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sacolucci
@sacolucci

Posts: 1
Joined: Jul 24, 2017

Not sure what I have - keep getting different diagnosis and opinions

Posted by @sacolucci, Jul 24, 2017

Hello,

I am hoping those with experience and who has done extensive research into the matter can somehow help point me in the right direction or make sense of some of this. Side note: I have suffered from panic disorder from 16-17 years old which then turned into GAD. I’ve been able to get through most of my life okay, am now 32, with some flare up of GAD which includes minor OCD (checking to make sure everything is unplugged and stove turned off) and major health anxiety thinking I have a disease like MS. I had my first child four years ago and didn’t have any postpartum depression, except a mild episode of cutting my hair constantly because I couldn’t get the style right. In hindsight what I did was not normal and I think I had slight depression. Either than that, I exercised, ate well and was ok, minus the lack of sleep. My stress got better as my daughter got older was easier to watch and I got more sleep. Here we are with a second child who is currently 11 months. This time I am self-employed so no maternity leave and under high stress as four-year-old started kindergarten the year I had the second baby. Here’s my story with symptoms.

11 months ago:

Had a baby (second child). Vaginal birth, nothing complicated.
After delivery had a mild panic attack as I thought I couldn’t feel my legs. The feeling of dread came over that epidural went wrong. The first panic attack in over 15 years.
Had a major falling out with mother did not speak to her in over 9 months.
Worked 12+ hours on the computer with the newborn, constantly working and under high stress.
Breast fed for 3 weeks only then stopped cold turkey.
Woke up one night with head spinning, felt unwell.
Went on with life but experienced positional vertigo when looking down or tilting phone to take a call – diagnosed with BPPV in the right ear.
Afraid to drive and started getting anxiety attacks while driving not knowing dizziness was BPPV.
During this time also started getting severe headaches most in left ear, stabbing pain deep in my ear.
Was told in ER to perform Epley until gone – kept on doing Epley no more spinning in right ear but constant off balance feeling.
1.5 months ago and still dizzy, off balance, dizzy when turn head or look up or down.
Tinnitus in ear, louder in morning, ear popping/cracking
Feel like the floor is moving up or I am unreal.
Have developed brain fog, spaced out, derealization, anxiety, feel detached from my body.
Feel like I am moving when the car is stopped.
Intense fear of being alone with kids and “all alone”

Referred to ENT: opinion: BPPV likely not completely resolved, complete habituation exercises to get used to dizziness.
Go to Neuro-muscular surgeon to look at signs of TMJ as this can be causing my symptoms. Can’t be anything else, my hearing test is normal no hearing loss or Meniere’s.

NEUROMUSCULAR SURGEON: Confirmed I do not grind, however, strong signs of clenching. Recommended TENS therapy and orthotic for my mouth.

NATUROPATHIC DOCTOR: SCM Trigger point, not enough oxygen getting to brain, tight muscles.

NEUROLOGIST: did have BPPV now have a migraine associated vertigo

GENERAL PRACTIONER: did have BPPV but most likely Chronic Subjective Dizziness due to anxiety disorder.

I am not sure what I have. Blood test normal, CT Scan normal, waiting to do an MRI.

Does anyone know what this can be?

REPLY

Hello @sacolucci and welcome to Mayo Connect. I’m so sorry to hear of your many symptoms and difficulties in getting a diagnosis and/or treatment that could help you. Many of us have had hard to diagnose disorders and we know how difficult this can be. I’m glad that you connected with Mayo Connect – we have a great community of supportive people here. It sounds as if you have seen a lot of specialists. Have any of them suggested any meds or treatments to help with your symptoms?

