Gastritis

Posted by afrochic @afrochic, Mar 23, 2019

I stumbled on this site from so much googling on the digestive issues I’ve been suffering. Gastritis for 10 yrs now, on and off PPIs severally. Recurrent epigastric pain + nausea and bloating. Endoscopy 3 times. Last one done March 6 2019 and now diagnosed with severe intestinal metaplasia. It’s been a dreary journey.

Hello @afrochic and welcome to Mayo Connect,

I am glad to hear that you found this site while googling. I had the same experience several years ago and I have found a lot of support on Connect.

I can certainly understand your concern. The symptoms you mentioned are very uncomfortable and certainly worrisome. If you care to share more, could you tell a little bit about how these symptoms affect your eating? For example, do you eat small frequent meals, what about the consumption of fats, caffeine, etc.? Do different foods make your symptoms worse? What about your lifestyle, do you engage in a mild exercise like walking etc.?

I found a Mayo website on the topic of intestinal metaplasia, https://www.mayoclinic.org/search/search-results?q=intestinal%20metaplasia.

You have mentioned having gastritis for 10 years. Other than the endoscopies, have you had other gastric procedures and/or surgeries? What other types of health problems have you experienced? Is there a family history of gastrointestinal problems such as yours?

I look forward to hearing from you again and I certainly hope you find some answers to this troubling problem. Given your long history, have you sought a second opinion at a multidisciplinary health center (like a university medical center) or a Mayo facility?

REPLY

Hi @afrochic Please let me add my welcome to @hopeful33250.

Teresa asks some good questions here. Your diagnosis does sound very troublesome. I am trying to figure out some gastric problems I have developed myself, but hopefully, the diagnosis won't be too serious.

I agree with Teresa about seeking a second opinion. That never hurts and it is good to know that you are moving in the right direction. If you are close to a major medical center, that is the best place to go.

Please do let us know your progress in confirming your diagnosis or finding it may be something else.
JK

REPLY
@hopeful33250

Hello @afrochic and welcome to Mayo Connect,

I am glad to hear that you found this site while googling. I had the same experience several years ago and I have found a lot of support on Connect.

I can certainly understand your concern. The symptoms you mentioned are very uncomfortable and certainly worrisome. If you care to share more, could you tell a little bit about how these symptoms affect your eating? For example, do you eat small frequent meals, what about the consumption of fats, caffeine, etc.? Do different foods make your symptoms worse? What about your lifestyle, do you engage in a mild exercise like walking etc.?

I found a Mayo website on the topic of intestinal metaplasia, https://www.mayoclinic.org/search/search-results?q=intestinal%20metaplasia.

You have mentioned having gastritis for 10 years. Other than the endoscopies, have you had other gastric procedures and/or surgeries? What other types of health problems have you experienced? Is there a family history of gastrointestinal problems such as yours?

I look forward to hearing from you again and I certainly hope you find some answers to this troubling problem. Given your long history, have you sought a second opinion at a multidisciplinary health center (like a university medical center) or a Mayo facility?

Jump to this post

Hello @hopeful33250
I'm so sorry to be replying one month later. I've been on a mental, emotional and physical rollercoaster. I have followed the dietary restrictions (no fatty food, fried food, coffee, sugary and processed foods, citrus etc to at least 98% faithfully yet I've come to see that what I eat or don't eat doesn't affect the symptoms. I eat bland foods like rice, potatoes, steamed vegetables and lots of fruits especially bananas, watermelon, blackberries, strawberries and apples. I am doing the best I can so far. Some days I'd get by with no symptoms only to be hit by severe nausea for the next 2-3 days. I do brisk walking but not daily. No surgeries done for any condition. I have siblings who suffer from IBS and also gastritis. But they all have it under control.
I live in Abuja Nigeria and have seen experienced gastroenterologists in the best hospitals in the city who have told me the line of treatment for my condition is PPIs and wouldn't change even if I flew to another country for treatment.

REPLY
@contentandwell

Hi @afrochic Please let me add my welcome to @hopeful33250.

Teresa asks some good questions here. Your diagnosis does sound very troublesome. I am trying to figure out some gastric problems I have developed myself, but hopefully, the diagnosis won't be too serious.

I agree with Teresa about seeking a second opinion. That never hurts and it is good to know that you are moving in the right direction. If you are close to a major medical center, that is the best place to go.

Please do let us know your progress in confirming your diagnosis or finding it may be something else.
JK

Jump to this post

Thank you @contentandwell I'm so sorry to be replying after one month. I have sought a second, third and even fourth opinion where I live in Abuja, Nigeria. They all reach the same conclusion saying the line of treatment is the same all over the world. The second Gastroenterologist said not to worry too much about the IM diagnosis as we'll be repeating the Endoscopy in some months to make sure nothing sinister is happening. He placed me on more PPIs and advised to elevate my bed. The PPIs offer no lasting relief unfortunately so I've gone off them totally and now relying on my diet. Some days I feel no symptoms, some days I feel so terrible I can barely stand. About to start looking into herbal and naturopathic treatment. I think conventional medicine is limited in its knowledge and treatment of this condition.

REPLY
@afrochic

Hello @hopeful33250
I'm so sorry to be replying one month later. I've been on a mental, emotional and physical rollercoaster. I have followed the dietary restrictions (no fatty food, fried food, coffee, sugary and processed foods, citrus etc to at least 98% faithfully yet I've come to see that what I eat or don't eat doesn't affect the symptoms. I eat bland foods like rice, potatoes, steamed vegetables and lots of fruits especially bananas, watermelon, blackberries, strawberries and apples. I am doing the best I can so far. Some days I'd get by with no symptoms only to be hit by severe nausea for the next 2-3 days. I do brisk walking but not daily. No surgeries done for any condition. I have siblings who suffer from IBS and also gastritis. But they all have it under control.
I live in Abuja Nigeria and have seen experienced gastroenterologists in the best hospitals in the city who have told me the line of treatment for my condition is PPIs and wouldn't change even if I flew to another country for treatment.

