Newly diagnosed with stage 3: Should we call Mayo Clinic?

Posted by vherzog777 @vherzog777, Dec 23, 2021

My husband got diagnosed with stage 3 pancreatic cancer today. So far hasn’t spread. I’m in Arkansas. They want to start him on chemo shrink the tumor that’s encased the arteries. Hopefully it shrinks. Then remove the tumor. My question is this… should I get him to Mayo now for the 2nd opinion or see if they can shrink it and see if it’s operable. And if not call Mayo then???

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Hi @vherzog777, I replied to your question in another discussion thread, but thought I would reply here as well.

Dr. Truty at Mayo Clinic is a pioneer in the treatment approach of chemo before surgery in tumors that were in former times considered in operable. You can read more about Dr. Truty and this treatment approach in various articles. Here's the most comprehensive one written for medical professional:
– 3 factors associated with improved outcomes for individuals with pancreatic ductal adenocarcinoma https://www.mayoclinic.org/medical-professionals/digestive-diseases/news/3-factors-associated-with-improved-outcomes-for-individuals-with-pancreatic-ductal-adenocarcinoma/mac-20463202

I recommend contacting Mayo Clinic right away. They may suggest coming to Mayo Clinic, or they may suggest working with your local hospital for chemo and then to come to Mayo Clinic for surgery. You have options. Here are the contact numbers for all 3 Mayo Clinic locations. http://mayocl.in/1mtmR63

It doesn't cost anything to call and inquire. It may give you peace of mind.

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@colleenyoung

Hi @vherzog777, I replied to your question in another discussion thread, but thought I would reply here as well.

Dr. Truty at Mayo Clinic is a pioneer in the treatment approach of chemo before surgery in tumors that were in former times considered in operable. You can read more about Dr. Truty and this treatment approach in various articles. Here's the most comprehensive one written for medical professional:
– 3 factors associated with improved outcomes for individuals with pancreatic ductal adenocarcinoma https://www.mayoclinic.org/medical-professionals/digestive-diseases/news/3-factors-associated-with-improved-outcomes-for-individuals-with-pancreatic-ductal-adenocarcinoma/mac-20463202

I recommend contacting Mayo Clinic right away. They may suggest coming to Mayo Clinic, or they may suggest working with your local hospital for chemo and then to come to Mayo Clinic for surgery. You have options. Here are the contact numbers for all 3 Mayo Clinic locations. http://mayocl.in/1mtmR63

It doesn't cost anything to call and inquire. It may give you peace of mind.

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I reached out to them. Have a phone appointment Monday.

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@vherzog777

I reached out to them. Have a phone appointment Monday.

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Fantastic. I look forward to hearing what you learn. Are you and your husband able to find comfort and joy this weekend?

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@colleenyoung

Fantastic. I look forward to hearing what you learn. Are you and your husband able to find comfort and joy this weekend?

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Yes we are. Staying positive and just rolling with it. We will fight this together with all we got! It’s kind of consumed us lately but I think it was just the shock of it all. I’m trying to stay strong for him and our kids. I don’t show it how but boy it’s tough sometimes… it’s Christmas. Enjoying our family time and pushing through this. Merry Christmas and thank you!

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God bless you and grant you the strength to remain positive. My cousin is going through the same thing with stage 4 pancreatic cancer. She is cheerful and comforting to others which is amazing. When I asked her how she can cope she says that she has to remain strong for her husband and children and grandchildren! My cousin Maryann is at Memorial Sloan Kettering which is another wonderful hospital like Mayo Clinic. I go with her every 2 weeks for chemo to reduce the tumor. She started 7 months ago and is doing well. God bless all our men and women going through this difficult time

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@susanpmadigan

God bless you and grant you the strength to remain positive. My cousin is going through the same thing with stage 4 pancreatic cancer. She is cheerful and comforting to others which is amazing. When I asked her how she can cope she says that she has to remain strong for her husband and children and grandchildren! My cousin Maryann is at Memorial Sloan Kettering which is another wonderful hospital like Mayo Clinic. I go with her every 2 weeks for chemo to reduce the tumor. She started 7 months ago and is doing well. God bless all our men and women going through this difficult time

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As a pancreatic cancer fighter, I need to thank you for your support. It is so important to us to have friends and family there for Chemo and other treatments.

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@bb21

As a pancreatic cancer fighter, I need to thank you for your support. It is so important to us to have friends and family there for Chemo and other treatments.

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Keep on fighting. Life is good 😊❤️

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It sure is thus I continue to fight. Thank you for your support.

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@vherzog777

I reached out to them. Have a phone appointment Monday.

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Dr. Truty removed my pancreas, gallbladder and spleen in October of 2020 because of stage 3 pancreatic cancer. All of my chemo was done in Michigan. My Michigan oncologist and Dr Truty’s team worked together. I feel so grateful I had the best of the best with Dr. Truty and his team.

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@ellengalloup

Dr. Truty removed my pancreas, gallbladder and spleen in October of 2020 because of stage 3 pancreatic cancer. All of my chemo was done in Michigan. My Michigan oncologist and Dr Truty’s team worked together. I feel so grateful I had the best of the best with Dr. Truty and his team.

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That’s amazing! ❤️

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@colleenyoung

Fantastic. I look forward to hearing what you learn. Are you and your husband able to find comfort and joy this weekend?

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OK so the phone appointment went very well. they are going to try to get my husbands images and test results. she is supposed to call back today if she is not able to get them and then I have to do some legwork, gather them up and send them up to the Mayo Clinic If these facilities here do not have the capability of transferring it and it would be handed off to Dr. Truty. I almost cried when she told me that, it really gave me a lot of hope She did say if he accepts my husband… I didn’t ask yet, But I’m wondering what are some reasons he would not be accepted? I was going to ask when she called. I’m thinking if it was something that was truly inoperable or the cancer was spread way beyond.

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@ellengalloup

Dr. Truty removed my pancreas, gallbladder and spleen in October of 2020 because of stage 3 pancreatic cancer. All of my chemo was done in Michigan. My Michigan oncologist and Dr Truty’s team worked together. I feel so grateful I had the best of the best with Dr. Truty and his team.

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Waiting for a call back from them! They received all my husbands scans and medical records Monday morning. How long did it take for them to contact you?

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