Teresa

Teresa l know how it feels being told about alot of different diagnoses. I one time told my self l don’t know if l had more trials then Job. I said l had to look back in the bible but l knew he had more because he lost his children and everything he had. But in 1978 l had herpes zoster. Then in 1997 encephalitis. I kept falling because of my brain injury. I had memory issues. When l kept falling for 5yrs my doctor thought it was mental since l was going to a psychiatrist. I had fell at my brothers house when l was going back home on his antique table. Then l lost control and striped on a plane going home. I was put in a mental hospital for how long l don’t know because l was unconscious and l know it was the meds they gave me. After telling my doctor for 5yrs l was falling he thought l was depressed, bipolar and schizophrenia because that was my psychiatrist was putting on my chart. I said how can l be depressed shopping for clothes, in the water on a cruise, or talking family pictures with my family and also falling outside of his office to see him???. I fractured my ankle and had to stop college for a year. I tore my acl, rotor cuff, and had to have back and foot surgery. In 2014 after coming home from a cruise and seeing my new granddaughter. I fell back and hit my head and was unconscious. They had to take me off my antidepressants because they thought that was the problem. I was told by my children they ran several test. My family, friends and people from my church came to visit and l don’t remember them so l don’t know if l was unconscious or subunconscious. I was in the hospital for 12day and in intensive care. My family said l had seizures and the doctors said they didn’t see anything on my ct, mri and other test. The l had elevated ammonia level , and l never had anything wrong with my liver before. I only remember being in a dark room and feeling restraints. I don’t know what happened. My diagnoses then was autoimmune encephalitis, encephalopathy, seizure, elevated ammonia, mental disorder and other diagnoses. They couldn’t figure what was going wrong or how to treat me. They told my doctor if l didn’t get better they would have to put me in a nursing home. Thank God he was with me because the next day l got better but still don’t remember much. Then l was transferred to the hospital that my daughter worked at for rehab. They ran all my test over but there was still something wrong with my liver and they couldn’t find the encephalitis or anything wrong with my brain and my new neurologist said l had conversion disorder, meaning a person who is underster stress, anxiety or depression. They will fall, feel numbneds and have non epiletic seizures, and other things that the doctors can’t find anything wrong. Then when l was discharged l had to see my gastroenterologist about my liver. After he ran his test he told my you have an extra vein in ypur liver. And he also said l have seen this in medical school but never in a human. Well that makes you feel good. So l had to have a shunt put on the extra vein so what l eat would not go to other parts of my body and organs. When they did the surgery l ask the surgeon how long with this surgery be. He told me the most 1hr if there was any complications. It turned out to be five hrs because l didn’t have one extra vein l had five. Then a day later when l went home my daughter was there and l went crazy. I asked my doctor could l.have been allergic to the drugs he said you could have been. Then when l had to go back to see him everything was great but he was retiring. I was sad because he was honest. Dr usually don’t tell you what they don’t know and that he had to go to his collegues to see what needs to be done. I have continued falling, then l found out l had a postive ana when the rheumtologist office called to setup an appointment. I didn’t even know my ana was high. That means l have an autoimmune disease. When l kept falling and went to the hospital it was always someone from the mental dept to come so they could admit me. Then when l went to the rehumatologist she asked me. Why are you coming to see me and who sent you. Well l didn’t know what doctor and that was stupid and rude to ask. Why did she have a computer in her office? Then she said my gastroentorogist sent me my ana was elevated. I didn’t even know what that was. Its my immune system attacking something in my body but what you have to take many test to find out. So l had to have blood drawn and they couldn’t get enough and l had to go again. Her nurse told me no when l called to make sure. Then she wanted to see me right away, when she had a cancellation. Well that didn’t sound good to me. Then she tells me its high and it doesn’t always me something a healthy person can have a high ana. She could have sent me a letter. Just a waste of my time. Then l was told by one neurologist l have Parkinson disease and carpal tunnel another one MS and the last one coversion disorder. Who would you say is mental? And if your not you would have mental issues. Oh l forgot to tell you one time when l fell lhitmy mouth and 3 of my teeth were lose and l had to have 3 root canals and still my general practice didn’t believe me. The last fall was in Janurary l fell in home depot looking for a new washer and dryer. When they called emsa the drivers sas id l was hallucinating. I guess l would l fell so many times l blessed to still be alive. They ran test but they didn’t do a CT of my head. When l was being discharged l was never told about the outcome of the test. I had to say something after they said you can put your clothes on and go home. That was very weird to me. I worked in the hospital for 8yrs and never did seen that before. I wouldn’t even do that to a stray dog. So l wanted to get a second opinion l was tired. So l going to the Mayo Clinic. I’ve been there twice and will be going back in another week. I have had so many test done and l had 3 misdiagnoses. And l found out from the neurologist it said there on your chart you had autoimmune encephalitis and your neurologist just assumed you had conversion disorder. Then my internal medicine told me my gastroenterologist wanted me to have an untrasound of my stomach in 2015. Now its 2017 and l will have it done when l go back. Because he said maybe that was causing some of my problems. So l sorry l told you my life history but l know where you are coming from. You get so many diagnoses and sometimes none at all. And your the one with the problem and you want to feel better. I read an article that doctors need to listen to patients instead of giving all these meds and running unessary test because the patient really know what’s wrong but can’t diagnoses their selves. And you know what l finally learned, they are only human and they don’t know everything. So we have to be our own advocate. Do your research look up your symptoms on the computer, its sometimes cheaper than an unnessary visit. I will be praying for Alecia.