Jump to this post

Hello @afrochic, it is good to hear from you. I am glad to hear that your gastro endoscopy will be repeated again. That is probably important given your symptoms. It is unfortunate that you have not found more relief from medication and diet. Elevating the head of your bed is very helpful, I've done that for a number of years now.

Have you lost weight because of your problems with eating and nausea?
Is coming to the U.S. (to be seen at Mayo) a possibility for you if your symptoms do not improve under your current treatment?

REPLY

Hi @afrochic,

I wanted to follow up and ask after you – how are you doing? It sounds like you are dealing with a lot and are frustrated, but you have found a very supportive community, and I’m so glad you reached out to Mayo Clinic Connect.

I’d also like to introduce you to a few members. Please meet @kinmeta @jestride @alfanny @amy5960 @nancyj1221 @saucy @dandl48 @travelgirl, who’ve written about intestinal metaplasia a while back.

And here’s a video which I think might interest you:
– Mayo Clinic video about Barretts Esophagus, Intestinal Metaplasia of the Cardia https://www.youtube.com/watch?v=mTbeFAOVN8Q–

I’ve heard Abuja is a beautiful city and an art hub? I really look forward to hearing from you soon.

REPLY
@hopeful33250

Hello @afrochic, it is good to hear from you. I am glad to hear that your gastro endoscopy will be repeated again. That is probably important given your symptoms. It is unfortunate that you have not found more relief from medication and diet. Elevating the head of your bed is very helpful, I've done that for a number of years now.

Have you lost weight because of your problems with eating and nausea?
Is coming to the U.S. (to be seen at Mayo) a possibility for you if your symptoms do not improve under your current treatment?

Jump to this post

Thank You Teresa. I have suffered weight loss or should I say, difficulty in gaining weight. It's not drastic but people do notice and tell me I look thinner. I should be repeating the endoscopy in a few months. The pain subsided for the entire month of June but I am now starting to feel the symptoms again. I am planning to come to the US for grad school in January. My sister worked at Mayo Clinic briefly. I don't know, I imagine its expensive.

REPLY
@kanaazpereira

Hi @afrochic,

I wanted to follow up and ask after you – how are you doing? It sounds like you are dealing with a lot and are frustrated, but you have found a very supportive community, and I’m so glad you reached out to Mayo Clinic Connect.

I’d also like to introduce you to a few members. Please meet @kinmeta @jestride @alfanny @amy5960 @nancyj1221 @saucy @dandl48 @travelgirl, who’ve written about intestinal metaplasia a while back.

And here’s a video which I think might interest you:
– Mayo Clinic video about Barretts Esophagus, Intestinal Metaplasia of the Cardia https://www.youtube.com/watch?v=mTbeFAOVN8Q–

I’ve heard Abuja is a beautiful city and an art hub? I really look forward to hearing from you soon.

Jump to this post

Hi @kanaazpereira It's nice of you to check up on me. How are you doing? I hope great. Thank you for the resources you posted. I will check them out. Abuja is a beautiful city and we have a thriving art community here. Do you work at Mayo Clinic? I would like to know the procedure for getting checked there.

REPLY

Hi @afrochic,

International patients can request an appointment at any Mayo Clinic location online, here: http://www.mayoclinic.org/departments-centers/international/appointments
You could also call one of our appointment offices. The contact information for all 3 Mayo Clinic locations (Minnesota, Arizona, Florida) can be found here: http://mayocl.in/1mtmR63
The Clinic’s representatives/schedulers will ask questions to help direct you to the best specialist, either at Mayo or closer to home.

I’m thrilled to hear that you are coming to United States for grad school! Might I suggest you use these resources for insurance and billing questions. Or contact Patient Account Services for help.
– Billing & Insurance https://www.mayoclinic.org/patient-visitor-guide/billing-insurance
– Billing & Insurance (International patients) https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/before-arrival/international-patients
– Charitable Care and Financial Assistance https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance

Another incredible resource for information is the "Visiting Mayo Clinic” group on Connect: https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/ Feel free to browse through the discussions, join in, tag fellow members and post your questions.

Do let me know if you need more information, and keep me updated with your progress – I wish you all success.

REPLY

Stay away from strawberries and apples as they are acidic.

REPLY
@kanaazpereira

Hi @afrochic,

International patients can request an appointment at any Mayo Clinic location online, here: http://www.mayoclinic.org/departments-centers/international/appointments
You could also call one of our appointment offices. The contact information for all 3 Mayo Clinic locations (Minnesota, Arizona, Florida) can be found here: http://mayocl.in/1mtmR63
The Clinic’s representatives/schedulers will ask questions to help direct you to the best specialist, either at Mayo or closer to home.

I’m thrilled to hear that you are coming to United States for grad school! Might I suggest you use these resources for insurance and billing questions. Or contact Patient Account Services for help.
– Billing & Insurance https://www.mayoclinic.org/patient-visitor-guide/billing-insurance
– Billing & Insurance (International patients) https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/before-arrival/international-patients
– Charitable Care and Financial Assistance https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance

Another incredible resource for information is the "Visiting Mayo Clinic” group on Connect: https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/ Feel free to browse through the discussions, join in, tag fellow members and post your questions.

Do let me know if you need more information, and keep me updated with your progress – I wish you all success.

Jump to this post

Thank you @kanaazpereira for all the information. I'm glad you could help me with all of this.

REPLY
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