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No appointment scheduled for my labs at Mayo...??
I go to Mayo in Jacksonville Florida...I was diagnosed with a low count MGUS, several years ago. I automatically scheduled for all bloodwork every year, or sometimes 6 mos. Now for some reason I have not been scheduled for over 1 & 1/2 years. I wrote to my care team and haven't gotten a response...just asking if I no longer needed labs done.
Has anyone noticed changes in their system or know if they're scheduling automatically??
I'm not asking for an appointment, just wondering if they changed something. I have check ups with my primary, everything looks fine...however they don't do mgus testing
I'm also told I have a very slight risk of progression.
Thanks, if anyone knows if Mayo stopped scheduling.
One thing I've noticed for sure, is since there's a new CEO, and since covid, they don't seem to be so hands on as they used to be...kind of disappointing .
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I also go to Mayo in Jacksonville for treatment for ET. I was initially going to Halifax in Daytona, but I switched to Mayo for a second opinion. They diagnosed ET instead of PV, which I was treated for in Daytona. I was switched from Jacafi to Hydrea, and other than losing my hair, have not had too many problems. My doctor at Mayo is Dr. Budar, and so far, I have been pleased when I send messages to his nurse, I usually get a fast response. One thing I am confused about is when waiting for an appointment to be scheduled, I was told they start the process on the 11th-15th of the month??? In Daytona, I was undergoing blood work weekly and seeing the doctor every three weeks. I have been at Mayo since January and was seeing him every three weeks, but I have now been scheduled every three months. I was concerned about that length of time, so he gave me an order to have my blood drawn here at six weeks. My platelet count has increased from 500 to 600 in six weeks. I called, and he sent an email saying to stay on the same dosage (500 mg per day), and we would monitor it. I will go back in August and will discuss it with him again.
I see a hematologist at Mayo in Phoenix. After five years and relative stability in my numbers, I go in every 60 days for blood work. And, I see the Dr. about once a year, the PA every 6 mos.
I have asked the Dr. and PA how the numbers can be great and go “bad” and I’ve been told they can fluctuate for a lot of reasons within the same day or days.
If my hematocrit rises to 42 or more I feel it in my legs/calf’s and call to schedule blood work.
At first Mayo’s scheduling procedure threw me but their system has been reliable and I get an alert when appts are scheduled. And, there has never been a problem when I have wanted to get my blood work done “off”schedule when I’ve sent msg to my Dr./staff.