Newly & Nearly bedridden, This is hard

Posted by tracidw @tracidw, 2 days ago

In the past 6 weeks, Mom went from using a walker to being in a wheelchair to barely getting out of bed. Yesterday, I put a cold cloth on her head while she puked after staying in bed all day and not eating. This morning she fell out of bed but didn't get hurt.

She's in a memory unit and on hospice. The decline seems to be accelerating. I miss her and my heart hurts. She has been sleeping more and more while eating less and less. It's now hard for her sitting up for more than a few minutes. But, tomorrow, she might be able to walk some.

Although she can't recall the past 30 years, I mentioned the Big Red Storybook she used to read from when I was a kid. She remembered it! And I still have it. I took it to show her yesterday and she lit up. What a beautiful smile - even though she fell on her face last month and now has half a front tooth.

My emotions seem as eratic as her lewy body. I appreciate this outlet and support. I tend to isolate and hesitate to talk about this with others. Oh how I miss her, even when I'm holding her hand.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

I’m so sorry. It depends on her wishes if she expressed them before the dementia got bad or your wishes if she did not. You could have a discussion with her doctor about a brief work up, maybe just a chest X-ray, simple bloodwork and a urinalysis and culture to look for simple things that might be causing this abrupt decline. Or it is also ok to just be with her and let her know she is loved.

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Profile picture for laura1970 @laura1970

I’m so sorry. It depends on her wishes if she expressed them before the dementia got bad or your wishes if she did not. You could have a discussion with her doctor about a brief work up, maybe just a chest X-ray, simple bloodwork and a urinalysis and culture to look for simple things that might be causing this abrupt decline. Or it is also ok to just be with her and let her know she is loved.

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@laura1970 Thanks. We knew this was coming. Mom had made all her wishes known before dementia was an issue which I'm glad. Hospice warned me her decline would be more rapid now and yet I heard...but didn't hear. So yes, I'll cherish the moments, even when tough.

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Update: For the very first time, my Mom hit me today. I know it's not 'her' but it's tough.
🙁

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Sorry about that...my wife started hitting when she was in the throes of a final UTI. You are right -- it is not her any more.

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