Hello @sacolucci

It has been awhile since we have heard from you. How are you are doing?

Teresa

@techi

Teresa l know how it feels being told about alot of different diagnoses. I one time told my self l don’t know if l had more trials then Job. I said l had to look back in the bible but l knew he had more because he lost his children and everything he had. But in 1978 l had herpes zoster. Then in 1997 encephalitis. I kept falling because of my brain injury. I had memory issues. When l kept falling for 5yrs my doctor thought it was mental since l was going to a psychiatrist. I had fell at my brothers house when l was going back home on his antique table. Then l lost control and striped on a plane going home. I was put in a mental hospital for how long l don’t know because l was unconscious and l know it was the meds they gave me. After telling my doctor for 5yrs l was falling he thought l was depressed, bipolar and schizophrenia because that was my psychiatrist was putting on my chart. I said how can l be depressed shopping for clothes, in the water on a cruise, or talking family pictures with my family and also falling outside of his office to see him???. I fractured my ankle and had to stop college for a year. I tore my acl, rotor cuff, and had to have back and foot surgery. In 2014 after coming home from a cruise and seeing my new granddaughter. I fell back and hit my head and was unconscious. They had to take me off my antidepressants because they thought that was the problem. I was told by my children they ran several test. My family, friends and people from my church came to visit and l don’t remember them so l don’t know if l was unconscious or subunconscious. I was in the hospital for 12day and in intensive care. My family said l had seizures and the doctors said they didn’t see anything on my ct, mri and other test. The l had elevated ammonia level , and l never had anything wrong with my liver before. I only remember being in a dark room and feeling restraints. I don’t know what happened. My diagnoses then was autoimmune encephalitis, encephalopathy, seizure, elevated ammonia, mental disorder and other diagnoses. They couldn’t figure what was going wrong or how to treat me. They told my doctor if l didn’t get better they would have to put me in a nursing home. Thank God he was with me because the next day l got better but still don’t remember much. Then l was transferred to the hospital that my daughter worked at for rehab. They ran all my test over but there was still something wrong with my liver and they couldn’t find the encephalitis or anything wrong with my brain and my new neurologist said l had conversion disorder, meaning a person who is underster stress, anxiety or depression. They will fall, feel numbneds and have non epiletic seizures, and other things that the doctors can’t find anything wrong. Then when l was discharged l had to see my gastroenterologist about my liver. After he ran his test he told my you have an extra vein in ypur liver. And he also said l have seen this in medical school but never in a human. Well that makes you feel good. So l had to have a shunt put on the extra vein so what l eat would not go to other parts of my body and organs. When they did the surgery l ask the surgeon how long with this surgery be. He told me the most 1hr if there was any complications. It turned out to be five hrs because l didn’t have one extra vein l had five. Then a day later when l went home my daughter was there and l went crazy. I asked my doctor could l.have been allergic to the drugs he said you could have been. Then when l had to go back to see him