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New to group, just finished chemo and radiation for local reocurance of adenocarcinoma non small cell stage 2A
Hi @merilee and welcome to Connect.
Allow me to introduce you to a few people. First meet @major @burrkay who are also dealing with lung cancer. Major has small cell lung and Burrkay’s wife has stage 3b lung cancer. I’d also like to tag a few other members of the Cancer group to join me in welcoming you @irvkay312 @hopeful33250 @travelgirl.
@merilee a welcome milestone to have just finished treatment. How are you doing? What side effects are you managing? We look forward to getting to know you.
Hi and welcome.
As I’ve learned since my Islet Cell Cancer (middle of Pancreas) was
diagnosed in 2009, a lot has to do with the type of cancer it is. In other
words, some are slow growing and some are faster in growth.
I did OK with radiation, chemo and targeted chemo, by getting enough rest,
eating a healthy diet of food (fruits and veggies) and of course not
overdoing excercise and energy useage. My Islet Cell is slow growing and
they approximated 5 years. Well, with those things “it took 6 1/2 years
before it mestsized to the liver–that was a warning from the doctor who
noted once in your liver it’s in your blood.”
Things have been changing since the above, fatigue, GI, GU tracts,
digestion, etc. So you just have to try and live within your bodies means.
Merilee: Congratulations on finishing your treatments! As one who has had reoccurrences of a rare type of cancer I understand how great it feels to have treatment behind you. Congratulations also on being part of Mayo Connect. You will find kindness, support and encouragement here. Best wishes as you get on with your life!
Thank you..have ct monday and as everyone worried about that….i also am hopingy hair doesnt thin anymore..and hoping it will thicken ..soon ?
My good thoughts and prayers go with you on Monday. I hope that the results are good.
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I have lung cancer also. No treatment at this time. I am trying a plant
diet for my immune system but need more information. Sent for Food
Revolution email/information. Very good! Ocean Robbins and John Robbins.
Have you heard about the “Liquid Biopsy” at Dana Farber” Cancer
Institute? Trying to get info, but can’t seem to reach anyone about this.
Wonder if Mayo Clinic has any information. I’ll have to ask someone? Betty
My mother also had lung cancer and passed at 65; she was told
when they opened her up that “lung cancer is one of the most
aggresive types and had she sought treatment at an earlier time
relative to some body changes she passed off–they may have
been able to save her or prolong her life.
Personal experience with Islet Cell (pancreatic) indicates to
“learn of the aggresiveness of cancer type and deal with it
at soonest possible time.” Since WBC can often help in
avoiding infections, it doesn’t often help with cancer unless
your able to keep your WBC count high and not lose your
protein intake before it’s able to work for you.
Hi sorry you are here. But welcome to the group. There are lots of nice and helpful people here.
I wish you the best..
Hi @merilee, thinking of you today as you go for your CT scan. Let us know how you are doing when you get a chance.
Thank you ct on monday, all turned out ok..pet scan end of June early July to see whats going on since radiation, they wait a few months due to inflamation from radiation…going to visit sis in VA for a few weeks, so will have scan when i return..i
live Wisonsin…take care all
i HAVE THE SAME CANCER, HOWEVER, I DON’T THINK I HAVE NON SMALL CELL MAYBE STAGE 1. NO TREATMENT YET. DISCOVERED IN 2013. I HAD 2 SURGERIES, RT. ULOBECTOMY AND 2 RESECTIONS OF LEFT LUNG. THEY ARE WAITING FOR MORE GROWTH ON RT. TO DO BX. BUT DANA FARBER IN MA. DISCOVERED A LIQUID BIOPSY FOR CANCER THAT IS VERY PROMISING. I’M HOPING TO BE ABLE TO GET IN ON THAT?
BETTY HAVE A GREAT TIME WITH YOUR SIS IN VA.
I was diagnosed with Stage 2b non-small cell adenocarcinoma in June 2018. Mine is due to a mutation in the EGFR gene, Exon 19. They took out my upper right lung lobe. After that, I had 33 rounds of radiation and four of chemo. Passed all of my PET and CAT scans for the next two years. However, in July 2020 I started experiencing what I called "muscle spasm incidents". Big clue we all missed: only on the right side. Those later got rebranded as "mini-seizures" after they found the 3 cm cyst in my left parietal lobe. The lung cancer was back, metastasized to my brain.
I asked why it didn't show on the PET scan and my Oncologist told me that PET scans look for sugar uptake. But the entire brain is taking up sugar all the time! Too much background noise to even see a 3 cm cyst. Unfortunately, a cranial CAT scan is not considered the current standard of care for lung cancer, even though lung cancer is known to travel to the brain. With 20/20 hindsight, I would have begged/pleaded/whipped my Oncologist with a wet noodle to get an annual cranial CT scan!
Brain surgery got rid of that cancer and three more rounds of highly-targeted (sub-millimeter accuracy) radiation. Now I'm on Tagrisso, which crosses the blood/brain barrier.
I wish you the best of luck! I hope you got that cancer early enough and it now leaves you alone!
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