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Newly diagnosed with liver cancer, having trouble coping

Posted by joemina @joemina, Oct 27, 2024

Just diagnosed with liver cancer 4 days ago. Looks to be an early diagnosis. Still my anxiety and thoughts are all over the place. Any help or advice will be appreciated. Are there zoom or online cancer support groups. Joe

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dave1952 | @dave1952 | Jan 25 11:45am
In reply to @joemina "Thank you, positive hearing of positive outcomes is very helpful" + (show)
@joemina

Thank you, positive hearing of positive outcomes is very helpful

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I had two cancerous growth in my liver also. They found them in Nov, 24. I went through all the tests and my radiologist suggested Y90. I won't lie, the recovery was tough due to the size of the tumors. Crippling fatigue was the hardest as was 11 weeks of evening fevers. I had another MRI two weeks ago and got a call from my Radiologist yesterday, 1/23/25 and was told 98% of the treated tumor was dead and/or dying. 98%!!. How about that. So, don't be afraid of the Y90. The hardest part is waiting every step of the way. Try to figure out how to turn off the "what if" switch in your head and you will do fine.

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In The Now | @phillydawg | 16 hours ago

Great news. I had a 3.5 cm tumor treated with Y90 November 2023 and they killed it. Had MRI every 3 months since and no new activity. Health is good. Went on transplant list May 2024 with exception points. Hoping for good news soon.

How big were your tumors? Are you on the wait list?

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1 reply
In The Now | @phillydawg | 16 hours ago
In reply to @stevie17 "Diagnosed April ‘24, surgery June. We chose wait and see with 90 day MRI. September MRI..." + (show)
@stevie17

Diagnosed April ‘24, surgery June. We chose wait and see with 90 day MRI. September MRI showed another tumor. Tumor board thought ablation was the way to go and I agreed. Oct 18 surgery/ablation was unsuccessful because tumor had grown 2c more and is against the bile duct. Bad news. Good news I still have options. Friday I get mapped for Y90 drug which will be administered 11/7. I am hopeful the drug will shrink the tumor so it can be ablated. We won’t know if possible until 6week MRI after Y90. I was not a transplant candidate, too old. So we are following protocol for HCC liver cancer. I’ll report in how the mapping went for me. We feel alone but there are many liver cancer patients who are living daily with this disease. Fight on!!

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How old is too old for transplant? I heard that you can still get transplanted into your 70s if your overall health is good.

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parrot53 | @parrot53 | 5 hours ago
In reply to @phillydawg "Great news. I had a 3.5 cm tumor treated with Y90 November 2023 and they killed..." + (show)
@phillydawg

Great news. I had a 3.5 cm tumor treated with Y90 November 2023 and they killed it. Had MRI every 3 months since and no new activity. Health is good. Went on transplant list May 2024 with exception points. Hoping for good news soon.

How big were your tumors? Are you on the wait list?

Jump to this post

Congratulations! It is amazing how far medicine has come. We are so lucky that there is hope even when things look dire. Good luck with your transplant journey.

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