everything was great but he was retiring. I was sad because he was honest. Dr usually don’t tell you what they don’t know and that he had to go to his collegues to see what needs to be done. I have continued falling, then l found out l had a postive ana when the rheumtologist office called to setup an appointment. I didn’t even know my ana was high. That means l have an autoimmune disease. When l kept falling and went to the hospital it was always someone from the mental dept to come so they could admit me. Then when l went to the rehumatologist she asked me. Why are you coming to see me and who sent you. Well l didn’t know what doctor and that was stupid and rude to ask. Why did she have a computer in her office? Then she said my gastroentorogist sent me my ana was elevated. I didn’t even know what that was. Its my immune system attacking something in my body but what you have to take many test to find out. So l had to have blood drawn and they couldn’t get enough and l had to go again. Her nurse told me no when l called to make sure. Then she wanted to see me right away, when she had a cancellation. Well that didn’t sound good to me. Then she tells me its high and it doesn’t always me something a healthy person can have a high ana. She could have sent me a letter. Just a waste of my time. Then l was told by one neurologist l have Parkinson disease and carpal tunnel another one MS and the last one coversion disorder. Who would you say is mental? And if your not you would have mental issues. Oh l forgot to tell you one time when l fell lhitmy mouth and 3 of my teeth were lose and l had to have 3 root canals and still my general practice didn’t believe me. The last fall was in Janurary l fell in home depot looking for a new washer and dryer. When they called emsa the drivers sas id l was hallucinating. I guess l would l fell so many times l blessed to still be alive. They ran test but they didn’t do a CT of my head. When l was being discharged l was never told about the outcome of the test. I had to say something after they said you can put your clothes on and go home. That was very weird to me. I worked in the hospital for 8yrs and never did seen that before. I wouldn’t even do that to a stray dog. So l wanted to get a second opinion l was tired. So l going to the Mayo Clinic. I’ve been there twice and will be going back in another week. I have had so many test done and l had 3 misdiagnoses. And l found out from the neurologist it said there on your chart you had autoimmune encephalitis and your neurologist just assumed you had conversion disorder. Then my internal medicine told me my gastroenterologist wanted me to have an untrasound of my stomach in 2015. Now its 2017 and l will have it done when l go back. Because he said maybe that was causing some of my problems. So l sorry l told you my life history but l know where you are coming from. You get so many diagnoses and sometimes none at all. And your the one with the problem and you want to feel better. I read an article that doctors need to listen to patients instead of giving all these meds and running unessary test because the patient really know what’s wrong but can’t diagnoses their selves. And you know what l finally learned, they are only human and they don’t know everything. So we have to be our own advocate. Do your research look up your symptoms on the computer, its sometimes cheaper than an unnessary visit. I will be praying for Alecia.

Jump to this post

Hi Lisa @techi

I appreciate your sharing your story – I hope it will encourage folks to keep persisting until they find a diagnosis. Persistence is important!

