New Infectious Disease Patient

Posted by rjdavis031 @rjdavis031, Aug 31, 2018

I just received my first appointment in Jacksonville to see an infectious disease doctor. A little background, for some odd reason, out of the blue, I get cold/shaking, high heart rate, and a high temperature. The first time this occurred when I was in the Army and was taken to hospital by ambulance. Ever since then, the past 10 years, I still get this episodes and depending on the severity, I end up back in the ER. My doctor has sent me to just about every known doctor on the face of earth, except for a witch doctor lol! Every blood test comes back negative. Every MRI, CT scan, ultrasound, Allergist, Echo-cardiogram, Infectious Disease, Gastro appointment/test i've had comes back negative. The infectious disease doctor I spoke to locally was really no help, so i'm really nervous about even going through with this whole thing at Mayo. Since I only have one appointment with the infectious disease consult. Mayo is kind of my last hope to find any answers.

Interested in more discussions like this? Go to the Infectious Diseases Support Group.

Rosemary, Volunteer Mentor | @rosemarya | Aug 31, 2018

@rjdavis031 - I would like to offer you a Welcome to Mayo Connect. I saw your post this morning as I was scrolling through new posts while having my morning coffee. I admit that I am not familiar with any of the symptoms that you have described, however, I can understand your nervousness. I want to send you my sincere hope that you will find some answers.

I want to offer you some discussions (Visiting Mayo Clinic Group) that you might be interested in. Other members have shared their thoughts about their first visits. You are welcome to participate anywhere. Here are a few discussion to get you started.
https://connect.mayoclinic.org/discussion/first-time-and-terrified/
https://connect.mayoclinic.org/discussion/tips-for-first-dr-visit-and-testsappt-schedules/
https://connect.mayoclinic.org/discussion/first-appointment-at-mayo-with-medical-genetics/
I would like to introduce you to @travelgirl, who has recently visited the Mayo Jacksonville location.

Mayo Clinic's Campus in Florida
https://www.mayoclinic.org/patient-visitor-guide/florida
rjdavis031, I send you strength and hope.

Jackie, Alumna Mentor | @travelgirl | Sep 1, 2018

@rjdavis031 So sorry what your going through. How long does the episode last for? That has to be scary to experience. Especially when no one can find anything wrong. Have any other military members you were stationed with get these same episodes?

You will find the DR's at Mayo Clinic to be very understanding and completely through with their evaluation. The campus itself is more like going to a Medical Spa, instead an institutional hospital. Everyone is pleasant and very concerned with how you feel. The overall atmosphere of Mayo in Jacksonville is very calming. You never see upset people.

Would you please share your Mayo experience with us?

I wish you the best..
Jackie

rjdavis031 | @rjdavis031 | Sep 8, 2018

In reply to @travelgirl "@rjdavis031 So sorry what your going through. How long does the episode last for? That has..." + (show)

These episodes only last roughly 4-24 hours. Some are more severe than others. Sometimes they come on slow and I can take care of it at home. But mostly they come on fast and going to the ER will help. I've tried getting in touch with some of the guys I was with and none of them are experiencing what I'm going through. I have been looking into every aspect of the Army in my medical files to see if something clicks. Thank you so much for the response! I'll definitely share my experience.

Please sign in or register to post a reply.