a vigorous appetite. The first treatment is the worst! You will get used to it and you will survive! It will all become a memory in no time at all!

REPLY
Profile picture for Helen, Volunteer Mentor @naturegirl5

m1b1r9, I am so sorry to know that your cancer diagnosis was rare and aggressive. It's a blessing that you were able to go to MD Anderson for another opinion and are getting treatment at an excellent cancer center

I was diagnosed with endometrial adenocarcinoma, initially FIGO Grade 2 at my local hospital, and then Grade 1 by pathologists at Mayo (the slides were sent there following my referral). I also had positive peritoneal washing which caused me (and still causes me) stress and anxiety. My husband is a pathologist and between him and my surgeon, it was explained to me that the positive washings were likely due to the hysteroscopy I had at my local hospital a week prior to my surgery at Mayo. My surgeon said that she has seen this more frequently. Prior to 2009, my cancer would have been upgraded to Grade III, but the International Federation of Gynecological and Obstetrics (FIGO) standards have changed which opens a huge discussion about what these washings mean and so what the follow-up treatment should be. In my case, these cancer cells are not biologically viable in the pelvic cavity which is what I worried about.

Both you and I know a whole lot more about endometrial cancer then we ever wanted to know. I will keep you, your family, and your cancer care team in my prayers.

Jump to this post

I have a question for all the women who have undergone chemo. How did you survive it? I just finished my first treatment and I'm weak, experiencing nausea and lhave lost my appetite. It's like the Perfect Storm hit me all at once. I have five more treatments to go. Is the First treatment the worst, or can I expect this with every treatment?

REPLY
Profile picture for Ginger, Volunteer Mentor @gingerw

@stparker54 Susan, be gentle on yourself. Eat what appeals to you, do what you can. If your brother needs to take your critter for the second walk, that's okay, right? You need to learn how you will adjust to all this new procedure. Have you been able to check into a support group, yet?
Ginger

Jump to this post

Ginger : thank you for the kind words and advice. I have not joined a support group. I have gotten a lot of support from this group, as well as practical advice about what to expect with this cancer and how to deal with side effects of chemo. Most importantly, listening to women who are surviving give me hope.

REPLY
Profile picture for stparker54 @stparker54

Just started my first round of chemo this week and am feeling very weak. So much so that my brother had to walk my dog this morning. Now as I look at my dog, I'm trying to muster up enough energy to take my dog for his second walk of the day. And to make matters worse, it's raining outside. A hurricane has hit the Texas coastline. I live outside of Houston. Also have lost my appetite. My brother bought me some Ensure. I'm hoping this will restore some of my energy.

Jump to this post

@stparker54 Susan, be gentle on yourself. Eat what appeals to you, do what you can. If your brother needs to take your critter for the second walk, that's okay, right? You need to learn how you will adjust to all this new procedure. Have you been able to check into a support group, yet?
Ginger

REPLY
Please sign in or register to post a reply.