Teresa

Liked by babs1

April of 2015, my boss and I were excited at the end of the day. She said, “okay, let’s hurry up and get your evaluation done, yours won’t take up any time.” I go flying up to her on a large wheeling chair and it starts forward, I can’t stop it, I go forward, the chair slams into the wall behind me ricochets off then catches me in the back of the head and I land on the floor. Neither my boss or I know how I land, her back is to me, yet she feels this happened because of the sound of it all.
I am out, I awake with the chair on top of me and I crawl out from under it. She has made her way up from her desk and is standing there with a look of shock. I feel ok. I tell her I’m ok. She is not convinced, we write it up just to be sure.
Approximately 2 hours later, i start feeling like I have the flu, I ache all over, like I’ve been hit by a truck. My vision is cloudy, I can’t think straight and i get a headache that becomes a relentless nightmare. I cannot move my neck at all so I sit in one spot. I urinate on my self before I have the sensation to do so. The neck pain and headache, head tightness, is so intense that the tears roll down my face. I have memory issues, I can’t remember my bank pin number. I make an appointment with a neurosurgeon, and I have an MRI, it just reveals disc protrusion. He says I have hypersensitive signs from my physical exam. I receive physical therapy which includes concussion therapy after talking to me, they decide. I also get a series of cervical steroid injections. I am out of work about 6-8 weeks in the beginning. I go back a little sooner than written out because of the need at work.
The pain improves although I continue to have neck, arm, and hand pain, the headaches continue and they are over the right eye. The pain is more so concentrated on the head, neck, and the left arm, and my feet are numb sometimes in the beginning. i just try to deal and live with it, take lots of Motrin, Excedrin, etc.
I also keep having these recurrent episodes , I don’t know what activity proceeds or what I have done that will bring it on but it’s just like in the beginning, except not with the same intensity. I cannot work when it happens though, its still pretty brutal lasting about a 1 week to 2 weeks. I am unable to move my neck, very tight, stiff, headache, painful, unable to think clearly, urinate on myself.
In January 2017 while putting ornaments in their proper boxes, up then down, i got dizzy. I was just putting away our Christmas ornaments. I have not been the same since. I had to miss a few days of work again. it all started up again. I started with my primary care doctor an MRI was ordered of the brain. He said that was normal. I was referred back to the neurosurgeon again, another cervical MRI was ordered, which 2 years later shows bulging and spurs. He sends me for pain management. I receive 2 cervical steroid injections, physical therapy again with traction. The injections do nothing and this time I feel like therapy does nothing. In fact, after therapy, I get sick to my stomach, drag my left leg a little, feel like it takes my breath away later and it is stopped. I see my primary care doctor and they give me a decadron shot. During this time, I am also referred to a neurologist for the headaches. I requested to see one as well. I want to know what is going on with me. along with the numbness episodes of my feet, they are starting to feel like they are exploding. My neck, my arms, my hands, fingers, headaches, lower leg, feet, decreased perianal sensation, jaw numbness. What is going on?
Now my feet feel like I’m walking on rocks, my moods and thoughts are not what they were, bills are not paid like they should be, I forget things, stiff neck, arms and hands ache and hurt, and it feels like my head is tight. I’m working every day, trying to put a smile on my face but I’m living in a private hell. I go home and cry. I try not to cry at work or talk about it too much there. I am now taking Topramax 75mg twice a day for headaches, Gabapentin 300mg 3x a day, but I cannot take that during the day and work, unfortunately , i think it helps. Rizaptrapan prn for headaches which doesn’t help if I have one. Tizanidine, which you can only take at night due to drowsiness.
I miss my life, I miss me!

