1. < MAC & Bronchiectasis

Newly diagnosed, scared. Waiting for pathology reports.

Posted by healthybon @healthybon, Mar 5, 2023

Hi, I am very scared. I do not tolerate even one antibiotic well. My pulmonary is sending me to an infectious disease doctor . Please help.

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healthybon | @healthybon | Mar 7, 2023
In reply to @irenea8 "I do not really know your situation but you do not need to be so scared...." + (show)
@irenea8

I do not really know your situation but you do not need to be so scared. You do not have Bronchiectasis which is huge. If you cannot tolerate antibiotics as you mentioned then discuss that with the infectious disease Dr. and ask about any other possible options. And if you feel you need someone else then try Mayo or another specialist on the east coast. I have had Bronchiectasis for over 20 years (and chronic Pseudomonas). But have learned how to deal with it as best I can. Your situation may not be as bad as you think. Take heart. Find out more. Ask a lot of questions when you see the Dr! Hope you find good Drs.

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You are wonderful! Mayo doesn’t accept Aetna Medicare Advantage. That’s what Aetna told me. I will double check.
I hope you are right….still don’t have the final pathology to show what germ it is, but in April I will know more. Thanks for your input and support, it means a lot!

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1 reply
healthybon | @healthybon | Mar 7, 2023
In reply to @irenea8 "You should make sure your Dr even recommends saline nebulization for your specific situation. I was..." + (show)
@irenea8

You should make sure your Dr even recommends saline nebulization for your specific situation. I was just saying if it is recommended it is very helpful to do it. So be sure to check with them. Take good care and try not to worry.

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How many puffs do u do at one sitting on flutter valve?

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1 reply
irenea8 | @irenea8 | Mar 8, 2023
In reply to @healthybon "How many puffs do u do at one sitting on flutter valve?" + (show)
@healthybon

How many puffs do u do at one sitting on flutter valve?

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My situation is so different. I produce large amounts of mucus so I have to use the Aerobika many times (too many to report). Once you get it you can read instructions or watch videos online how to use it. I think the instructions tell you how many breaths to take with it before attempting to expel mucus.

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doncantrell78 | @doncantrell78 | Mar 9, 2023

Prayers 🙏 for good news ,trust in God

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irene5 Irene Estes | @irene5 | Mar 10, 2023
In reply to @healthybon "You are wonderful! Mayo doesn’t accept Aetna Medicare Advantage. That’s what Aetna told me. I will..." + (show)
@healthybon

You are wonderful! Mayo doesn’t accept Aetna Medicare Advantage. That’s what Aetna told me. I will double check.
I hope you are right….still don’t have the final pathology to show what germ it is, but in April I will know more. Thanks for your input and support, it means a lot!

Jump to this post

It can take forever for results. Hang in there, and truly trust the good God. He is good all the time because He has the big picture. I speak from experience! 🙂 irene5

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1 reply
healthybon | @healthybon | Mar 10, 2023
In reply to @irene5 "It can take forever for results. Hang in there, and truly trust the good God. He..." + (show)
@irene5

It can take forever for results. Hang in there, and truly trust the good God. He is good all the time because He has the big picture. I speak from experience! 🙂 irene5

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Thks ❤️

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