New here: Looking for others who have NSCLC and information

Posted by harley123 @harley123, Apr 24, 2022

Hi my name is Tom and I was just diagnosed with NSCLC thay found a large tumor in My right lung besides the shortness of breath and pain in my right shoulder I would never known anything serious was wrong when I went to the doctor about my shoulder that's when thay found the tumor I had all the test PET, MRI, Cat scan, ets. The plan is Immunotherapy but thay needed DNA so in the meantime thay are going to put me on Chemo. If anyone could let me know what to expect iam at a loss and don't know anything about the disease and anything would be a help.
Thank You
Tom

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@elechar2023

So much for online contact!!i just got this reply from the actual international patients department:
“Thank you for your email. Please note that at this time, we are not able to offer a virtual, remote second opinion, video conference or an online consultation. Please let us know if you are interested in an onsite appointment at Mayo Clinic Rochester and we would be happy to assist.”
🙁

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Hi @elechar2023, I hope you have found the care and support that are seeking. It can certainly be difficult to access a second opinion, especially when travel is required. Is your husband still tolerating the Tagrisso well? Was he experiencing symptoms?, are those starting to subside?

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