@babs1

April of 2015, my boss and I were excited at the end of the day. She said, “okay, let’s hurry up and get your evaluation done, yours won’t take up any time.” I go flying up to her on a large wheeling chair and it starts forward, I can’t stop it, I go forward, the chair slams into the wall behind me ricochets off then catches me in the back of the head and I land on the floor. Neither my boss or I know how I land, her back is to me, yet she feels this happened because of the sound of it all.
I am out, I awake with the chair on top of me and I crawl out from under it. She has made her way up from her desk and is standing there with a look of shock. I feel ok. I tell her I’m ok. She is not convinced, we write it up just to be sure.
Approximately 2 hours later, i start feeling like I have the flu, I ache all over, like I’ve been hit by a truck. My vision is cloudy, I can’t think straight and i get a headache that becomes a relentless nightmare. I cannot move my neck at all so I sit in one spot. I urinate on my self before I have the sensation to do so. The neck pain and headache, head tightness, is so intense that the tears roll down my face. I have memory issues, I can’t remember my bank pin number. I make an appointment with a neurosurgeon, and I have an MRI, it just reveals disc protrusion. He says I have hypersensitive signs from my physical exam. I receive physical therapy which includes concussion therapy after talking to me, they decide. I also get a series of cervical steroid injections. I am out of work about 6-8 weeks in the beginning. I go back a little sooner than written out because of the need at work.
The pain improves although I continue to have neck, arm, and hand pain, the headaches continue and they are over the right eye. The pain is more so concentrated on the head, neck, and the left arm, and my feet are numb sometimes in the beginning. i just try to deal and live with it, take lots of Motrin, Excedrin, etc.
I also keep having these recurrent episodes , I don’t know what activity proceeds or what I have done that will bring it on but it’s just like in the beginning, except not with the same intensity. I cannot work when it happens though, its still pretty brutal lasting about a 1 week to 2 weeks. I am unable to move my neck, very tight, stiff, headache, painful, unable to think clearly, urinate on myself.
In January 2017 while putting ornaments in their proper boxes, up then down, i got dizzy. I was just putting away our Christmas ornaments. I have not been the same since. I had to miss a few days of work again. it all started up again. I started with my primary care doctor an MRI was ordered of the brain. He said that was normal. I was referred back to the neurosurgeon again, another cervical MRI was ordered, which 2 years later shows bulging and spurs. He sends me for pain management. I receive 2 cervical steroid injections, physical therapy again with traction. The injections do nothing and this time I feel like therapy does nothing. In fact, after therapy, I get sick to my stomach, drag my left leg a little, feel like it takes my breath away later and it is stopped. I see my primary care doctor and they give me a decadron shot. During this time, I am also referred to a neurologist for the headaches. I requested to see one as well. I want to know what is going on with me. along with the numbness episodes of my feet, they are starting to feel like they are exploding. My neck, my arms, my hands, fingers, headaches, lower leg, feet, decreased perianal sensation, jaw numbness. What is going on?
Now my feet feel like I’m walking on rocks, my moods and thoughts are not what they were, bills are not paid like they should be, I forget things, stiff neck, arms and hands ache and hurt, and it feels like my head is tight. I’m working every day, trying to put a smile on my face but I’m living in a private hell. I go home and cry. I try not to cry at work or talk about it too much there. I am now taking Topramax 75mg twice a day for headaches, Gabapentin 300mg 3x a day, but I cannot take that during the day and work, unfortunately , i think it helps. Rizaptrapan prn for headaches which doesn’t help if I have one. Tizanidine, which you can only take at night due to drowsiness.
I miss my life, I miss me!

Jump to this post

Hello @babs1 and welcome to Mayo Connect. I am so sorry to hear of your many physical difficulties. I noticed at the beginning of your post you mentioned using a wheelchair. Is that for a chronic condition that pre-existed the fall? Do you mind sharing what that is?

If we have a little more history, we might be able to recommend discussion groups that you could join at Mayo Connect.

Teresa

Not sure but be sure to have your thyroid checked especially since symptoms started after child birth.

