Non Hodgkin's Lymphoma- Watch & Wait Approach

Can someone please tell me how to get tested for non Hodgkins? Im told by E.R. Doctors I need to be tested but they didn't help me. I keep this brief as it's very lengthy as well as my medical issues and serious issues with it all and not receiving care I need. Thank you for any suggestions. Pam

Me too! Welcome. @dani349

Thank you to everyone that has reacted to my post !🤎🤗🧡

@pmm I don't have a team . I have a heme/onc specialist doc that I see. But I'm sure he talks it over with others. He has a nurse who's awesome. When I have issues she is very nice and reassures me. Thank you for the info regarding older post. I'll read them. That's why I'm soo glad I found this thread of watch and wait . I need someone to talk to regarding things that may appear or just someone to talk to. I even signed up for a mentor on cancer site , but haven't heard anything . So I'm very happy I found this site and it's awesome members !

@dani349 some of the most interesting and helpful discussions start with older posts. No worries.
Anxiety is definitely not our friend. It can even raise your white count. For me, it messes with my sleep and makes me kind of nauseous when I eat. Then I think I’m symptomatic…you get the picture.
When you do have health issues it’s hard to tell what might reasonably be symptomatic of the blood disorder and what might be unrelated. It helps, I think when I chat with others and they have similar experience.
Do you have a receptive medical team you can utilize to ask questions?

@pmm hey! Thank you for replying . I didn't realize this was an old thread until I started reading the comments ! Lol! Omg ! Anxiety! What's that! I'm soo on edge it's not a good look on me !😂 The thing that worries me is I'm at the age where is it menopause the temp outside or symptoms of SLL. I try not to think about it until something happens out the blue and then I start wonder is it a sign!! But I'm taking it one day at a time. Just watching and waiting!!

@dani349 hello, Dani, I’m so glad you found Connect. Watching and waiting is definitely challenging, especially for those of us who typically do something. It’s hard sometimes to wait and see but certainly better when the alternative may carry side effects, I suppose. I watch and wait with MGUS as well.
Do you find that your anxiety has increased with the change in dx?

Hey ! I'm Afro American 49 and dx 2022 with CLL and dx 2024 with SLL was doing every6 month lab work until I went in for my mammogram and I had enlarged ax lymph nodes. That bx is what resulted SLL. I go back in 3 months for labs. No signs or symptoms of anything. This watch and wait takes a toll on you at times!

Consuming is right. You are always on alert and doing what you can the best you can to enjoy life and stay positive even when you don't feel like it. I have other things at the moment that require my attention. I pray for you that you get a good report. The waiting is the worse.

I had one CT scan but I have blood work done every month because I also have Cold Agglutinin anemia. My CLL is indolent. Thank God I am living a normal life traveling and attending theater 🎭,music & art events. Hopefully the CLL never becomes active but I now live in s warm climate for the winter and will always also have to stay warm due to the cold Agglutinin Anemia.