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New here: Caregiver for my husband with idiopathic pulmonary fibrosis

Posted by shackie8 @shackie8, Jun 27, 2022

Hi there. My husband is 76 diagnosed January 2022 has symptoms 2 year prior im
Here to connect to others who have it or caregivers in a discussion of what to expect or how to help. He can’t take ofev pills till cleared by kidney dr and gi dr gi appointment not till august. Kidney dr cleared him to take it. Right now he is on albuteral and wexella inhaler nothing else. His o2 drops to 80 after a bath or walk if like 100 feee he can get it back to 92 in 5 minits. Dr said no oxygen til he’s at 59. Gp dr says early stages but 3 cat scans withing 6 months shows a lot of progression. We are very new to knowing much about this. Any tips or help with diet exercise what to expect would b greatly appreciated.

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ta8 | @ta8 | Aug 24, 2022

Yo tengo cáncer pulmón y fibrosis inicial. Tengo miedo a operación de cirugía. Mejor radio? Necesito comunicar con personas que pasen lo mismo. Gracias por clmpartif

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1 reply
shackie8 | @shackie8 | Aug 31, 2022
In reply to @shackie8 "Update on my husband. I wanted others to know he has been on 150 mg nitintab..." + (show)
@shackie8

Update on my husband. I wanted others to know he has been on 150 mg nitintab for a month with no harsh side affects. He will get blood works first of sept to see if f kidney liver ok. This was 1 of our concerns about the is medicine. I want to share for others weighing it out. He is still on 2 liters o2 still eating well. I hope Dr can tell is next week if the pill is working. He said it only works in 40 percent of ppl. Also palletive care coming in sept. We are happy for that. And will keep
You updated about that. I don’t know how to navigate this site so Il akways comnent here. And I hope others on sane journey can leave there story here. Thanks for this great site

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Still don’t know how to navigate this site. Wanted to post a update. He’s been on nintintab 150 mg a month. Blood work showed no changes and that’s good. It’s not hurting his liver. Will find out about kidneys 3rd week September. He’s doing about the same. Dr said we won’t know for a year if the pill is working. But we are getting cat scan in 6 months that will tell a lot also. Mild side affects for my husband so far mild. Some diareah and headache. Maybe not from pill but guessing it is. He eats half peanut butter sandwich with pill. If Any1 else has ipf and want to share here. I’d be happy to know about your journey. Any bit of info helps thank you. And Il always post here. I did not find a ipf message board

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Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 18, 2022
In reply to @ta8 "Yo tengo cáncer pulmón y fibrosis inicial. Tengo miedo a operación de cirugía. Mejor radio? Necesito..." + (show)
@ta8

Yo tengo cáncer pulmón y fibrosis inicial. Tengo miedo a operación de cirugía. Mejor radio? Necesito comunicar con personas que pasen lo mismo. Gracias por clmpartif

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Hi Ta8, how are you doing?

You may also wish to join the discussions in the Lung Cancer support group here:
- Lung Cancer https://connect.mayoclinic.org/group/lung-cancer/

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