@babs1

April of 2015, my boss and I were excited at the end of the day. She said, “okay, let’s hurry up and get your evaluation done, yours won’t take up any time.” I go flying up to her on a large wheeling chair and it starts forward, I can’t stop it, I go forward, the chair slams into the wall behind me ricochets off then catches me in the back of the head and I land on the floor. Neither my boss or I know how I land, her back is to me, yet she feels this happened because of the sound of it all.
I am out, I awake with the chair on top of me and I crawl out from under it. She has made her way up from her desk and is standing there with a look of shock. I feel ok. I tell her I’m ok. She is not convinced, we write it up just to be sure.
Approximately 2 hours later, i start feeling like I have the flu, I ache all over, like I’ve been hit by a truck. My vision is cloudy, I can’t think straight and i get a headache that becomes a relentless nightmare. I cannot move my neck at all so I sit in one spot. I urinate on my self before I have the sensation to do so. The neck pain and headache, head tightness, is so intense that the tears roll down my face. I have memory issues, I can’t remember my bank pin number. I make an appointment with a neurosurgeon, and I have an MRI, it just reveals disc protrusion. He says I have hypersensitive signs from my physical exam. I receive physical therapy which includes concussion therapy after talking to me, they decide. I also get a series of cervical steroid injections. I am out of work about 6-8 weeks in the beginning. I go back a little sooner than written out because of the need at work.
The pain improves although I continue to have neck, arm, and hand pain, the headaches continue and they are over the right eye. The pain is more so concentrated on the head, neck, and the left arm, and my feet are numb sometimes in the beginning. i just try to deal and live with it, take lots of Motrin, Excedrin, etc.
I also keep having these recurrent episodes , I don’t know what activity proceeds or what I have done that will bring it on but it’s just like in the beginning, except not with the same intensity. I cannot work when it happens though, its still pretty brutal lasting about a 1 week to 2 weeks. I am unable to move my neck, very tight, stiff, headache, painful, unable to think clearly, urinate on myself.
In January 2017 while putting ornaments in their proper boxes, up then down, i got dizzy. I was just putting away our Christmas ornaments. I have not been the same since. I had to miss a few days of work again. it all started up again. I started with my primary care doctor an MRI was ordered of the brain. He said that was normal. I was referred back to the neurosurgeon again, another cervical MRI was ordered, which 2 years later shows bulging and spurs. He sends me for pain management. I receive 2 cervical steroid injections, physical therapy again with traction. The injections do nothing and this time I feel like therapy does nothing. In fact, after therapy, I get sick to my stomach, drag my left leg a little, feel like it takes my breath away later and it is stopped. I see my primary care doctor and they give me a decadron shot. During this time, I am also referred to a neurologist for the headaches. I requested to see one as well. I want to know what is going on with me. along with the numbness episodes of my feet, they are starting to feel like they are exploding. My neck, my arms, my hands, fingers, headaches, lower leg, feet, decreased perianal sensation, jaw numbness. What is going on?
Now my feet feel like I’m walking on rocks, my moods and thoughts are not what they were, bills are not paid like they should be, I forget things, stiff neck, arms and hands ache and hurt, and it feels like my head is tight. I’m working every day, trying to put a smile on my face but I’m living in a private hell. I go home and cry. I try not to cry at work or talk about it too much there. I am now taking Topramax 75mg twice a day for headaches, Gabapentin 300mg 3x a day, but I cannot take that during the day and work, unfortunately , i think it helps. Rizaptrapan prn for headaches which doesn’t help if I have one. Tizanidine, which you can only take at night due to drowsiness.
I miss my life, I miss me!

Jump to this post

Not a wheelchair but a desk chair with wheels. I fell forward while trying to scoot closer to her quickly at the end of the day. We were in a hurry.

@ninon

Not sure but be sure to have your thyroid checked especially since symptoms started after child birth.

Jump to this post

I also have hashimotos thyroiitus. It’s is being closely monitored at MUSC in SC, and I just had an ultrasound there.

Some days are just excruciating. It’s hard to explain to someone that you have numbness and pain in extremities and they truly understand. The neck pain is almost constant and so miserable. I’m hoping to be evaluated properly by someone, a work comp approved neurologist.

Hello @babs1

We will be looking forward to hearing how that appointment goes with the neurologist. We hope that you are able to get a diagnosis and relief.

How long until your appointment?

Teresa

@hopeful33250

Hello @babs1

We will be looking forward to hearing how that appointment goes with the neurologist. We hope that you are able to get a diagnosis and relief.

How long until your appointment?

Teresa

Jump to this post

As soon as I am approved.

Thank you for your response. I’m waiting on workmans comp approval. If I don’t get it soon I’m going to see a neurologist on my own.

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